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Lyme and lots of numbness/tingling
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Lyme and lots of numbness/tingling

Hi.  I'm still being treated with antibiotics for a clinical diagnosis of Lyme disease.  I'm just wondering if there are others out there who experience a large amount of tingling and numbness in hands, feet, face, scalp and sometimes even my tongue.  I don't have any pain in my joints, it all seems to be neurological.  I also have a lot of pressure in my head and dizziness/lightheadedness.  It's as though I can't move my head fast or I'll have an "off" feeling.  I've been on Doxy, Zithromax/Malarone combo and now just recently, Amoxicillin.  I don't notice any herx patterns, my symptoms seem to come and go with no warning.  I started Amoxicillin about two weeks ago, and started feeling better within the week, but then about 10 days later, the more annoying symptoms returned.  Anyone know if you can herx 10 days after a change of meds?  I thought it would happen within the first couple vs. almost two weeks later.  
Any feedback or similar experiences would be appreciated.  I'm feeling very frustrated as I'm not getting much better and I've been getting treatment for six months.  THANKS!!!!
Also, I'm waiting my second round of results from a western blot through Igenex.  My first one was negative, although my LLMD considered it positive, just not on paper.  
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Bacteria are not as regular in their habits as MDs would have us believe, and if you have any co-infections along with Lyme, that further confuses the symptom picture.  I did a quick look at your previous posts, but didn't immediately see if you have been tested for co-infections.  Some of them have easily recognizable symptom patterns, but others do not, and having a couple of coinfections really clouds the clues.  Were you tested for coinfections like Bartonella?
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I was only tested for Babesia through Igenex and it was negative.  I did receive about four months of Malarone/Zithro combo just to be sure.  
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Avatar_f_tn
I had babesia and it was pretty bad ... so glad you've taken care of that.

As to Lyme, Herxes are different for everyone ... I had few and they weren't really bad, which was fine, since I felt lousy all the time and feeling worse was not something I wanted.  When I had one, I'd feel a little off for a day or two, and then as I started feeling better I'd realize I'd probably just had a Herx.  Or something.

You say above:  "I started Amoxicillin about two weeks ago, and started feeling better within the week, but then about 10 days later, the more annoying symptoms returned.  Anyone know if you can herx 10 days after a change of meds?  I thought it would happen within the first couple vs. almost two weeks later."  The return of the annoying symptoms could have been a herx.  There is no specific time limit like ten days or a week or two weeks.  The bugs just aren't attuned to our sense of time that way, so I'd say take a longer view of how you feel and try to see the long haul rather than focus on the specific timing.  These are complex diseases that affect the body in mysterious ways, so nothing is for certain.  Just keep plowing ahead! I keep a calendar of symptoms day to day, so I can try to see the waves of symptoms.  It helps me.

My Lyme treatment was well over a year, so it's not a quick cure by any means.  I had some other complications, and one of them was that my thyroid took a hike, so I was exhausted like I was with Lyme, really useless day to day.  I have read that Lyme can cause thyroid problems or have some effect on thyroid function, so you might ask your doc about that too.  (I also have thyroid problems in my family, so maybe that's why it hit me, dunno.)

Herxes are different for everyone and different over time.  I didn't ever have significant joint problems.  A little soreness in my knees going up a flight of stairs sometimes, but nothing big.  Everyone's different!  Sorry not to be more helpful.  Hope you feel better soon, but you might ask your doc about the thyroid.

Take care --
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Avatar_f_tn
Thanks for your advice.  Always appreciated!
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Avatar_m_tn
If you wish I know a colloidal silver that will do wonders for your lyme. I have been taking it for 2 weeks now and I am better now then I have ever been in 30 years.
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What does the colloidal silver do exactly to help the lyme?  I've heard of it but have never tried it.  Thanks.
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Avatar_m_tn
Well, basic colloidal silver particals in nature attach themselves to foreign bacteria and suffocate it. This has been around for hundreds of years. 100 yeasr ago people used to put a silver dollar in their milk to prevend bacteria from growing. It acted like a preservative.
Lyme is a lot tougher and basic colloidal silver on its own can't fight this on its own.
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Before anyone uses colloidal silver, please check other sources of information that detail the dangers of colloidal silver.  
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I received my second western blot back from Igenex this week.  I finally have a positive through Igenex standards, but was one band short for CDC criteria.  I am glad to see this positive as it assures me that I'm on the right track in terms of taking all these antibiotics.  I'm still waiting on some urine test results from Igenex, but won't have those back for a couple weeks.  
Still waiting to feel better soon.  I'm taking a three day break from the Amoxicillin in hopes to decrease some symptoms just in case I'm experiencing a long herx.  
Have others out there done what's called "pulsar treatments" followed by detoxing footbathes?  I think the pulsar is similar to a rife machine from what I understand?
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