Aa
Treatment
Today was a different day...I woke up and my feet hurt so bad..in the arch. I had more burning sensations...more twitching in feet and some random leg twitching...I keep hearing Bart is tough to get rid off...I also heard that these are signs of die off. I am on abs and herb stuff...anyone experience these symptoms?
Sounds like your on the right track. I am alo taking herbs, I get herx from that...but seems to slowly work. Today was first day of new meds. I typ a lot and at work my index finger was involuntary moving twitching back and forth...doc says not to worry. I guess Bart is a Nero toxin..so as it dies off it will go with a fight. I just pray this abx. Works...I know I will be healed..but man it puts you through some wired stuff.
my herbals are through Monastery of Herbs, I get them through my herbalist. They have a website but only someone with a Drs credentials can order through them. I get tested by electrodermal screening and the herb kits are ordered depending on what was found through that screening. The only thing I can suggest is you tell your doctor to go to the website.
About your herbal treatment taken for bartonella, is there a book or website that was useful to you in understanding and pursuing herbal treatment?
It would be of great interest to those of us here. Thanks!
It would be of great interest to those of us here. Thanks!
I am so glad herbals have been helpful for you! I have been amazed at how beneficial some can be.
I just finished a completely herbal treatment for bartonella. Same symptoms as yourself. The way I described it was my feet felt like they had been chopped off at the ankle and I was walking on my bare ankles. It was very painful. My doctor and my herbalist work together and have been a life saver for me. Back in 2006 I went on IV with an LLMD, in my 6th week of IV, I suffered a complete brain stroke. Was hospitalized for 6 weeks. Was released still symptomatic. This is why I went completely herbal and for me it has worked.
I had some tingling before the Levaquin. I don't think it caused me any new tingling. I was warned to pay attention to any burning, tearing feeling, or pain in my tendons. I really felt the anxiety decline, so I was glad I could be on it for as long as I did. Mydoc said the Biaxin/Plaquenil should finish it off.
I am on the same abx, levaquin, for 10 days now and feel ok so far and I have a lot of issues with meds but so far so good. I have Barts and that is supposed to be good for the treatment of that and Lyme.
Good luck
Good luck
Thanks for sharing...sounds like you ave a good doc....the levofoloxacin states to stop or call doc if you have tingling or burning..muscle issues etc. I already have all that...and doc knows it...but wondering if you had these symptoms before ou took it and if it eliminated them or made them worse. I am supposed to start today...I want to kick this in the butt...but tend to get nervouse with new meds. Just checking others reactions.
I took Rifampin for about 11 weeks, but I thought it was contributing to my chronic stomach pain. So I switched to Avelox and my stomach pain declined. A couple weeks into that, I had a painful cramp in my left achilles heel. I had surgery on my heels as a teenager, so my achilles tendons have some scar tissue. My PA said that makes them even more likely to be infected as Lyme likes to live in scar tissue.
After the cramp, I switched to Levaquin (levofloxacin). I took it with no problem for about 12 weeks, and just a couple days before an appointment, I felt some kind of rythmic 'ticking' in my left achilles heel. Hard to describe. The day before the appointment, I got a hard cramp in it. So the next day, my doc said to stop and he put me on Biaxin and Plaquenil, which he said would work on both Lyme and Bartonella. No basketball or tennis or racquetball for me until a few months after the Levaquin has worn off. ;)
I had to hold off on the Biaxin until I took 10 days of Diflucan for my yeast problem. Then, I took Biaxin for a few days (and felt crummy) and then the yeast problems came back. So, I'm off Biaxin until the 2nd round of Diflucan is done (10 days). I am not looking forward to going back on the Biaxin as that will happen at the same time I cycle back on to the Tindamax. I will probably need to write off several days until I acclimate to these two drugs again. Both have been very effective for me in that I can feel the die off when my ribs twinge and hurt and I get brain fog and a heavy head.
