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Lymes Disease symptoms?

Hi,
I have been diagnosed with anxiety and I am currently taking 10mg Lexapro which doe not seem to be helping. I have really bad physical symptoms and I think there is something else medically wrong with me, even though the various health test that I've had all came up negative. My question is, does anyone of you suffering from lymes disease feel constantly tired all of the time, feel like you are out of your body, like on drugs or living in a constant dream? I guess it's called depersonalization? But can it happen Constantly? I also have floaters, halos, white lights in my vision and doubled vision. Like, if I focus on an object, whatever other object is behind it or beside it is doubled. If you know what I mean? And when I sleep my body also vibrates. I have obsessive thoughts, I do obsessive things, I am constantly thinking, and feel like I have some kind of disease that the doctors cannot find. I cannot concentrate, I forget everything, feel foggy headed, and just feel empty. And can Lymes disease cause constant joint popping? I have constant grinding, popping, and cracking sounds in my joints all over my body, especially in my neck, very badly in my shoulders, my back, jaw, elbows, wrists, knees and hips. It does not usually hurt but my muscles and joints hurt and seem to be tense, weak and stiff.  Can lymes disease cause all of these CONSTANT symptoms? This problem is effecting my life and my relationships and I just want to feel normal and like my old self again. I just need to know if lymes disease can cause all of these symptoms, and constantly, 24/7 I have these symptoms. like I said, I was diagnosed with anxiety but I do not believe that anxiety can cause all of the agony. I was tested for lymes disease twice, and both came up negative. The first time the antibody test came up "high" so they did a westen blot and the 41 band came up positive, but thats it so they said the western blot was negative and that I didnt have lymes disease. I just do not know what to do? for those of you who hve lymes disease, do my symptoms sound like lymes disease? or could it really just be anxiety? I am currently residing in Hampton Roads Va, and do not know how to find an LLMD near me. If any of you could help it would be greatly appreciated. And I have had these symptoms for almost a year now, so if I do find an LLMD near me and do in fact find out I have lymes disease would it still be curable? THIS IS TAKING OVER MY LIFE! PLEASE HELP ME!!!
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Avatar universal
Well said!  and welcome to the Lyme page.  Hope you'll stop by again.
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Avatar universal
I am 46 and have been the picture of health my entire life. The only thing that I have ever had a problem with is anxiety and panic attacks...because of this doctors never take me seriously. A month ago I was hit with the same symptoms that you have mentioned, exactly the same symptoms. I had an MRI that showed lesions in my brain which resulted in my doctor (finally agreeing something is wrong)  ordering a lumbar puncture. She was certain it's MS but my spinal fluid came back showing no bands. I now know this is common, the no bands, so it's still a possibly I have MS despite the normal lumbar. I was ready to accept that I do indeed have MS and begin treatment but then I ran into a woman that has spent ten years  diagnosed with MS. She was already to the point of relying on a wheel chair before she was tested by a Lyme specialist only to find out she does indeed have Lyme. Today she is completely healthy and out of her chair. The one thing that jumps out of me from your post is the constant popping and cracking sounds. Mine is so bad that people around me mention it saying they have never heard anything like it. A couple of months ago...nothing on me ever popped or cracked. Don't listen to anyone who tells you that you are making this up. I intend to not accept an MS diagnoses without first exploring that could possibly be LYME. No one knows how your body feels like you do. The thing with people who suffer with anxiety is that we are very tuned-in to how our bodies feel. This isn't a bad thing. Find someone that will appreciate this in you and listen to what changes have taken place!!!
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Avatar universal
I had almost same symptoms as you feeling in a dream depersonalized I got tiered a lot started to have a lot of anxity pain in neck and when to an anxity doctor and finally a friend of mine recommended a line doctor and all my symptoms match lyme now on antibiotics I would recommends seeing a lyme doctor I got miss diagnosed with anxity meds they never helped me at all started talking antibiotics all anxity gone but still have some Nero problems hang in there
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Avatar universal
I would say you do.  Not a doctor, just a patient with chronic Lyme for 22 yes before diagnosis.  It can get better, and your not alone.  Lyme hides in the muscle and tissue.  That's why it's hard to detect in blood.  Your not alone, a lot of docs don't understand this disease.
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Avatar universal
yes!!! you could have lymes...get the wetern blot test not the standard test they give you in a doctors office it almost always comes back negative and is why lymes suffers get misdiagnosed with other things...the wetern blot tests specifically for lymes....
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Avatar universal
My P.A. told me that when they have a patient who is not responding well to abx, they go looking for mold or heavy metals or yeast and usually find one or more. I guess all three of those can somehow block treatment.

