Sorry...

I just wanted to apologize for posting so often.  It has been brought to my attention that  I am being unfair and posting too much in the MS forum.  I'm clearly a little upset at this, as I have not meant to annoy anyone or steal the attention.  I am simply sick and trying to get answers.  I live far away from any support system I have and I find the forum to be SOOOO helpful and the people to be so kind.  I am not the kind of person who is loud, and demanding.  I am actually quite the opposite.  I am so sorry if anyone has thought negatively towards me.  I have two children to care for and they are my life.  I get so sad and frustrated that I can't care for them or be there for them like I should because I feel so terrible.  This makes me push even harder to get answers and play my role in MY HEALTH.  

Anyways I just wanted to say thanks to those who have been so full heartily helpful and caring.  I appreciate everyone, and I'm sorry if I've caused problems.
  
Take care,
  SKarey

[gorbybelle]

there is no need for apologies - not on the 'lyme disease' forum anyhow.

you can post AS OFTEN as you  feel the need to - after all no-one is forced to read or answer a 'post'

I find it 'pathetic' and extremely uncaring - for anyone to accuse you of being unfair or trying to steal attention - what the heck are these 'forums' for if not to help each other?

I am soooo angry - that someone felt the need to make you feel the need to apologise-it's the 'accussor' who should be apologising.

Take care karey - x  HUGS

[wonko]

I'm not aware of any rules/limits on posting.  I post and/or reply really often, and no one's addressed this as a problem.

Most of the forums on MedHelp, such as this one, are patient communities.  Even if members here have medical training, they are here unofficially on their own time.  There are some expert forums, but the forums are labeled as such and the experts have a caduceus after their user name.  

So we are just other patients trying to offer advice, support, ideas, etc.  As such, you may not always find the perfect answer, and people can only do so much through the posts.  I like to respond to posts if I think I have a relevant experience.  Even if it doesn't always help, I find it therapeutic!  

To get the most out of the forums, keep in mind that there are features here, like "search this community" and the "Health Pages" that we can all use to review themes and topics about Lyme, and to look for old posts.  There are also videos that MedHelp added just recently.  

I've benefited a lot from the information here and the people who share it.  I know in my case I would still be undiagnosed and terrified had others not taken the time to share their experiences and offer advice through this confusing and challenging time.

[skarey]

I appreciate your feedback.  I think I mainly just have my feelings hurt a bit as I wasn't intentionally trying to steal the attention.  Everyone has always been so helful here and I can appreciate that very much.  I don't only use this forum as a medical help, I also find it nice to find friends that are going through the same thing.   I too have benefited so much from all the info people have shared.  You guys are awesome!!

[margypops]

Sorry skarey it has surprised me anyone would say that I dont mind answering at any time I doubt very much there are any rules, do not let it deter you I will answer every time dont let any bullying intimidate you.I need the feed back, sounds like a control thing to me please take no notice and you have nothing to apologise for,,I have been comparing your symptoms with mine ,please continue..

[patsy10]

No need to apologize.  As stated above if someone does not want to answer a post then they can just skip it or choose not to reply.  

There is also some good information in the health pages here and on the FMS/CFS forum.  

[JackieCalifornia]

Hey, no worries!  We're here for each other.

This is the one place I can come where I know people will understand what I am going through.  If someone doesn't want to read/answer a posting, then they don't have to!  

Hang in there.  And about your kids, no matter how little you feel you are giving them, all that really matters is that they know you love them -- regardless of how much or little energy you have to be supermom.  Destress, and you'll do better for them and for yourself.  You can only do what you can do, and stressing over it just uses up precious energy.  Trust me, I'm learning this myself too.  Be Kind To Yourself.

[margypops]

there you go skarey good positive in put for you,

[wonko]

I've posted in many forums on MedHelp, including the MS forum, and overall think the MedHelp site is wonderful and full of helpful members, informative content, and general support.

I wasn't involved in this incident, but I wouldn't jump to the conclusion that there were any motives to hurt feelings.  

skarey, maybe you should respond to the person who contacted you.  Let them know what you told us, that you didn't mean to be unfair, and see if they have any advice about how you can still post and be part of that community?  It is so very easy to lose the true intention of a message.  I understand why your feelings are hurt, but I doubt that was the intention.  It sounds like you appreciated the support over there, so situation at least deserves clarfication.

Of course, let us know what we can do, too!

Take care.

[skarey]

I did write that person a message back a very nice letter and apologized. Have not heard back and am sure I won't.

For the reference I DID always clarify on how much  I appreciated everyone and I was always respectful and kind. I even  apolgized for posting so often and everyone always replied friendly and that it was what the forum was for... If I would've known I was "grabbing the attention"  I would've stopped.  I never once was rude, or anything of that nature.  

But the letter I received said that I needed a reality check  and that and that my "anxiety is dominating the forum and that it's unfair and unpleasant to others."  Also was said "I have come to believe that your anxiety and fixation upon MS is producing some of your symptoms."  First of all I don't have a "fixation" on MS.  Am I scared of maybe having it.. YES, but I'm just trying to get answers just like anyone.  And NO my anxiety is not causing my sx.  I do realize that anxiety can cause neuro sx, BUT I had no anxiety or fears until I became sick.  It is being sick and not feeling well that causes me to worry.

I don't know if there were motives to hurt my feelings or not....but it did.

Whatever... I'm past it now... life goes on and I'm not going to let anyone put a damper on my search. (although I'm sure I won't be posting there anymore :) )  
  Anywho.... LIFE GOES ON...

Have a fabulous night!  And thanks for being good listeners!
  I

[Hope75]

Post on Skarey, this is not MySpace, this is MedHelp.  It's not a social community, it's a medical community.  You have the right to post just as they do.  It is a tight nit community over there and I have been scolded a long time ago, but the person apologized immediately.  Do not let anyone get in the way of taking care of yourself.  

The bully can kiss your hiney:)

[mrs_k75]

I'm new here and I am glad to have been here so far. I don't all the edicate here either, but everyone is really nice about posting. Skarey, it's actually a relief to have met you. You like me had a baby recently and we have a lot of similar health problems and I know doctors don't take us seriously. That's why were here asking questions and we have every right to considering what we've been through.

[ginak]

I feel the same way that you feel. I too have had my feelings hurt on a forum. As a matter of fact, it was this forum. Many times things come across very differently on the computer. I know how you feel because I am not certain of my clinical lyme dx and I often wonder if I too could have something else. Emotions can run very high on the forums, but it does not give anyone the right to be rude. I hope you get to feeling better soon. You are not alone.

[CareBayer]

I'm in the same boat as you are too. I often come to the forums to read and see if anyone is going through what I am in my efforts to get the help I need. I dont mean any harm to anyone. Just looking for some answers just like yourself and many who come here too.

[SOONERMOM]

I'm sorry someone felt the need to "attack" you while you are feeling your worst.  I don't think that is the intention of these forums, to say the least!