I went to the opthamologist this morning. After a long exam I was rushed over to a (lyme literate) retina specialist. After hours of more tests I was told that I was borderline positive for optic neuropathy which can cause blindness. This happens to some in late stage Lyme. I had no idea it existed and I am very freaked out. I hope I caught it in time. I wanted to pass on the info to others.
Thanks for your well wishes. The doc gave me many drops to help with the pain and an antibiotic drop as well as an anti inflammatory drop.You'vegot's mom had uveitis which is what I was prepared to hear but this is different affecting the nerves behind the eyes. I am seeing the doc again in a month for a progress report.
I have heard of this but I don't really know anything about it.
The one cosolation I guess is that you got straight to a doctor who knew what it was and knows what to do.
I wish I could do something to help you. I am just sending you lots of love and hope the treatment works.
My Mum was given the milder treatment and they only stepped up to something strong enough in the very nick of time.
I found this which talks about treatment of optic neuritis in kids with lyme
- it mentions intravenous ceftriaxone plus steroids.
I think perhaps you need to come at this thing with the nuclear warheads out just to be on the safe side.
I also read that bart can cause this as well as lyme - so it may be a question of finding the best combo of abx that may attack both of them.
Finally, I'd ask if going onto intravenous abx for a while could help.
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