There are plenty of "chronic Lyme" patients turning up positive on the new culture test, meaning they still have an active infection, so not all people with ongoing pain and symptoms post treatment are just dealing with left over toxins.  
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Avatar universal

This is all so new to me, and I know I have alot to learn. It will be interesting to see how things progress as I continue with treatment.
It is hard for me to distinguish which symptoms are from lyme and which ones from the mold, even the mercury toxicity.
I have read where patients experience the tinnitus, cracking of joints, muscle aches, chronic fatigue, brain fog to name a few, all of which appear to be symptoms of lyme and which I have.
I can't even recall when I got bit. I never saw a bullseye rash anywhere on my body.

I am currently reading Mold Warrior, by Shoemaker. It is a great read for anyone with mold and even lyme. I recommend it. In Shoemaker' s book, he states that there is a difference between acute and chronic lyme. In chronic lyme patients, it's the chronic illness due to toxins after the antibiotics have cleared the infection.That is why some patients will remain ill with symptoms like fibromyalgia and many others. They believe they have developed fibomyalgia, when in fact, it is really a toxin.

I hope if there is anyone receiving antibiotic treatment and still not responding well, to look into reading what Dr Ritchie Shoemaker has to say.

And yes, I would like to know if anyone has seen a difference in their healing process by limiting their exposure to EMF.
Give us some feedback.


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Avatar universal
I haven't heard that antibiotics have mold in them. I know pencillin is developed from a mold, but there are others that were not. I will be getting some testing tomorrow to see if I also have markers for mold.

Your oral and facial pain sounds awful. Those sound like Lyme symptoms to me.  Lyme infects the nerves, causing dental pain, jaw pain, and the other facial pain your describe. I feel lucky I didn't have that, although I did have an altered sense of taste and some choking incidents.

Once Lyme gets to your nerves, I don't think that natural remedies can take care of it.  I think they can get a person to better health and possibly even to some measure of remission, but hopefully you can get to a point of health where you could take some antibiotics.

I've read a little about the EMF theory.  I saw a picture of a science fair project  by a teenager who put some kind of seeds next to a network router and some far away from the router.  The seeds sprouting next to the router looked pathetic and the sprouts died.  The sprouts far from the router looked great.  

Our router and computers are on the opposite end of the house from where we sleep, and we leave cell phones in the office, so I'm hoping that's sufficient.  We bought something called a Gigaset, which routes a cell phone call through to the home phone line when the cell phone is nearby.  When I'm home, I can move throughout the house leaving my cell phone in the office without worrying I'll miss a call. It's handy and reduces any EMF exposure I might get from the phone itself.  They also say to keep your cell phone at least an inch or two away from your body, and not to put it in a pocket.  For men, a case hanging on a belt is better than in a shirt pocket.  For women, a purse is good.

I've read about the preventions, but I haven't heard any testimonials that avoiding EMFs made a difference for someone.  I'm curious to hear if any are out there.
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Avatar universal
Thank you for your reply.
I am working with a medical dr but does not use conventional pharmaceuticals on my mold and lyme issues. I am taking supplements and homeopaths. He has had great success with his patients and I am very excited about my outcome. The worst for me is the oral and facial pain. For some strange reason, most of my pain is in my teeth, tongue, gums and face. It is unrelenting and gets worse with each hour of the day. I cannot take antibiotics as I have mold as well, and mold is found in antibiotics. It is hard to determine what is causing my pain...is it the lyme or mold? Each are biotoxin illnesses and can produce significant pain. I also have high levels of mercury and diagnosed with chronic inflammation response syndrome.

My dr also advised me to limit my exposure to EMF. Did you all know this? I can hinder any recovery from lyme disease.
I hope I can get some relief soon. It has been a difficult journey.
I try to keep a positive attitude, but it is hard.
Thanks for your encouraging words. Take care!
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Avatar universal
It does sound like you've got some miserable symptoms.  I'm so glad you have a doctor you feel good about.  

