Looking for anyone who has Acrodermatitis Chronica Atrophicans with Lyme Disease

[Murphgolf]

I have what doctors believe is ACA, a late manifestation of late Lyme Disease. My skin is atrophying and I don't know if it will ever stop, based on what I have read.

Has anyone had this before and stopped the progression through antibiotics or other means?  It is all over my body and getting worse. I'm in a panic as no one in the U.S. seems to know what to do. I've read so much of the same information.

I just want to know if it can truly be stopped and if dermatological procedures can help reduce the look of the atrophy and sunken spots. Without trying to sound rude, I am not looking for what it is how how it manifests. That I have l learned. Just how or can I truly have a prayer of stopping progression and working to get skin and sunken areas back to some degree. I have seen this coming fro about three years but no doctor would believe me until tests now show it to be true.

Thanks so much.  

[TellicoRiver]

Hi, I got bit in Robbinsville, then again two years later in Tellico Plains right after the tornado hit there in 2012.  Fully cured both times but the first time took almost two years.  Second time 60 days.  Read about it here:

http://www.lymeneteurope.org/forum/viewtopic.php?f=10&t=4891

Good luck, the skin problem is from inflammation in your spinal column from spirochetes trapped in your cerebrospinal fluid.

Good luck, Will

[gottadance9]

I believe I have really bad ACA and am having trouble finding doc to properly diagnose.  I will travel anywhere in USA (I live in San Francisco bay area).  I dont want to start abx without at least a doctor familiar with ACA (or a doctor who wants to LEARN...I know, wishful thinking).
I apologize for the sarcasm but dont know whom else to turn to.  I can not live in this skin pain/burn much longer.  I know if i went to the ER they would just pump me full of steroids.
ANY HELP would be so greatly appreciated.  I have many, many photos as well.
Thank you all in advance for your kind help.

[Murphgolf]

That is great to hear. How long did you treat? Happy for you.  

[JackieCalifornia]

What excellent news!  Please keep us posted on how you are doing -- sending you and yours all good wishes for continued progress.

[mom2nine]

The ACA is almost gone completely. One small area of rice paper about 1/8" inch or less. Discoloration is gone and skin feels almost completely normal.

[Walder]

Could you please tell me where to start to stop the atrophy?

[Murphgolf]

Thanks for the update. The ACA is what bothers me the most because the worse it gets, the more permanent damage may take place. I have it all over my body, through through lifting weights I have been able to keep muscle tone to hide some of the impact.  

[mom2nine]

I had another herx a couple of days ago, just as bad as a couple of weeks ago. I was doing Biotox, Teasel, and Banderol, and within 20 minutes of eating a sandwich, I got sick. Stomach pain and then about 40 minutes later came vomiting, followed by hours of diarrhea. It was really traumatic again, and even noticed after the vomiting that both kidneys ached for a little bit (maybe a minute).  I was afraid to put ANYTHING into my stomach during that time, and wasn't even certain it was a herx. The stuff that goes through your mind includes, "What if these herbs are harmful to my body, or hazardous in combination with each other? What if the homeopathic stuff really is toxic and can hurt something else long term?" I was sick for about six hours, all told, and then I slept a little bit. But this time I have had a new "reaction" after the herx: inability to focus. Like I was in hyperdrive with A.D.D. I would start a sentence I couldn't remember to finish, make a pot of tea and get distracted and never make a cup of it for myself, etc. However, that night as I was sleeping, I was awakened by that sensation under the ACA again. Like someone was touching it with a hot nail over and over. That lasted about an hour before I fell back asleep. The ACA is about half the size it was and barely even noticeable on my hand. From the size of a half dollar in width to about a nickel. And the discolored area has a normal colored circle in the center of it (matches the skin around the ACA) which I didn't have before.  Will keep you posted.