MS vs LYME

[leesalow]

Hi, I just wanted to ask you if you were ever tested for Lyme Disease. I have had all of the symptoms you've had, with a few more. At first thought to be MS (positive for lesions on brain and brainstem)--My tap was negative for bands so neuro says I don't have MS. You see i tested positive for Lyme disease. 4 times they tested me. I just finished 4 full months of oral antibiotics then the 8 week period for IV antibiotic treatment thru pic line. Pic line removed yesterday. I feel like a new person. Numbness is gone. I still have joint pain and will because usually the damage is done. I take flexaril to help ease my joint pain. But no more drooping eyelid, no more tingling and numbness in strange areas such as face, upper torso, arm, toes, etc. I am not as weak now, definitely more energetic and more back to the old me. I have a strange ear ringing that started the week of Christmas in 07 but is considered part of the lyme infection. I do believe it may never go away. I also have positive ANA. My lyme test were Western Blots and I assure you, I know I may never be 100% well again, but I am significantly better with treatment for Lyme Disease. I've been told by many that I should be taking my lesions more seriously and practically that I should be getting a new neuro because most think the lesions indicate MS, but I firmly believe the lesions are result of Lyme and obviously my neuro feels the same. I do have demyelination going on but it must not be too serious. IF YOU HAVEN'T BEEN CHECKED FOR LYME. PLEASE DO. MY INSURANCE HAS TAKEN GREAT CARE OF ME AND PAYING FOR THE TEST/TREATMENT. I live in MS and it is rare to get it here. Take care and hope you get answers soon.
Lisa
ANYONE WITH ANY INPUT, PLEASE SHARE