Igx question

[ErinZoe23]

Hey Yall  Finally sent the test in tpday to Cali.  I got the complete lyme panel 6050. My PCP signed off on it. That poor thing lol Shes new pcp and was my first appointment ever to see her and she got a load of info with MS. I just told her for my own self sanity i need this test lol Wich is very true. Not very hopeful on it tho after my LP so im really thinkin i just wasted money lol but had to do it! Any who my questions is the norm is 3 to 4 weeks for results? And also i thought i read on the Igx page or maybe it was in the test kit that they send you your own results too? or did i misread that and have to wait for the doctor to call? And this test will definaly show bands right? Like no just negative or positive it will definalty have the bands on the paper?  Thanks alot guys Hope you all are doing well! Erin

[renschwa]

Thanks Erin!

Uggh- yeah- but some of my symptoms are now more auto-immune like (mouth sores/reynauds in my feet) so  'm seeing a rheumie on tuesday to see what he has to say... so I'm still kind of in limbo/ doubting the DX mode... But the more pos+ test did help.

LLMD says she's had patients with elements of auto-immune diseases like lupus but they often  disappear with lyme treatment. I've been feeling so-so on the meds. It's always something it seems....one WTF symptom after another LOL

I know what you mean by staying off of here for awhile. I think we all need a break at times.

Please let me know your Igx results though when you feel up to it! Take care of yourself!

[ErinZoe23]

Thanks guys for the input... and thanx for that article ren! I think my MS diagnoses if 90 percent right now lol I wasnt even going to get the Igx labwork but my mother conviced me to do it. Ive been accepting MS since my LP and figured maybe the joint pain and swelling and the rest of the wtf's(lol still love it) that arent ms are just arthritis or something weird! We Shall see! And sorry i dont write I learned That when i dont come on here i dont think about it at all really much and dont read all the depressing stuff happening to people with ms so i decided to stay away unless i have a question! Hope your are doing well and you get all the lil critters out of you!(i read you had more positives after ur abx i belive) Stay strong and stay safe! With Love, Erin

[renschwa]

true , it is the band numbers not the actual bands themselves.

[SeaReiki]

It does not show actual "bands" on the paper, no graphic representation, It gives a list of the number and whether or not they are positive and HOW positive they are.

represented by  +, ++ , or +++

If i recall correctly (and this is from lymemory!)  wester blot you need 2 or 3 out of 5 bands but Igx you only need 3 or 4 out of nine or something They test a wider range.

I got the WEstern Blot and the PCR test. I should go look all this up again.

I just did the 3 day (horrific) on 3 antiobiotics (doxy, amoxy, and flagyl) then three more days on them while sampling pee each day.  

mail it off and get a test on them individually and PCR on the 3 samples pooled.

it was awful. kept puking up the doxy. finishing up the flagyl, they say that is the only thing that kills the cystic form of lyme. my doc did not know that til he went to a conference and he's a LLMD.  i was only on amox and dox before. you need the cocktail apparently.

and then, there is reiki.  sending myself and yall the healing. -sea

[renschwa]

This is what I saw on Columbia Univ's website:

How does one distinguish between Multiple Sclerosis and neurologic Lyme Disease?

Multiple Sclerosis and Lyme Disease may have similar clinical and neuroimaging manifestations. Further, MS patients can get superimposed Lyme Disease - a concomitant infection which might make the MS worse by triggering an exacerbation. Similar to MS, infection with the agent of Lyme Disease can cause a progressive encephalomyelitis characterized by para- or tetraspastic pareses with gait difficulties, ataxia, bladder dysfunction, visual disorders, impaired hearing. Other manifestations of encephalomyelitis might include lateral nystagmus, intention tremors, dysarthric speech, seizures, facial palsies, retrobulbar neuritis, mild cognitive disorders (though rare dementia-like manifestations may occur). MS and Lyme Disease may cause brain and spinal MRI hyperintense lesions. Lyme Disease however more often causes a CSF pleocytosis and elevated protein. In Lyme Disease, evoked potential studies are generally but not always normal. MS patients do not have extra-neural features, as one may often find in patients with neurologic Lyme Disease (arthralgias, arthritis, myalgias, erythema migrans, carditis). Generally with MS, the laboratory studies reveal "abnormal evoked potentials (50%), CSF oligoclonal bands (90-95%), intrathecal IgG production (70-90%), and CSF myelin basic protein." (Coyle, 1992, Seminars in Neurology). If one finds intrathecal production of antibodies against Borrelia burgdorferi in the CSF, then the diagnosis of Lyme encephalomyelitis is confirmed. If one finds elevated myelin basic protein and oligoclonal bands and no signs of intrathecal Lyme antibody production, then the diagnosis of MS is much more likey. A case of a man with an MS-like illness that ultimately proved to be Lyme Disease responsive to antibiotics is described in the following citation: Psychiatric Clinics of North America, v21: 693-703, 1998

[renschwa]

Hi Erin!

I was told 2-3 weeks for results to get back but it actually was sooner than that. I got the results from my LLMD, none were sent to me directly. For me, the wester blot does list the bands and the result.

Glad you did it! Good luck! I found an article on Columbia Univ's website about MS vs. Lyme and it mentioned results of LP in it. I thought of you. If I can find the link I'll post it...