This forum is for questions and support regarding What Causes Lyme Disease, Diagnosing Lyme Disease, and Joint Pain. Topics for discussion also include Living with Lyme Disease, Babesia, Bartonella, Rocky Mountain Spotted Fever, Anaplasmosis, other Tick Borne Diseases, Nervous System issues, Prevention, Risk Factors, Skin Disorders, Symptoms and Treatments
Good to hear you're feeling better. We all go up and down, and usually when we least expect it. :)
I put myself on a yeast-free, sugar-free and grains-free diet 3 months ago -- I got a yeast infection that was giving me serious bloating and brain fog. It just seemed like Lyme, but it was yeast. It was a little hard the first couple of days, but I've adjusted to it very well.
My LLMD does not take insurance, but my insurance includes prescription coverage regardless. It probably varies plan to plan, mine covers Rx's regardless of what doctor wrote them.
My most expensive abx so far has been Factive, at over $10/pill. I spend ~$50/month on supplements. Phone consults with my LLMD are not that bad, but office visits, esp. if they run any tests, can be a hit.
For me, the biggest financial burden comes from the fact that I reduced my work schedule down to part-time due to health, for (so far) all of 2009. So a lot of lost income. I'm too sick/tired to work one full job, let alone get another! But I suppose we all do what we need to do. Thankfully, I get by.
I never did IV and don't know much about the cost of that, but it can be very high if not covered by insurance.
A lot of Lyme patients struggle with this aspect of treatment. It's frustrating and I don't think there is a single answer that can work for all.
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