Just watched "Under Our Skin"

[paul_zone5ct]

I just finished watching "Under Our Skin", a documentary about the Lyme epidemic and the wars between IDSA and ILADS.  I bought the DVD online at openeyepictures.com.  This is a POWERFUL documentary, and a must-see for anyone with Lyme, anyone caring for a Lyme patient, and anyone who THINKS they might have Lyme.  You will learn so much about the politics behind the Lyme controversy.  Especially enlightening was the demonstrated link between Lyme and such diseases as MS, Lou Gehrig's Disease, Parkinson's and Alzheimer's, This researcher McDonald biopsied the brains of ten deceased Alzheimer's patients and in seven out of the ten he found Lyme spirochetes.  This is HUGE. McDonald has also just discovered something called a biofilm which is a gel-like substance produced by clusters of spirochetes that serve to render them immune to attack by antibodies and antibiotics.  This is also HUGE.  This fact alone proves that Lyme can be a chronic disease. The IDSA guidelnes and protocols that are preventing people from getting diagnosed and treated will, I predict, fall like a house of cards.  This should happen within a year, I estimate.  The IDSA will be seen as a modern-day version of the Flat Earth Society. It may turn out that these other diseases: Alzheimer's, MS, Lou Gehrig's, Parkinson's, are simply other manifestations of Lyme. The film shows one patient who was diagnosed with Lou Gehrig's and was told he had months to live.  He went on antibiotic therapy and he recovered!  Fascinating stuff. You want to hiss when they show these IDSA guys spouting the same old tune about there being no such thing as chronic Lyme.  Watch this film if you can!  -Paul

[patsy10]

Your story is a familiar one.  Did they put you on IV antibiotics?  One month doesn't sound like enough to me.  I'm not a  doctor but I really don't think it is curable at this point.  I had the rash in 1992 and have never been completely well.  I had a few good years and then it all came back again with a vengeance. I think it can go into remission but not be cured.  Just my opinion from my experience.  I have just about everything you described except my memory seems ok.  I think.......

[Coolio Hernendez]

Thanx for the update...I heard something about this film a while ago and couldnt remeber the name...

I had Lymes when i was 12 in 1988. It took a year for them to relize what i had and then they gave me one month of normal antibiotics......i nevr followed up.....went on to be pretty normal for 10-15 years.
About 8 years ago i started to have severe dry eys....real bad....i went to lots of doctors and never really mentioned that i had Lymes years ago because i thought that had been taken care of. I ended up having to get ductal plugs in my eyes (didnt really help to much)
Then i was having numbness and weakness in my hands and feet and top of head (again lots of doctors and reaserch) never thought to mention Lymes.
I also started having lots of memory loss and the dry eyes and pain in eyes and joints and hands and feet continued.

I got to the point where i couldnt kneel down or if i sat for a couple minutes...i needed help getting up (only 30 years old)

I freaked out and went to a doctor and said "Look i had Lymes 20 years ago and maybe there is something to that , but something major wrong PLEASE test me for evrything include Western Blot test"
I made it very clear that there was deff something wrong.

2 weeks later i went back the doctor read the results right there with me for the 1st time...he is a busy doctor and he never had time to look at them before i got there.
The look on his face when he read it really scared me.

He said wow! you have Lymes...maybe you got it again and maybe this is left over from years ago. He sent me to ID doctor and they put me on antiabotics for a month again.

Stll feel real bad and have noticable problems that other 33 year olds do not. I hope there is something more that can be done...I am really worried about what this will turn into. I already feel like i have Alzheimers because i cant remeber things right after i say them and i get confused for no reason out of nowhere. I am a large contract foreman in the Washington D.C area and it has started to affect my job.

Any further info you come across would be a big help.....

Thanx