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Lyme disease Please HELP!!!
I was bit by a tick in July 2010 and didnt think anything of it until late Oct I thought I had the flu, then joint pain, cold, tired and then it got really bad I had NO short term memory, numb feeling in the back of my brain, so confused didnt know simple number and when driving I would forget where I was going, anxiety,depression the list goes on and on!!! I went to the dr had several test and she said I had lyme. I was confused until my boyfriend remembered I had a tick on my neck in July I still had a small red bump from it. I took 3 weeks of doxiycline. I took my last doasge about a week ago and right away symptoms returned joints hurt starting to have memory loss. From my research I believed i needed an extended doasge of medicine but my dr said no and referred me to a infectious disease dr. I went today and now feel hopeless. He said he believes I never had lymes disease because my blood test cameback 8.5 only.5 above normal not sure what that means???? so he took a bunch of blood to test for other things. I feel so strongly I had it since was bit by a tick, symptons and when I was on the medicine it helped. The doctor today told me to stop thinking I have it because VERY FEW people in Missouri get it???? Would love feedback,experience or any input!!! Im desperate for helpnow
Lori
I agree that all possible causes of illness should be explored when current treatment is not effective.
Given that Lyme is a bacterial infection spreading throughout the US and other parts of the world, and that hyperparathyroidism resulting from a tumor probably has other causes, I would venture a guess that Lyme is far more common than hyperparathyroidism.
Lyme is also known to have effects on the endocrine system, including thyroid function.
Therefore I would agree that anyone diagnosed with Lyme who is not improving should look further, at other infectious diseases (co-infections) carried by the same ticks as Lyme, and at other possible ailments such as you outline.
I would not however go so far as to say that a significant number of Lyme diagnoses are likely due to a parathyroid tumor.
I agree that all possible causes of illness should be explored when current treatment is not effective.
Given that Lyme is a bacterial infection spreading throughout the US and other parts of the world, and that hyperparathyroidism resulting from a tumor probably has other causes, I would venture a guess that Lyme is far more common than hyperparathyroidism.
Lyme is also known to have effects on the endocrine system, including thyroid function.
Therefore I would agree that anyone diagnosed with Lyme who is not improving should look further, at other infectious diseases (co-infections) carried by the same ticks as Lyme, and at other possible ailments such as you outline.
I would not however go so far as to say that a significant number of Lyme diagnoses are likely due to a parathyroid tumor.
Lyme is NOT rare....what is RARE is for a doctor to actually diagnose it.
I live in Alabama...they told me...people in AL dont get Lyme...I had a classic clinical presentation of it in 1998 about a month after pulling a tick off from behind my ear, that got swollen and red....lymph nodes enlarged, fever....like really bad flu symptoms in the summer.
I was told I was cured of that after two weeks of tetracycline which I became allergic to.
I kept having symptoms....for 12 years, bening explained as fibromyalgia, chronic fatigue depression IBS...etc etc. So I had the DNA test run for LyME that I had to pay 300.00 for from IGENEX corp in California. It showed indeterminate for bands 31 and 41...I then found me an LLMD in 2008 and began treatment.
WELL, that wasn't it at all..... WHAT IT IS:::: Hyperparathyroidism.....a tumor on my parathyroid gland....causes many symtoms same as LYME....+ massive bone pain and massive depression + massive neuro symptoms.
If your doc will run more blood tests, ask for these two hour result tests before you proceed to an LLMD:
Calcium, Vitamin D level and PTH level, include a thyroid panel TSH and T4 etc...save yourself some time and pain.
My calcium was 10.4, my PTH was 97, and Vitamin D 11.......these were NEVER tested in my 12 year search for answers until I ASKED FOR IT AND DEMANDED IT BE CHECKED>
Good luck,
Lori
I live in Alabama...they told me...people in AL dont get Lyme...I had a classic clinical presentation of it in 1998 about a month after pulling a tick off from behind my ear, that got swollen and red....lymph nodes enlarged, fever....like really bad flu symptoms in the summer.
I was told I was cured of that after two weeks of tetracycline which I became allergic to.
I kept having symptoms....for 12 years, bening explained as fibromyalgia, chronic fatigue depression IBS...etc etc. So I had the DNA test run for LyME that I had to pay 300.00 for from IGENEX corp in California. It showed indeterminate for bands 31 and 41...I then found me an LLMD in 2008 and began treatment.
WELL, that wasn't it at all..... WHAT IT IS:::: Hyperparathyroidism.....a tumor on my parathyroid gland....causes many symtoms same as LYME....+ massive bone pain and massive depression + massive neuro symptoms.
If your doc will run more blood tests, ask for these two hour result tests before you proceed to an LLMD:
Calcium, Vitamin D level and PTH level, include a thyroid panel TSH and T4 etc...save yourself some time and pain.
My calcium was 10.4, my PTH was 97, and Vitamin D 11.......these were NEVER tested in my 12 year search for answers until I ASKED FOR IT AND DEMANDED IT BE CHECKED>
Good luck,
Lori
I just answered your other post about looking for an LLMD ...
Your symptoms are pretty common among people posting here. I never saw the first tick that gave me Lyme and a co-infection, so you're one of the rare ones who does see the little beggar.
From what I read (and I'm not medically trained), 3 weeks of doxy is the standard, nonLLMD treatment. The problem being that Lyme bacteria have a very slow reproductive cycle and while 3 weeks is plenty for the bugs that cause most infectious diseases, it's not enough for Lyme, hence a much longer course of treatment is usually in order from what I read (like months.) NonLLMDs also don't always test for possible co-infections carried by the same ticks, and that's an important component because they often need different meds than Lyme.
The standard position of nonLLMDs is that Lyme is hard to get and easy to cure, and is very rare. Uh, not. These docs mean well, and are just following the IDSA (Infectious Disease Society of America), which is the big group of infectious disease docs. Unfortunately they are wedded to outdated science on Lyme. It's a great scandal in plain sight, and we the patients are paying the price. Be strong, you are not alone in this. Feeling overwhelmed and confused and upset is part of the disease, and also a result of being told you're not sick when you are. Been there.
It will get better once you're in treatment. Hang on and keep plowing ahead, okay? Let us know how you do. Take care --
Your symptoms are pretty common among people posting here. I never saw the first tick that gave me Lyme and a co-infection, so you're one of the rare ones who does see the little beggar.
From what I read (and I'm not medically trained), 3 weeks of doxy is the standard, nonLLMD treatment. The problem being that Lyme bacteria have a very slow reproductive cycle and while 3 weeks is plenty for the bugs that cause most infectious diseases, it's not enough for Lyme, hence a much longer course of treatment is usually in order from what I read (like months.) NonLLMDs also don't always test for possible co-infections carried by the same ticks, and that's an important component because they often need different meds than Lyme.
The standard position of nonLLMDs is that Lyme is hard to get and easy to cure, and is very rare. Uh, not. These docs mean well, and are just following the IDSA (Infectious Disease Society of America), which is the big group of infectious disease docs. Unfortunately they are wedded to outdated science on Lyme. It's a great scandal in plain sight, and we the patients are paying the price. Be strong, you are not alone in this. Feeling overwhelmed and confused and upset is part of the disease, and also a result of being told you're not sick when you are. Been there.
It will get better once you're in treatment. Hang on and keep plowing ahead, okay? Let us know how you do. Take care --
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