On another thread here, Mojogal has kindly posted the names of two resources that may be able to help financially with diagnosis/treatment of Lyme. Information is reposted below to highlight it. See the websites for full information.
1 -- LymeTAP -- financial assistance for testing
website: LymeTAP [dot] com
from the website:
"The Lyme Test Access Program (Lyme-TAP) is a nationwide patient assistance program to provide assistance for initial Lyme-related lab tests to patients who demonstrate true financial need. [see links to eligibility requirements and application]
"If approved, you may be reimbursed for up to 75% of your out-of-pocket costs of testing from a qualified CLIA/Medicare approved laboratory of your choice. Funds are limited & are available on a first-come, first-served basis. Children under 18 years of age are given priority. The intention of this program is to help as many patients in need as possible. It is not intended to cover insurance deductibles or to cover patients not truly in financial need. Payments of approved grants may take several weeks.
"This nationwide assistance program was made possible by a very generous donation from IGeneX Inc., a CLIA/Medicare licensed laboratory. Any CLIA/Medicare licensed laboratory may be selected for testing: you do not have to use IGeneX for this program.
"We invite other laboratories to support this program by making a donation to Lyme-TAP. If you have any questions regarding this program or how to make a donation supporting this program, please contact us via email: info [at] lymetap [dot] com."
2 -- LymeLight Foundation -- financial assistance for children and young adults in Lyme diagnosis and treatment
website: LymeLightFoundation [dot] org
from the website:
"Mission Statement: Our mission is to provide grants to enable eligible children and young adults with Lyme disease to receive proper treatment and medication as well as raising awareness about Lyme disease.
"LymeLight Foundation was started by two families who have children diagnosed with Lyme disease. Maggie Moe, one of the children now aged 21, inspired the foundation by establishing LymeLight Productions, which is now a wing of the foundation. Through their children’s struggle, both families discovered the incredible expense of battling Lyme disease and the inability of many families to afford proper treatment. Unfortunately, most treatment plans for Chronic Lyme are not covered by insurance. Existing Lyme foundations mainly focus on funding research and awareness. LymeLight Foundation is uniquely dedicated to funding medical treatment for individuals with Lyme.
"The Foundation awards grants to eligible children and young adults ranging from 3 – 25 years of age. It is the goal and the hope of the Foundation that thorough these grants children can receive proper treatment and medications in their fight against Lyme disease.
"The LymeLight Foundation is recognized by both the IRS and State of California Franchise Tax Board as a tax-exempt 501 (c) 3 organization. Contributions to the LymeLight Foundation are tax-deductible as allowed by law."
I had heard of LymeLight before, but didn't remember their specific mission. Then last week. I met a friend's sister and when I told her I had Lyme, instead of the typical blank or slightly concerned start, I got a knowing look. She said she knew a family whose daughter had it and they started a foundation called LymeLight. She said she could introduce me when I am up for it. I would like to do some kind of activity to support those struggling with this awful disease.
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