Laying down

When I lay down for what ever reason I feel my sx get worse sometimes.  Like at night my legs, feet, and arms, hands really ache.  And my hands and arms are constantly falling asleep.  What is causing the hands to fall asleep.  I never did this before.   My toes seem to go more numb when I'm laying down too.  And my hands tingle more.  It also feels like I have to constatly stretch... maybe cause my legs hurt.. I dont' know.   Does anyone else do this?

[gorbybelle]

I have had the feeling of needing to stretch a lot - esp. in bed - it comes & goes.
My legs/feet are the 'need stretching' - most bits.

my first 'flare' - [which I didn't know at the time was a 'flare' ! ]- the top half of my body especially,  felt like it had all tightened and inflated - esp. neck/shoulders - also all painful down to the bottom of my ribs.

I remember thinking at the time -'what the hell have I done' - I was frightened which caused more tension/anxiety.  I still get frightened by it - 3 years down the line.

[wonko]

Yes.  My all of my symptoms, sensory or musculoskeletal, show a weird posture dependence.

When I was having a lot of sensory symptoms, it was very obvious.  The more prone I became, the further my symptoms would spread.  If my foot was tingling while I was standing, if I layed down, it would travel up my leg.  By the time things got "bad" for me, the tingling and sensory symptoms would spread into my torso.  I spent months trying to train myself to sleep propped up, but I don't get comfortable that way.

Waking up when I had a lot of active neuro symptoms was often horrifying.  I would get up several times a night.  Getting up for even a few minutes would provide some improvement.

My sensory symptoms are under better control now that I'm about 4.5 months on antibiotics.  But I still have a lot of stiffness.  Now when I lay flat, I feel my joints start to hurt more.  I wake up very stiff and sore.  Once I am up and moving, I start to loosen up.

I don't know the physical origin of why my symptoms change so much with posture, but I suspect it is linked to systemic inflammation.
  

[ginak]

All of my symptoms, which are neurological in nature worsen when I am lying down. The parasthesias get worse and the tinnitus in both ears are just horrible when I am lying down. Its weird and I thought I was the only one who this happened to. I am glad to know that I am not alone.

[JackieCalifornia]

I don't think it has to do with lying down or sitting up for me -- it's the clock that matters:  I feel like h*ll in the morning, and then better as the day wears on, until evening when I often feel quite good.

I'm now about 6 weeks off abx, and I can see the Lyme creeping back -- interestingly I had a symptom today that I had forgotten about:  feeling tired and itchy eyed and dull-witted, until suddenly around 3 pm, I started feeling better, and within a half hour my mind had cleared considerably.  This is the pattern I had until I got on abx:  3 pm is the magic hour for me.  There must be some pattern the bugs follows, because I don't watch the clock waiting to feel better -- it's just something that I notice when the fog begins to lift and I try to figure out what I can accomplish in the rest of the day.