My doc said that the yeast like to feed on the dead bacteria, so I could continue to have a yeast problem with the new meds even after cutting out most sugar from my diet.
After the cramp, I switched to Levaquin (levofloxacin). I took it with no problem for about 12 weeks, and just a couple days before an appointment, I felt some kind of rythmic 'ticking' in my left achilles heel. Hard to describe. The day before the appointment, I got a hard cramp in it. So the next day, my doc said to stop and he put me on Biaxin and Plaquenil, which he said would work on both Lyme and Bartonella. No basketball or tennis or racquetball for me until a few months after the Levaquin has worn off. ;)
I had to hold off on the Biaxin until I took 10 days of Diflucan for my yeast problem. Then, I took Biaxin for a few days (and felt crummy) and then the yeast problems came back. So, I'm off Biaxin until the 2nd round of Diflucan is done (10 days). I am not looking forward to going back on the Biaxin as that will happen at the same time I cycle back on to the Tindamax. I will probably need to write off several days until I acclimate to these two drugs again. Both have been very effective for me in that I can feel the die off when my ribs twinge and hurt and I get brain fog and a heavy head.
My doc said that the yeast like to feed on the dead bacteria, so I could continue to have a yeast problem with the new meds even after cutting out most sugar from my diet.
How long have you been treating? Doc just changed my ab. To levofoloxacin. Bit nervouse about it...you mentioned you were on it...how is that?
I can relate! I naively thought I would get progressively better, that once a symptom was gone for a week or so it wouldn't come back, and that I wouldn't get anything new. Hah! It has been like that big, undulating slide at the carnivals when I was a kid. Up and down, but an overall decrease in symptoms/illness.
I had only 5 days of tingling in my right leg, right arm, back of my right hand, and embarrasingly, my privates. That was last Sep/Oct, two months before my diagnosis. Then I started tingling again a month or so into treatment. That was annoying. It came back in both legs, then lingered in the left. I have started twitching again on occasion. I have to almost laugh when my left glute starts twitching (can't laugh when it happens in the MRI!).
I am frustrated by lack of energy and motivation to do much of anything. I had hoped that would be better than it is by now. Oh, ueah, and I have random bouts of "excessive warmth" which seems to show that my hormonal balance is still in flux. I have to keep reminding myself of the many symptoms that are improved or gone. I am not known for my patience. ;)
I had only 5 days of tingling in my right leg, right arm, back of my right hand, and embarrasingly, my privates. That was last Sep/Oct, two months before my diagnosis. Then I started tingling again a month or so into treatment. That was annoying. It came back in both legs, then lingered in the left. I have started twitching again on occasion. I have to almost laugh when my left glute starts twitching (can't laugh when it happens in the MRI!).
I am frustrated by lack of energy and motivation to do much of anything. I had hoped that would be better than it is by now. Oh, ueah, and I have random bouts of "excessive warmth" which seems to show that my hormonal balance is still in flux. I have to keep reminding myself of the many symptoms that are improved or gone. I am not known for my patience. ;)
Checking in....seeing how everyone is progressing...for me I now have red spots on my shins.new thing no where else, ..seeing doc tomorrow.still tingling and twitching...my red blood cells are a bit big.meaning my folic acid and b12 are low....I am working on getting that under control. Stil burning in the feet and in the head...anxiety seams more under control..still flairs up when I get accessive twitching in feet...ugh this is crazy. I pray a lot and have hope that in a few months I will feel better. Checking in on others progression
Bart is definitely a big part of my substantial GI issues and anxiety. My doc did say Bart could be contributing to the shortness of breath, but I believe it is connected. Bart somehow helps Lyme to better penetrate nerves in the brain. My gut has not been functioning well for 8-9 months, and I have had insufficient breathing even longer. Both are controlled by the 10th cranial nerve, known as the vagus nerve. I am convinced both Bart and Lyme have infected my 10th nerve, causing many of my worst symptoms.