It's really hard to tell what symptoms will subside first in any given patient.  I have heard that joint pain is often the last to go, as it's hard to eradicate from joints.  There isn't good blood flow there, which means antibodies and antibiotics don't get there as easily as other places.

I naively thought that symptoms would decline as fast as they developed.  Nope.  My severe rib pain went from zero to horrific in only 2 months.  A year and a half after starting treatment, I still have stubborn, although low grade rib pain.  Seems the antibodies and abx have trouble getting into rib cartilage, too.

My tinnitus did improve within the first several months, but then would vary in intensity.  I found that it would flare up when I started a new abx.  It seemed to improve with a couple days of chlorella use.

You have quite a few neuro symptoms.  That's often an indicator of Bartonella.  Have you been evaluated for that, too?  It can cause nerve pain and the crawling sensations, too.  Lots of people test false negative, so you need a doctor who is familiar with it to know when to make a clinical diagnosis.  If you have undiagnosed Bartonella, your response to Lyme treatment can be slow or poor.  It needs different meds than Lyme with Rifampin and Levaquin being the two I read about the most. (I took both.)

I don't seem to have a mold issue, so I don't know much about it. Sorry, but I don't think I can be of any help on that.  From what I understand, you do need a doc who understands it and can treat it, as mold also interferes with Lyme treatment.

Hang in there!  It will get better.
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Avatar universal
Lyme disease, like syphilis can create psychosis in people.  OCD, anxiety, personality changes.

Here is a brochure about it from Ilads
http://www.ilads.org/lyme_disease/Psychiatric_Brochure_08_08.pdf

With that said ere can be other deficiencies that can cause this as well in addition to other infections etc.

I actually had the same mental symptoms you did.  And oddly enough they improved with intense vitamin D treatment.  I still have some brain fog and dream like state feeling going on, but without all the other debilitating features.  Vit D is a hormone (largely unknown) and when critically low, like mine, it can cause unusual symptoms that we are only recently understanding.  It has a play in overal health and I've even heard MS patients have found some relief when taking it.

Whether those symptoms you have are lyme based is hard to know.  For me, I do think they were largely lyme based.  they happened soon after a bizzare bulls eye mark and fatigue.  but the Vit D just happened to rebalance some things which made my body more able to deal with what was going on.  Or perhaps it was coincidence that those symptoms went away as soon as I took Vit D.  I had those symptoms for  close to eight years.

So, I the rambling, I am trying to say, it may very well be lyme.  Or it may be a subtle combination of a few things, including lyme, which could be knocking you off mentally.


Good luck with everything.  
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Avatar universal
I am new to this forum. I have mold and lyme disease. Two biotoxin illnesses. I am working with a qualified dr in Atlanta. I am just in the very beginning stages of my treatment (3 months). My symptoms are: chronic and severe nerve pain in ALL of my teeth, my tongue, gums, face, ear pain, ear ringing (constant), headaches, burning throat, chronic fatigue, muscle aches, muscle weakness, heart palipatations, excessive cracking of all of my joints, crawling sensations on my skin and more.
I am wondering about a couple of things. Has anyone who has had the ringing in the ears and cracking of joints, notice much improvement as you respond to treatment??? Also, I eat gluten free but as a mold patient and not one with celiac, what foods are good for us and can we pop our own corn (organic) as a snack food? Thank you for your help :-)
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Avatar universal
I know the dreamlike state very well.  I found that when I went gluten free, it improved noticeably in less than a week (some others say they notice a difference in 2-4 weeks).  If you haven't already, removing sugar from the diet really helps, too.

I also notice improvement when I regularly take something for detoxing. Chlorella worked well for me.  Recently, I was prescribed cholestyramine as a "binder" while I'm struggling with Babesia, and I could tell the next day that it helped with my mental clarity.

I also take Provigil, which I've tried to wean myself off of twice, but really didn't like going without it.  It definitely helps with me to more done around the house and to focus better.  I've heard that Adderall is a decent alternative if your insurance won't cover Provigil.

Has your doc suggested anything for you?
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Avatar universal
Welcome to MedHelp Lyme -- I don't recall seeing your name here before.

Sorry you have reason to be here, but it's a good group, so please visit whenever you feel like it.
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Avatar universal
I am hoping you are doing better!!

Can you let me know? Gosh I relate to your symptoms oh so very well. I am IGENEX positive for Lyme (and CDC negative, but barely).

