Lyme Disease Community
How do I get a lyme test from IGeneX?
About This Community:

This forum is for questions and support regarding What Causes Lyme Disease, Diagnosing Lyme Disease, and Joint Pain. Topics for discussion also include Living with Lyme Disease, Babesia, Bartonella, Rocky Mountain Spotted Fever, Anaplasmosis, other Tick Borne Diseases, Nervous System issues, Prevention, Risk Factors, Skin Disorders, Symptoms and Treatments

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

How do I get a lyme test from IGeneX?

I live in Md and want to get a lyme test from IGeneX. I had a lyme test via my General Practitioner but they did IgA and IgG, I believe.
6 Comments Post a Comment
Blank
Avatar_f_tn
You have to find a doctor who is willing to send your blood work (or other) to Igenex.

That usually means you have to find a doctor who is an ILADS member or what we, as patients, call an llmd (lyme literate medical doctor).

You can contact ILADS and ask them to refer you to a member near you.
http://www.ilads.org/contact/contact_ilads.html

But not all ILADS members will treat by evidence based medicine, or better called science based protocols.

It's a gnarly situation and some people here feel that we shouldn't give out llmd names just initials---- and yet some do give the full name. I'll stay on the safe side and not give out full names.

Good luck finding a good doctor.

Blank
1763947_tn?1334058919
Hi, you need to find a doctor willing to sign off on the paperwork which you can get yourself straight from IgeneX. That usually means an LLMD. Or the LLMD will do the tests through IgeneX themselves.

You should contact ILADS.org to find one but the doctor doesn't have to be a member of ILADS to be an LLMD. Mine isn't. Sometime an integrated medicine doctor will do it or an alternative medicine doctor so you could also google Lyme literate Dr in your area and see what you come up with. Some LLMD can be quacks so you need to be careful. If they suggest something that sounds strange come back and ask us.

Sometimes an LLMD will treat your illness based on your symptoms, before getting your tests back from Igenex. You can get one or several co-infections along with Lyme. I had 2. My LLMD started treating my Babesia even though my first test came back negative from IgeneX. Its great that she did because my symptoms were so bad. Several months later, my test came back positive.

When you go to ILADS , read Burascano's treatment guideline for the signs and symptoms of Lyme and the various co-infections.

Lets us know if you have any other questions. Good luck.
Blank
1763947_tn?1334058919
Forgot to ask you where in MD you are from? I am from NOVA and know some LLMD in the DC metro area. Just PM me if you are interested in names.
Blank
Avatar_f_tn
Did your doc give you copies of all the test results done already?  I think you are entitled by law  have them in hard copy.  Sometimes a nonLyme doc will not interpret a test the way a Lyme doc will, and that can make all the difference, so having copies to show a Lyme doc can really help.

LLMDs and nonLLMDs will often start with the same tests:  Western blot and ELISA. The W.blot test looks in your blood for antibodies your immune system would make to Lyme, and those antibodies are called IgM (which are made by your immune system early after the initial infection) and IgG (which are made later in the infection, and as the IgM antibodies are trailing off).  

Unfortunately, the W. Blot test is not always very accurate for several reasons, including that one trick of the Lyme bacteria is to suppress your immune system, so the results may not scream 'Lyme!' even if you have it.  Sounds like you probably had the Western blot test already.  But now what?

An LLMD often uses the Western blot IgM and IgG tests, but also uses a different type of test, called PCR, which does not rely on your immune system response as the W. Blot does, but instead looks in your blood for direct evidence of DNA from the Lyme bacteria themselves.  NonLLMDs often do not use the PCR test, thinking that the IgM and IgG tests are good enough.

In your situation, I would indeed find an LLMD, and take copies of the test results already done with you.  Every bit of data is helpful to fill in the diagnostic picture.  An LLMD is also more likely to be sensitive to the possibility of co-infections, meaning one or more diseases other than Lyme which the Lyme ticks also carry about half the time.

Don't be alarmed by all this -- it's just the paces the doc needs to go through to cover all the bases.  If the doc doesn't know what you have, the treatment will not be effective, so a full and accurate diagnosis is the first step to getting well.

Best wishes to you -- we've all been where you are, so we understand.  Take care and keep us posted, okay?
Blank
Avatar_f_tn
Thank you all very much.
Blank
4939681_tn?1361302899
My LLMD is in Rockville (he is one of the 3 ILADS recommendations for MD), but there is one in DC who is very reputable and less expensive. If mojogal's, and the ILADS suggestions don't pan out I can message you names as well.  Good luck!
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Lyme Disease Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
5 hrs ago by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating Control: How to St...
Aug 28 by Roger Gould, M.D.Blank
Top Infectious Diseases Answerers
Avatar_f_tn
Blank
JackieCalifornia
1763947_tn?1334058919
Blank
mojogal
Venice, FL
Avatar_f_tn
Blank
Ricobord
CA
Avatar_f_tn
Blank
nutrinut_bob
428506_tn?1296560999
Blank
wonko
Avatar_f_tn
Blank
kathloj
Ottawa