Head and neck tremors

[ginak]

Hello,

I have a clinical dx of lyme disease and experiencing mostly neurological symptoms. I am experiencing a lot of head and neck tremors and wanted to know if anyone else was going through the same thing. The tremors are not noticeable to anyone other than myself. I notice them quite a bit at night, especially when I lie down and when I go to bed. At first I thought they were positional, but I don't really think so. I have my headphone set on right now and it is trembling a little bit. At the start of this, I thought they were vibrations in my head and they could still be. I am not getting any cooperation from my neuro since I told him about the lyme dx. I was told that I had chronic neuro lyme and was wondering should I probably go to another neurologist just to be sure. I had mris of the brain and cervical spine in September of 08 and they were both clean. The neuro wanted to wait another year to do more mris. I really dont want to have them done now because if lesions show up, they could be from the lyme disease. Any thoughts or input would be appreciated.

[JackieCalifornia]

It's against the rules to post personal contact information, so if/when your post disappears, pls repost without personal data included.

[ginak]

My tremors and ear ringing happen always at night as well. The tremors are present during the day, but not noticeable until I place a hand under my chin or something like that. At night, its really bad. Its funny how we have almost the same exact symptoms!

[jason80]

We share very similar symptoms as you know. Re: tremors specifically, mine tend to be more scattered throughout the body and more randomly. All things considered, my tremors don't bother me because they usually only occur for ~ 30s at a time and they don't cause physical pain, like my other symptoms do. The tremors are also sporadic, unlike the other pain that is chronic.  I notice tremors more when I'm in bed, I don't believe it is positional but more to do with absence of other stimuli (except for own stimuli!).  Same is true with my tinnitis, I always notice in bed, for example, but less so during daytime.

I don't know when to get my next brain MRI either, but I'm sure my neuro wants to push it out. My last one was close to 1 year ago.

[ginak]

I have had them from the beginning. I didn't get the parasthesias until about 2 months into all of this.

[gorbybelle]

have you had these 'symptoms' from the start of lyme or have they come- on over time?

thanks for discription.

[ginak]

The feeling that I get is as if my body is moving, but not going anywhere. I guess I could describe it as a strong vibration type of feeling. Its constant because when I am holding up a piece of paper, the paper shakes with my body's movement. I also get the buzzing too though.

[gorbybelle]

I know it's hard to explain a 'feeling' sometimes - when you say' vibrations'  - is it a sort of buzzing inside or can you describe it any other way - it's just that I get something? like a kinda congested/buzzing feeling from waist up to top of head  - I suppose it's a bit like when your hand or foot 'goes to sleep' - the sensation  when the numbness starts to go!!

Oh! I don't know - all I know is it is wierd and I hate it.  Maybe someone else has a 'good' discription !!

[Dont_tick_me_off]

Hi There,

I also have a clinical dx of Lyme Disease. My first symptom was muscle twiches, then pins and needle sensations in my hands/feet. The next symptom was body tremors that weren't noticable to anyone else but myself. It only occured 4 times and all 4 times was at night.

How is your treatment going?