Aa
STRANGE>>>>>
Ok,
I am very upset right now. I called the dr yesterday morning to see if they'd received my Igenex results yet. Finally the nurse called and left a message and said the dr has to review my results and that they'd call after that. Well today I called again this morning and left a message for someone to call me back. I waited at home all day waiting for the call. NOTHING. So I called again just about 15 mins ago and finally go in touch with the dr. She acted really weird! She was talking really fast and explaining to me how busy she was etc... and then real akwardly she said "your labs didn't reveal anything different than your first lab from Quest" She said I had the exact same reactive bands as I did on the Quest lab. She said the labs were identical. I'm sorry but I don't believe it!! First of all I know that Igenex results don't say "REACTIVE" and she stated that it said Reactive on the same exact bands. She acted really weird and wasn't answering my questions good. She said she had to do some researching and talk to some colleagues about it.... I think she is totally just throwing my Igenex results out the door and not considering them. I highly doubt that my Igenex were identical to Quest. Then she quickly changed the subject and told me to go with the plan to see Internal Medicine and started talking about me taking Ridalin for my fatigue.
When I got off the phone I was upset. I decided to call her back and tell her I will be there tomorrow to pick up a copy of the lab. She didn't answer.. so I left a message for her to call me back and that I would be there tomorrow for a copy. Of course she hasn't called me back.
So my hubby and I are going to go there tomorrow and demand copies of my lab. I don't think my dr is there tomorrow so I'll be really upset if they can't find the lab.
AM I over reacting to this or does this seem strange? Mabye she was telling me the truth about the IDENTICAL bands, but I just don't believe it. What do you think?
Thanks guys,
skarey
I am very upset right now. I called the dr yesterday morning to see if they'd received my Igenex results yet. Finally the nurse called and left a message and said the dr has to review my results and that they'd call after that. Well today I called again this morning and left a message for someone to call me back. I waited at home all day waiting for the call. NOTHING. So I called again just about 15 mins ago and finally go in touch with the dr. She acted really weird! She was talking really fast and explaining to me how busy she was etc... and then real akwardly she said "your labs didn't reveal anything different than your first lab from Quest" She said I had the exact same reactive bands as I did on the Quest lab. She said the labs were identical. I'm sorry but I don't believe it!! First of all I know that Igenex results don't say "REACTIVE" and she stated that it said Reactive on the same exact bands. She acted really weird and wasn't answering my questions good. She said she had to do some researching and talk to some colleagues about it.... I think she is totally just throwing my Igenex results out the door and not considering them. I highly doubt that my Igenex were identical to Quest. Then she quickly changed the subject and told me to go with the plan to see Internal Medicine and started talking about me taking Ridalin for my fatigue.
When I got off the phone I was upset. I decided to call her back and tell her I will be there tomorrow to pick up a copy of the lab. She didn't answer.. so I left a message for her to call me back and that I would be there tomorrow for a copy. Of course she hasn't called me back.
So my hubby and I are going to go there tomorrow and demand copies of my lab. I don't think my dr is there tomorrow so I'll be really upset if they can't find the lab.
AM I over reacting to this or does this seem strange? Mabye she was telling me the truth about the IDENTICAL bands, but I just don't believe it. What do you think?
Thanks guys,
skarey
I think you are right. I don't think she knows how to interpret the results. She probably does not know that a positive IgG or IgM can mean active lyme.
After giving it much thought last night, I think maybe my dr really just doesn't know how to interpret the results and was acting strange because she couldn't answer my questions. Either that or maybe she really hadn't even taken a good look at the lab yet. I don't know. Either way, it was wierd and I felt a very strange akwardness from her. I think she just doesn't know. Which I guess is expected from a non LLMD.
Maybe I should give her the benefit of the doubt. I called the receptionist at the clinic this morning and told her I was coming to pick up my lab results. She said that would be fine. I'm getting copies of all my labs including the Igenex.
I'll post later.
Thanks for your support! This forum group is awesome!
