Link between Lyme and Multiple Myeloma???or MGUS??

Hi,
  i have had a positive IgM CDC and WB.
                    positive IgG  WB and negative CDC by one band.
I have chronic Lyme symptoms, all the way to chest tightness and sharp pains through my chest cavity. My area where your kidneys and Liver are feels swelled and hard to move.

BUT, the doctors besides my LLMD(who is in another state), wont treat me for lyme becuase according to CDC I dont have the right symptoms. We all know that is a load of crock. But we did another lyme test through a basic lab and what do you know it was negative. So my insurance wont cover lyme treatment anymore, or anymore testing.

Now I have a positive Rheumatoid Factor RF and my SED Rate, CRP, and Globulin are all eleveted.

Plus I got a positive test for Multiple Myeloma (plasma cancer). I dont know if it is the test that is reliable or not reliable for this cancer yet. But I go in today for more tests.
i have been on the cancer forums at different sites and I am seeing many indivuals with both Lyme AND either Multiple Myeloma or MGUS. And MGUS is like the same type plasma problem just with out the major complications and no cancer. But I dont think this test is positive for MGUS.
Anyhow I was just wondering if any of you lymies have came across this also??

[JackieCalifornia]

Gosh, this is the first I've heard of this situation -- so I don't have any advice or comments, unfortunately.

Maybe find a local LLMD?

Good wishes to you -- let us know how it goes.

[skarey]

Wow.. sorry you are having such a hard time.  I would definately pay out of pocket for a LLMD in your area.  It's a lot of money, but it is your health.  I've never heard of Multiple Myeloma, so can't help there.  I think you REALLY need to get in to some specialists and demand treatment of some sort.  

What are your symptoms now?  

I feel so bad for you, and wish I could be of more help.

Hang in there.  Let us know what you find out...

[firemanswife21]

Thank you both of you. You have been so much help and your support is really helping me through this a lot. Well my symptoms have changed a bit. Lot and lots of headaches, nausea, not really any muscle aching or pain anymore, my muscles will just get stiff and stoved up. But my bones and joints have been killing me! And it hurts in one spot for a few minutes and then it will jump to another part of my body then hurt bad there for a few minutes.
Now I'm getting chest pain and it almost feels like my insides are swelling up and they are all pushing up against themselves. Strange illustration but I dont know how else to explain it. Then I'll get really sharp strike of pain that will shoot all the way through my chest to my back or vice versa.
The headaches are really strange too, they are sorta like a caffine headache, but really pressurized. Like my brain is a ballon that is getting blown up too much. Like it's pressing up against my skull. It's quiet strange. When I get them, it makes me feel almost a little passed buzzed. Like the point right before you slip from feeling the alcohal (alcohol) to being drunk. Everything is a bit woozy and unstable, and my sensations and reactions are slowed. It's very strange.

Anyhow my doc said that my results dont make sense to him and refered me to a better rheumy, and I am rounding up the money to see another LLMD here in Arizona. We could be leaving for Hawaii, (getting stationed there) any week now, so I dont think ill be able to start treatment here, but the sooner i get a diagnosis the better.

My gut tells me that the whole thing is lyme disease. Now I just have to prove it.

[skarey]

I don't feel you need "to prove it".  You already have proof... a CDC pos lyme test.  This makes me so mad.  Why hasn't anyone treated you?!?!?!??   Atleast a trial round to see if you herx or if you improve.  Maybe you could ask your dr to do this.  It's worth a try and may save some time and money in the long run.  

Let us know.

[brianhyder]

My uncle, Darren Preston, was hospitalized in the late 80s or early 90s and was told by his doctor that all his symptoms were that of lyme disease, but he didn’t have the money to do the test for it.  In 2008 Darren was diagnosed with multiple myeloma at the age of 42 and passed away at 45 January 2010.  His wife Atonka Preston informed me they were told of a doctor in Arkansas (who had multiple myeloma himself) that had been researching a link between lyme disease and multiple myeloma.  They were never able to find out who the doctor was, nor did they find anyone who could validate the story.  This may not be much help, but hearing that there are more people that have both diseases might raise awareness enough in the medical community to have the link looked further into.  You have my prayers. Good luck. And if you need any more information fell free to contact me at brian.***@****  My aunt Atonka might be able to tell you more details if you’re interested.