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4451049 tn?1387153437

Gluten intolerance anyone?

What exactly are people eating on a non gluten diet?  It seems like everything worth eating or drinking has gluten in it, so I was just curious.
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1763947 tn?1334055319
I am new with being gluten free but I am seeing some improvement and I am not 100% yet.
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Avatar universal
I went gluten free shortly before I was diagnosed and was surprised to feel a lift in brain fog within a week. Everyone said it would take longer.

I went dairy free shortly after. Dairy was causing stomach aches and bloating.  Every few months I'd try them again, but it was about a year before I felt I could eat gluten without a problem again.  I still keep my dairy intake way down as I get some bloating from it.  

I have lactose free milk for cereal sometimes, but I think here are still some proteins in milk that are tough for me to break down.  My gut is unhappy lately with the meds I'm on, so I still have some sensitivity.

Yes, eating gluten free is quite challenging. I found that it forced me Into a healthier diet. I still eat less gluten than I used to as my habits are different now.
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Avatar universal
You're right, it's hard to chart Mg levels.  

I read somewhere long ago to take the Mg to tolerance ... meaning if you get diarrhea, back off the dosage.  I've never had that happen, and just take what seems right for me, based on daily minimums.

Ditto LazyMoose about the calcium/magnesium combos.  I've read the same thing.  Partly it's that the magnesium in the combos is often not a kind that is readily absorbed, but the "-ate" varieties are:  Mg malate, asporotate, citrate, orotate, etc.  I rotate through different kinds.  My favorite is a combo of citrate, aspartate and orotate, marketed as 'Magnesium CAO', but others may do well or better on different varieties.  I am just finishing up a bottle of Mg malate, working fine.
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Avatar universal
Lactose-free milk is readily available these days.  

For a long time, only one brand was on the shelves (Lactaid) but now even the big chain grocery store near me carries its own house brand that is lactose free.   (Another variety they have is both lactose free AND fat free, if you don't want the extra calories.)  These are a little more expensive than regular milk, but worth it if you can't tolerate regular milk.

(I'm allergic to many nuts, and so I stay away from almonds and also almond milk.)
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4451049 tn?1387153437
Thanks for the input.  
Unfortunately the few doctors I have been to only look at the reference ranges.  But I know otherwise, so I will take action if something is in the low-normal range.  Has anyone else noticed how often LabCorp changes their reference ranges?  And it varies quite a bit.  My labs never match my diet that is why I never know what to expect.  I don't have a bunch of money to invest in supplements that I don't need.  I never feel any better anyhow.  

My RBC magnesium was perfect.  But "magnesium is actually an intracellular ion" as Dr B says, "so blood level testing is of little value".  My Dr does RBC magnesium, so I am not sure.      
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798555 tn?1292787551
A note about magnesium levels. A standard mag serum test is useless. RBC, red blood cell magnessium test is what you want.

You can feel magnessium if your body can absob it. The only mag supps that actualy absorb end in "ate". Ex: mag citrate, malate, or glucinate. Mag oxide does nothing.
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1763947 tn?1334055319
Ephedra I have been bitten 20 plus years ago so I am chronic. When I first had all the symptoms come out big time due to an emotional upheaval, 2011, all my blood tests were pretty much abnormal.

I had multiple vitamin deficiencies, became hypothyroid etc. if you were never lactose intolerant but now are, I would say yes, it could be from Lyme. Lyme can do anything to your body.

Your frustration is not uncommon, that is why IgeneX labs, which uses more sensitive tests, is used by most LLMD. My LLMD has studied up what normal is on many of these regular tests. It may come back low normal on something but she learned that it may really mean not normal.
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798555 tn?1292787551
Well, if you think you might be lactose intolerant and you drink milk, almond milk is the best alternative, tastes good too. Soy milk is not that good for you and doesnt taste so good.
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4451049 tn?1387153437
Thanks everyone!!

Beginning to think I'm lactose intolerant as well.  All this is new to me as I have never noticed any issues in the past with dairy or gluten.  I cannot even tell for sure if the stomach issues I get could be the gluten, dairy, or both as I've never payed a whole lot of attention to what I eat.  I just eat to live.

Could this be another effect of Lyme?

Currently being treated for vitamin D deficiency, but everything else is normal.  Iron, magnesium, B12, folate, ect.  But maybe it takes a while for nutrients to drop if I am early on in the disease. You think?  Really beginning to lose faith in labs though!  Don't understand how everything can be absolutely normal, when I can hardly function.  

    
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Avatar universal
I went on gluten free as a 'test' because a friend  (with Lyme also)  went on it even though his upper endoscope came back negative for celiac. because there can be Non-Celiac Gluten people and his doctor wanted him to try it.

Neither he nor I experienced any relief from any symptoms of inflammation or Lyme or........anything during that time.

I found eating and cooking GF to be a challenge but it really wasn't that hard.

It's worth a try. I tried it.
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1763947 tn?1334055319
Clean eating (dairy, gluten and sugar free) is recommended for lymies because it reduces inflammation. I am 95% SF, just starting gluten free and not cutting out much dairy at this point.
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798555 tn?1292787551
I was gluten free for a while, not easy!  And I'm not gluten intolerant per a spendy non standard test. So I try for less gluten when needed.

But at times I can have issues with it since gluten feeds bacteria overgrowth in the gut causing gut permeability, thers a test for that too - this is the case of some people that say they are glutan intolerant but not celiac. They need to look one step further at what its causing.

No fast food, more whole vegetables and whole foods in general like the palio diet. Corn or rice cerial, I use almond milk too, tastes good. Skip on sugar and sugar free sweet drinks as they still feed the sugar craving in people. Lots of chicken, brown rice, mixed veggies. Gluten and sugar free cured my acid reflux (from gut bacterial overgrowth apparently), and now I can eat gluten again, but I do way less than before. The typical american diet is not very good for nutrition. "Eat to live, not live to eat".  
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1340994 tn?1374193977
"everything worth eating"

The American diet is mostly not worth eating.  It is our addiction.  

The right diet for a Celiac is one that is high in vegetables.  High-quality meat protein is fine, but while you are healing, ground meat is easier to digest, I found.  Otherwise, be sure to chew your food thoroughly.  You are trying to extract maximum nutrition because your digestive tract is damaged.  Take vitamin D supplements and magnesium in the morning.  Watch for iron deficiency and treat it.  

If you want to eat baked goods, you now have to use those labeled gluten free or bake your own using gluten-free ingredients.  It is cheaper to cook at home using fresh, frozen or canned vegetables that have nothing added in the way of sauce.  Check on line to see if things are gluten-free if they are not labeled.  Once you start eating healthy and have given up fast food, you stop craving the bad stuff so bad.  

Eating this way I look 15 years younger than my actual age, so there are rewards.  
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1763947 tn?1334055319
I am just starting gluten free. I have been sugar free for a few years.

I am not a baker so I am using frozen gluten free food. There are all kinds. I also eat chex cereal which is gluten free. Then you can use protein, eggs things like that.

Mine is not from being intolerant but trying to eat a Lyme diet. Anti inflammatory foods.
Helpful - 0
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