Maybe I should give her the benefit of the doubt. I called the receptionist at the clinic this morning and told her I was coming to pick up my lab results. She said that would be fine. I'm getting copies of all my labs including the Igenex.
I'll post later.
Thanks for your support! This forum group is awesome!
it sounds to me like this doctor is playing for time - that could be a good sign - consulting with her colleagues seems she wants help with 'reading' the Igenex results - main stream docs. do not have the knowledge needed to treat/diagnose/interpret test results accurately - I know nothing about the legal implications of her signing your test for Igenex - but the fact that my LLMD. has a degree in medical law - makes me think she could be feeling out of her depth with this, in some way.
In the mean time you are still in limbo - not for much longer I hope. I hope you manage to obtain your lab. results soon - wishing you some 'peace of mind' - gorbs x
In the mean time you are still in limbo - not for much longer I hope. I hope you manage to obtain your lab. results soon - wishing you some 'peace of mind' - gorbs x
I think that Quest and Labcorp do similar test reports, where Igenex tests a broader range of markers and gives more specific information than the other two labs, as Wonko describes above.
My labwork from quest and labcorp was identical. Go figure? One I was off abx and the other was on. Still identical. What does that mean?
I'm not upset at the fact that she said the tests were indentical. I'm upset cause I don't feel she is being honest with me. She said that the Igenex said "REACTIVE" to the same bands as Quest. I know that IgeneX uses different terms than "reactive" to interpret the results. That right there shows me she isn't be honest or clearly knows squat about interpreting the Igenex results. I just felt like she was beating around the bush about it and wasn't giving me any explanation for anything. Maybe she thought I just wouldn't notice and wouldn't give it a second thought. But little does she know that I've researched this disease and probably know more about it than she does... sad but true.
I also feel that for her to say she had to research it more and talk to colleagues with it, makes me think that there was something on it that raised a red flag.
I have looked for a LLMD but my options here in the UK are very limited. The good recommended one is no longer taking new patients. I think in the end I'll probably go back to the states to see a LLMD.
Hopefully tomorrow I'll be able to get a hand on my Igenex results. I'll keep you all posted!!
thanks for you help as always.
I also feel that for her to say she had to research it more and talk to colleagues with it, makes me think that there was something on it that raised a red flag.
I have looked for a LLMD but my options here in the UK are very limited. The good recommended one is no longer taking new patients. I think in the end I'll probably go back to the states to see a LLMD.
Hopefully tomorrow I'll be able to get a hand on my Igenex results. I'll keep you all posted!!
thanks for you help as always.
I didn't read this whole thread in detail, so sorry if I repeat what's been said or if I say something irrelevant.
Igenex is a good lab, but you need a good doctor to interpret the results. It sounds like you only have 1/2 of the equation.
Also, I'm not sure why you're upset about the agreement in the tests? Reproducibility is a good thing. Plus, since (I think?) Igenex tests for more bands, and also rates the bands differently (reporting IND and the 1-4 +'s, not just (non)reactive), I don't see how it's possible for the results to be exactly the same?
What I mean is, if the subset of bands testing by both labs show up positive, that's agreement and that is good and reassuring. However, Igenex also looked for other bands AND ranked the results in more detail, and in the hands of a good doc, that can help determine an appropriate course of action for you.
You will get somewhere, but you really have to take the wheel. And that's hard when you're sick and dealing with your illness. Don't give up and don't settle for no BS from the office. (The double negative is colloquial and is meant to express that if they give you attitude, don't back down, give it right back 'til you get what you want/need from them.)
I don't recall your status on looking for an LLMD or other doctor, but it sound like you don't trust your current doc so I hope you're on that trail. Also, have you tried any herbal anti-microbials, such as Samento (aka cat's claw)?
Take care.
Igenex is a good lab, but you need a good doctor to interpret the results. It sounds like you only have 1/2 of the equation.
Also, I'm not sure why you're upset about the agreement in the tests? Reproducibility is a good thing. Plus, since (I think?) Igenex tests for more bands, and also rates the bands differently (reporting IND and the 1-4 +'s, not just (non)reactive), I don't see how it's possible for the results to be exactly the same?