Yeah your right....I started to feel better yesterday...very min symptoms...then whammy all back next day. I had acupuncture that helped with anxiety and some nerve stuff...3rd day of it...well see. If we stay positive...we can beat this..the body is amazing!! It seems Bart can mimic lots of or cause lots of additional symptoms...your shortness of breath could be one...what does your doc say.
Thanks for sharing again your experiences. Yes I am on 1000mg of b12 lots of frolic acid,mag,cal,vitamin c and more...I am type a personality...so patience is tough for me...I used to run a lot but it only agravates it more....now I have min. Exercise. I am positive that I will have better days...it helps to share and talk. I pray your on your way to better days to!!!
Sorry you're having a bad day. Unfortunately it's part of the process. What drives me crazy is when a symptom seems to be gone comes back.
There is a lot of genetic variability in Bartonella, so there is a lot of variability in presentation and treatment. I have definitely had the twitching and anxiety, which magnesium alleviates. I also have the intensified neuro and GI symptoms of Lyme because of the Bart. I have had persistent shortness of breath and air hunger as a primary symptom, and because it's not that common with Lyme, I am womdering if Bart is causing or contributing to it.
It is a good thing I tested positive for Bartonella, as my Bart symptoms could all have been attributed to Lyme.
I have been on Rifampin, then Avelox briefly, then Levaquin for my Bart. I see my LLMD tomorrow and I will ask him how much longer he thinks I will need to be on abx for it. It has been 5 months so far.
There is a lot of genetic variability in Bartonella, so there is a lot of variability in presentation and treatment. I have definitely had the twitching and anxiety, which magnesium alleviates. I also have the intensified neuro and GI symptoms of Lyme because of the Bart. I have had persistent shortness of breath and air hunger as a primary symptom, and because it's not that common with Lyme, I am womdering if Bart is causing or contributing to it.
It is a good thing I tested positive for Bartonella, as my Bart symptoms could all have been attributed to Lyme.
I have been on Rifampin, then Avelox briefly, then Levaquin for my Bart. I see my LLMD tomorrow and I will ask him how much longer he thinks I will need to be on abx for it. It has been 5 months so far.
I just found out I have barts and yes those are familiar along with a bunch of other neurological symptoms. I just went to my LLMD yesterday and we changed my antibiotics since I am now positive for Barts.
They could be herxing signs if they started along with your start of abx. My LLMD switched me from doxy to levaquin , I take a lot of supplements and herbs and I am looking forward to feeling better. Good luck.
They could be herxing signs if they started along with your start of abx. My LLMD switched me from doxy to levaquin , I take a lot of supplements and herbs and I am looking forward to feeling better. Good luck.
Yes, that all sounds horribly familiar.
I used to keep falling down stairs because my legs would suddenly do the wild fandango all by themselves. More than burning, my feet more often feel as if I have put several marbles inside each shoe and I'm trying to walk around on them.
My experience was that antibiotics get the symptoms (at least the horrible ones) of bart under control fairly quickly - a couple of months for me - but actually eradicating the infection takes ages. I have read that that is fairly typical. So at least be encouraged that your quality of life ought to improve before too long.
Are you taking magnesium and vitamin B12? Those help a lot with symptom relief. Bart attacks your nerves and you need those to repair them.
I used to keep falling down stairs because my legs would suddenly do the wild fandango all by themselves. More than burning, my feet more often feel as if I have put several marbles inside each shoe and I'm trying to walk around on them.
My experience was that antibiotics get the symptoms (at least the horrible ones) of bart under control fairly quickly - a couple of months for me - but actually eradicating the infection takes ages. I have read that that is fairly typical. So at least be encouraged that your quality of life ought to improve before too long.
Are you taking magnesium and vitamin B12? Those help a lot with symptom relief. Bart attacks your nerves and you need those to repair them.
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