I hate the dream-like state/vision 24/7. I have that and it hasn't gone away in 6 months. I am hoping with treatment it will dissipate into NOTHING because it needs to go!! It has gotten a little bit better, if I compare myself to 3 months ago, but it's so slow and I pray to be completely present once again!
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Avatar universal
I am hoping you are doing better!!

Can you let me know? Gosh I relate to your symptoms oh so very well. I am IGENEX positive for Lyme (and CDC negative, but barely).

I hate the dream-like state/vision 24/7. I have that and it hasn't gone away in 6 months. I am hoping with treatment it will dissipate into NOTHING because it needs to go!! It has gotten a little bit better, if I compare myself to 3 months ago, but it's so slow and I pray to be completely present once again!
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Avatar universal
Have a safe trip to Atlanta -- let us know how it goes and what you find out!  Best wishes -- Lyme is a long journey in more ways than one!
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Avatar universal
I have been suffering for over 7 years with most of the symptoms alot of you have. I have joint cracking, muscle aches, headaches, chronic and severe nerve pain, ringing in ear..just one ear, tingling and numbness as well as burning in my hands and feet, sickly feeling all over, heart palipatations,,,just to name a few. I thought is was B6 toxicity, since my B6 levels were off the charts.
Just last month, I tested positive for mold sickness. I also found out that Lyme disease and mold often go hand in hand. I am not sure why. I will be traveling to Atlanta to see a mold and lyme disease specialist. I am just saying that maybe mold could be another issue as well. Get tested. I used the Genova Labs Diagnostic test. If you are interested, I can recommend a certain kind. Let me know. Good luck to all.....sumorris0312
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Avatar universal
If you search online for

LLMD Arizona

the first link will be to a website with a referral function.  That's a good place to start.  Best wishes --
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Avatar universal
i have almost all the same symptoms as the anxious post been going on for 4months now have had tons of tests done including 2 lyme test from 2 differnt docs and they came back neg all bands and western blot it was through sonoaran quest labs i still want to get tested through ignex and i want to find a llmd im in az please help me find one
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Avatar universal
Hi,
I had to read your post again, for a minute i thought i had wrote it and not realised. Everything you have written mirrors everything i have been going through for the last 5 years. All your symptoms, everything. I live in Birmingham, England, my problems started back in June 2006, i went for a round of golf, and was bitten on my right leg by something. The problem i have is that, i knew nothing of Lyme Disease, and i went about 4 years before i started to suspect there was a connection. A week after the bites, i came down with really bad flu symptoms that lasted 2 weeks, after that i felt ok. As the months past i started getting more anxious, i started getting mild panic attacks and then in December 2006, 5 months after the bites, something wierd happened, on 16th December 2006, i was at work, and i suddenly felt as if i had been pulled from reality into a dream world, i began suffering from that feeling of Derealisation, i was off work with these and other feelings for 11months. These feelings got a lot worse and my doctors believed i was depressed. Ive tried anti-depressants, but the side effects were terrible as if my body was vibrating from the inside, so i stopped them. I started to get a bit better, and in November 2007 i returned too work, still not feeling that great, i battled on, but these feelings have never gone away. I then started getting other symptoms, all of which you have already mentioned, so i wont list them again. I began to do my own reasearch as my doctors dont really seem to know what the hell is wrong with me, and i started to realise that Lyme Disease causes many of the symptoms i am experiencing right now. So, i am currently trying to get the right tests, see the right people, but things are taking so long. The only tests i have had are IgG/IgM antibody tests, these are normal, im waiting for my doctor to refer me to an Infectious Diseases specialist. I think you should have a better chance of been diagnosed in the states, i noticed thats where your from. It seems to be a lot harder in England as we dont seem to have the right tests available. Please let me know what progress your making as my symptoms are getting worse and i really dont know which way to turn.

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Avatar universal
Did I read that correctly soanxious89?  If so, you have free access to the people who have the most experience with mycoplasmas.  They made some of them!  I'd suggest you contact Walter Reed Army Hospital, or the nearest large base hospital.  Doesn't matter what branch of service your husband is in.  This could be Gulf War syndrome, not unusual for spouses to become infected.  
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Avatar universal
I have been messaging you and replying with no trouble.
Ewford--please message me.
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Hmm, that's odd.  Bet he can't send one to you either, don't know, just guessing.
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