What I mean is, if the subset of bands testing by both labs show up positive, that's agreement and that is good and reassuring. However, Igenex also looked for other bands AND ranked the results in more detail, and in the hands of a good doc, that can help determine an appropriate course of action for you.
You will get somewhere, but you really have to take the wheel. And that's hard when you're sick and dealing with your illness. Don't give up and don't settle for no BS from the office. (The double negative is colloquial and is meant to express that if they give you attitude, don't back down, give it right back 'til you get what you want/need from them.)
I don't recall your status on looking for an LLMD or other doctor, but it sound like you don't trust your current doc so I hope you're on that trail. Also, have you tried any herbal anti-microbials, such as Samento (aka cat's claw)?
Take care.
Thanks everyone. I'm trying to be patient with this whole thing, but I'm sick of feeling like **** and not getting anywhere with the dr's here. The medical is so SLOW, and the military med is just not that great.
I just feel like today she was beating around the bush and not letting loose much info on the test. Maybe it's cause she just doesn't know much about it. Maybe she doesn't know how to interpret it. Igenex doesn't say "reactive" and "nonreactive" does it? Cause she said the test said Reactive on the exact same bands as Quest.
Has anyone here had IDENTICAL lab results from Quest/Labcorp as Igenex? I just find it very strange.
What if I go there tomorrow and they can't find the lab? They have a rep for being horribly unorganized and my dr doesn't work tomorrow. I really don't want to wait till Monday to get answers.
Hmmm..... I just don't know anymore.... I'm SO FRUSTRATED!!!!! I just have that GUT feeling that this is lyme and I'm not getting anywhere!!!
Thanks as always.
I just feel like today she was beating around the bush and not letting loose much info on the test. Maybe it's cause she just doesn't know much about it. Maybe she doesn't know how to interpret it. Igenex doesn't say "reactive" and "nonreactive" does it? Cause she said the test said Reactive on the exact same bands as Quest.
Has anyone here had IDENTICAL lab results from Quest/Labcorp as Igenex? I just find it very strange.
What if I go there tomorrow and they can't find the lab? They have a rep for being horribly unorganized and my dr doesn't work tomorrow. I really don't want to wait till Monday to get answers.
Hmmm..... I just don't know anymore.... I'm SO FRUSTRATED!!!!! I just have that GUT feeling that this is lyme and I'm not getting anywhere!!!
Thanks as always.
I think you've been very very patient.
I also agree with the posts above to go in, be matter of fact, just get the copies and leave.
Maybe your dr got her knuckles rapped for even following up on this avenue of investigation, and she's running scared: who knows.
Just try not to take it personally (though it is of course *intensely* personal to you), quietly get the copies, and then figure out the next step. Let us know how it goes.
Hang in there -- this is progress, getting Igenex tests!
I also agree with the posts above to go in, be matter of fact, just get the copies and leave.
Maybe your dr got her knuckles rapped for even following up on this avenue of investigation, and she's running scared: who knows.
Just try not to take it personally (though it is of course *intensely* personal to you), quietly get the copies, and then figure out the next step. Let us know how it goes.
Hang in there -- this is progress, getting Igenex tests!
Hi, I wonder what it is she needs to "discuss" with colleges if it's just the same as the other tests? Hmmm.....
When you go in tomorrow, my advice to you is be very calm and matter of fact. Just walk in and say "I'm here to pick up copies of my Quest and Igenex labs. Thanks, I'll wait." Don't get into any discussions with office staff.
Good luck. I know you have been waiting a really long time. Amy
When you go in tomorrow, my advice to you is be very calm and matter of fact. Just walk in and say "I'm here to pick up copies of my Quest and Igenex labs. Thanks, I'll wait." Don't get into any discussions with office staff.
Good luck. I know you have been waiting a really long time. Amy
I would get a copy of both of your labs. Legally, they have to give them to you.
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