Just posting this as it may help someone else...
I was recently rear ended by a truck. I have 6 dislocated discs and brain swelling. Everyone from the hospital to the orthopedic doctor was trying to push steroids on me. I had a very bad reaction to steroids while having Lyme and refused to take them. Of course everyone thought I was nuts.
Nothing is a real emergency, just super painful, so my LLMD agreed with me not to take them. If there had been an emergency, I would have taken them if I was closely monitored by a doctor.
Just saying, don't think you must follow non Lyme literate docs in certain situations. We are not nuts!