and got a number of promising leads, including mention of some Lyme specialists' names, which is unusual, since they often don't want to 'outed' to docs who take a more restrictive view of Lyme diagnosis and treatment.
There is a Michigan Lyme disease association at mlda [dot] org, and a post says they are also on Facebook. That would be a good place to start, but also do your own searches online to see what else is out there, if you have the energy and focus to do it.
We don't post LLMDs' names here, to avoid getting them in trouble with the state and local medical boards, but you may receive some 'private messages' (PMs) through this website from anyone here who has some recommendations or leads.
I would be sure to keep my own set of hardcopy test results for anything related to Lyme, because it's not uncommon to change docs during treatment, and having those old tests is a gold mine of information to a doc who knows how to read them.
Best wishes -- a diagnosis is the first step to getting better. Keep us posted!
and PS, inside that MLDA site is a page of local groups organized geographically, so that may have some good leads in your area.
Also, if you email to
contact [at] ILADS [dot] org
and tell them your city and state, they may be able to send you names of LLMDs near you. ILADS (Intl Lyme and Associated Diseases Society) is the main voluntary group for LLMDs who 'believe' in Lyme and understand it.
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