Please please help!

[lxp1123]

I have been suffering with very strange symptoms for the past 3 months.  It started with a miscarriage which I was told is very common.  However soon after that I developed heart palpatations with chest pain.  Then came numbness and tingling in my arms and fingers and jaw pain (I thought I was having a heart attack).  This lasted for about a month.  Then I started having pain in my joints, mainly my wrists elbows fingers ankles and toes.  It would feel like a shooting pain and only last for a few seconds.  After that I started feeling feeling achy under my arms, in my chest, and down the front of my neck.  I thought I was going to come down with a bad cold but it never progressed to anything more than aches.  The drs think I'm crazy bc i call them "traveling aches" they move from one body part to another.  Next came numbness and tingling in my throat.  I thought it was from an acid reflux medicine I had started taking so I stopped.  The numbness went away for a while and returned about a month later without me taking any medications.  It has now been constant for about 3 weeks.  I also had an episode of what I think was vertigo.  It felt like I was walking on the wall and I had this immense pressure in my head.  And now I have had abdominal pain for about 2 weeks.  It started in my lower right side moved into my hip and now is in my lower and middle back.  In the back area it feels as though my muscles are going into spasms and that's what is causing the pain? I don't even know anymore.  So for the past 3 months I have had a million blood tests, seen a cardiologist, gastronologist, rheumatologist,  obgyn, I've had abdominal sonograms, internal sonograms, echocardiogram, endless ekgs, and going for an mri next week to "rule out" ms (which I really don't think it is) I'm cleared of all autoimmune diseases as well.  I truly believe these symptoms are from lyme disease however I've been tested 4 times and all tests have come back negative. .. BUT... Some of the bands of the test show a presence of lyme titers but not enough for positive lyme result.  I would love feedback from anyone in a similar situation or from anyone who has lyme with similar symptoms.  I live on Long Island which is known for lyme and on top of that I spent almost the entire summer camping.  I have not found a tick or bite on me however I have found ticks in my rv.  My doctor just recently told me it is impossible I have lyme with all my negative testing! What do you think? Please help!

[JackieCalifornia]

Good for you!  Keep us posted.

[lxp1123]

Thank you so much for your input... I have an appt wed with a LLMD!

[bdonahue7]

Sorry I have been told that band 23 is specific to Lyme, meaning nothing else would cause it to be +. So if I were you I'd find a lyme literate MD or ND and start lyme treatment. If you need help finding a Dr. start a new post "looking for LLMD in...."
My western blot only showed bands 23 & 41 + so my dr said it was not CDC positive and did not have lyme. I even had a picture of my bulls-eye rash, but was told there are no lyme ticks in WA state.
My advice would be don't give up on finding a good doctor and start treatment ASAP. Lyme symptoms come and go but can get awful quickly.
Good Luck!

[lxp1123]

I also went back into previous blood work and found my first lyme test only had Igg P41 present.. then when I went back a few weeks later the other 2 bands were present as well.

[lxp1123]

My 3 bands that came back positive were Igg P66 ab, Igg P41 ab, and Igm P23 ab... again I am really not sure what all that means though lol.. thank you for your help.

[lxp1123]

Thank you for replying.. I will look up which bands tested positive as soon as I get home.  My symptoms sound similar to what you are describing.  They move all over.  I call them "traveling aches" and my doctor thinks I'm nuts.  I have just found a lyme literate doctor and have an appointment for next week so hopefully he will have some answers.  I will get back to you on those lyme bands.

Thank you so much!

[bdonahue7]

What bands showed traces of lyme? We can help you know if they are lyme specific. Have you had the Igenex test? Your symptoms sure sound like lyme and co-infections. My symptoms/pains come and go. They move all over my body heart, head, muscles and joints. It's very common to have negative test results. You should go to a lyme literate Dr in your area to get diagnosed.  Good luck and keep posting questions.