Is exercise causing problems?

[Shcheck]

Hello,

I was wondering if anyone, that's been treated for Lyme, experiences heavy limbs hours after working out or any neurological symptoms. Almost 3 years ago I was diagnosed with lyme (after 6 months of strange symptoms). I was treated with antibiotics for a month, things got a lot worse in the beginning and then I started seeing an improvement. I started working out a few months after treatment and gradually increased my workload to get close to where I was pre-lyme.

Fast forward to now and I'm still not where I was before the lyme, but I'm a lot better. I notice my body takes forever to recover, I still experience the muscle pains in my legs even on light days and how lethargic I feel isn't the same as it was when I was diagnosed, but it's still there. And these weren't things that went on pre-lyme. Whenever I decide to up my workout and exert a little more energy, I'll start to experience neurological symptoms. Like I'm out of it or something. I usually wake up in the middle of the night with heavy limbs and sometimes that "brain fog" comes back or I'm unsure about what's reality and what isn't. I do notice that it's usually on upper body days. Does anyone else have this problem? I'm seeing a new doc now and he says it's not the lyme, it's stress. I'm not stressed and these are things that didn't start until I had lyme. They went away for a bit, but are back. I know I'm all over the place, but hopefully this is a decent description.

[JackieCalifornia]

Just be careful about revealing to your doc that you've been trolling the internet for Lyme info.  Docs generally are NOT fans of the 'net ... often with good reason, but hey.  :)

[Shcheck]

I saw your response on that other post. THANK YOU! I really appreciate you taking the time to provide all that great info. I'll know what to bring up in my next doc visit.

[Shcheck]

Wow! I didn't think anyone responded because I didn't get any notifications. Thanks, guys! It really is relieving to know that I'm not overreacting. I think I'm definitely going to look for another doctor. I mean I've seen my fair share of docs since this whole lyme thing started, but none actually listen. Part of the reason it took 6 months for me to even get diagnosed was because these doctors have you in the waiting room for 45 mins, see you for 5, and tell you that it's anxiety, then send you home. Got some really helpful information from you all!

[JackieCalifornia]

I second Mojo and Kitty!

[kittycar]

Hi! I am not sure that I ever had Lyme, but I did have Anaplasmosis and Babesiosis very badly.  I started to know that something was really wrong with me because after my usual workouts I would get extremely sick, I would forget where I was or what I was saying, and my whole face would go numb.  

That was back in August of 2014. I was diagnosed by symptoms in September, and IGENEX confirmed Babesiosis and Anaplasmosis in October.  I was told by my LLMD no exercise at all.  Nothing to get my heart rate going. I had to stop all of my regular activities including riding horses.

Fast forward to now. I am getting much better (most days, I still have setbacks) and I have begun to "test the waters" with physical activity.  This past Saturday I went riding for about 30 min.  It felt great, but some of those same symptoms came back (though greatly diminished compared to before).  I went for a long walk on Sunday and same thing.  I still get those neurological sensations after exercise, but on a much smaller scale.

I totally agree with mojogal in that these symptoms that you experience are related to Lyme Disease.  I would look for a new doctor, or at least speak up with your current doctor.  Hope this helps!!!

[mojogal]

I think stress can have an adverse affect on Lyme but I believe Lyme is the reason for your symptoms.

I thought I was 90% cured or in remission, then my kids came to visit during the holidays. I tried to do way more than normal and had a huge set back.

It really is an eye opener for sure.