RE: my Doxy and also abnormal nerve conduction study

[Hope75]

Hi all, here is the latest in my journey.  I have been on Doxy for a few weeks now.  I have had no rashes this time, like I did on minocycline.  Now, this could be a good thing (much more comfortable) but it could be bad.  Does this mean I'm not herxing and therefore not killing those buggers with the Doxy like I was on the mino?  I had a few bumps crop up on my hands, but they were different than the hives I got with mino.  I don't know if I feel any different, one way or another.

I had a nerve conduction study today for my painful elbow.  My other elbow was showing signs of the same pain, so I got both of them shocked.  Fun.  One with the needle.  More fun.

The technician said abnormally slow on both elbows.  Not good!  That's peripheral neuropathy, is it not?  I've been saying I have it for 3 years now, but it is actually showing up on tests now.  Ugh.  My elbow hurts right now.  Am I relegated to a lifetime of this?  Ouch.  

I am going to the LLMD in Sept. and I'm not telling my current MD.  He wouldn't like it, but I don't care:)  I am anxious to hear what the LLMD says, but not anxious to pay his fees!  Another ouch.

What do you guys think about the Doxy and the elbow issue?  Doxy to weak?  Elbow issue is from Lyme?

[Hope75]

I am on 200 mg 2x per day of doxy, I think.  I think it is PN, but they mentioned cubital tunnel syndrome for my elbows.  I think it's the opposite of tennis elbow (opposite side of elbow).  I go to my ortho doc tomorrow, so I'll know soon a bit more about the results of the study.  I think Lyme is at the root of this, too.  Stinks!

[patsy10]

How much doxy are you on?

Yes is does sound like PN.  It could be just carpal tunnel in both arms.  Did they mention that?  Even if it is carpal tunnel it can still be associated with lyme.

[JackieCalifornia]

Good to hear from you, sorry about the elbows.  I can't speak to any of that, unfortunately, but I'm sure others can.

Re mino vs doxy, it may just be that you're allergic to mino and not to doxy, so you're feeling better comparatively speaking.  Doxy is famous for being a Lyme drug, so I wouldn't think it's not working ... going to an LLMD sounds like a good thing.  September sounds so far away, and I know how it is waiting and waiting for appointments to roll around.  Been there, doing that.  

I never had Herxes as bad as my original symptoms of illness, so maybe you're lucky that way too -- dunno.

I do the dance between doctors too -- it is wrong, having to conceal things like that, but it's not our doing:  it's the way medicine is set up.  MDs are tooooo careful not to say what they think if it conflicts with another MD, when what they are all getting paid for is TO TELL ME WHAT THEY THINK!!!  How can I get a second opinion if mum's the word, you know?  I draw the line when it comes to telling drs what meds and supps I'm on -- they all have to know all of it.  

Hang in there --