Update from me regarding my Lyme being healed

[EricaO]

Hey guys! Just stopping in to let you all its official I am FOR SURE Lyme free. I did the labwork after 8 weeks off meds and my tests came back NEGATIVE! Not even equivocal!!!! This is HUGE for me because I am one that has always had a POSITIVE reading so I know that I am trully healed!

There were times that I thought I was going to die and even wanted to during treatment but I am so thankful that I kept pushing through it because I have my life back after so many years!

The moodiness is still here but I just tell my hubby that it is just a longterm thing from my Lyme. ;) Hehe.

How is everybody else? Anyone else out there been healed yet?

Love to you all!
Erica

[Chatterbox58]

Yes congrats are in order, and hope the baby making works out very soon for you.  I was diagnosed in 2007, two years ago this October.  I was treated for 30 days and felt much better, however some days I think I am not cured...lol  Again congrats!!!

[gorbybelle]

THANK YOU - for taking the time to give us all those details.

' Wishing you all you wish for yourself '

Gorbs xx

[B_G]

Hello Erica,

I'm extremely happy to hear you've healed from lyme, i've had the disease for several years myself now and i feel it's only getting worse. I was on antibiotics for 3 months earlier this year, and felt better after the treatment, but it came back, i'm only 17 years old, and i live in Norway, Europe. I think you're the first person i've heard of thats gotten totally rid of the disease, and this motivates me, i've copied the list of medications you took and i'm going to contact my doctor first thing in the morning, things like this really gives me hope.
Can't even imagine a life without joint pains and loss of stamina.

Thanks again.

Have a great life and remember to enjoy every second of it!

Nick

[Hope75]

THANKS SO MUCH FOR POSTING YOUR COURSE OF TREATMENT!

Congrats congrats congrats!  How awesome!  I am truly happy to hear that somebody has experienced relief from this.  It is very generous of you to post all of this info. and to keep us updated.  It could be easy to get better, feel better, and consequently not visit this site and give us the news and helpful info, since we are not people you have met face to face.  I know that when I feel good, I don't visit as much.  But, I also want to hear how others are doing, so I will always want to update with news, good or bad.  

You go girl!  Keep us in your thoughts and keep posting:)

[EricaO]

Hey there! I actually developed overactive thyroid in 2001. It was so overactive that I devolped multiple marble sized nodules. They were concerned that I possibly had thyroid cancer so they administered a radioactive iodine treatment that had the possible side effect of completely destroying my thyroid that would leave me medication dependent. So, it destroyed the nodules and my thyroid and now I am on synthroid.

I did hear from the Dr. that the thyroid can be affected by the Lyme but with my particular case it was a seperate issue. :)

[patsy10]

I find your story very encouraging.  Thanks for continuing to share this with everyone.

[margypops]

Are you hypothyroid aswell and  which was diagnosed first, someone just told me that if I had Lyme I may have Low thyroid also ,I was going to have a thyroid test and a Lyme but am convinced its Lyme, Your story is very encouraging as I have been trying to go it alone with supplements,

[JackieCalifornia]

Thank you so much for the data!  I know you know how important it can be to have this kind of information.

Happy baby-making!  ;)

[EricaO]

I hope this helps. Let me know if you need anything else. Make sure that you keep your body active even if its just lifting 1 pound weights. Also STAY positive and surrond yourself with positive people. DO NOT let family and friends feel sorry for you that doesn't help anyone or anything.

I know you all can beat this!

Now its time for hubby and I to try for a baby! Yea!

[EricaO]

Here is the list of my treatment plan that I was on.

This was the initial treatment plan, as you read below some changes were made as I progressed.

I am on lots of supplements

Acidophilus- 10 billion units daily (2 pills with abx)
SamE- 400 mg (1 pill)
coq10- 300mg (3 pills)
juice plus- 6 pills daily (2 vineyard blend, 2 orchard blend, 2 garden blend daily)
magnesium- 168 mg (2 pills)
b12- 3000 mcg (3 disolvable tabs)
vitamin c- 1500 mg (3 chewable wafers)
multi-vitamin (1 pill)
Acetyl-L Carnitine 1500mg (3 pills)

I am taking 1000mg ceftin daily
I am also taking 400mg Doxy daily
100mcg cytomel (low t3 levels)
150mcg synthroid (hypothyroidism)
Sprintec (birth control)

Email me with other questions, as some of these have to be taken together and some have to be taken on an empty stomach.
_______________________________________________________________________
May 09, 2009 07:08PM
Follow up at the Lyme Dr……
Okay guys! I have some amazing news!!! The Dr. is astonished by my progressive healing. I have been on aggressive treatment for a little over 90 days and I feel like my old self again. He said that is is pretty amazing that since I am obviously a Chronic Lymie...I have been suffering since 2001 that I am progressing so well.

The Ceftin is out the door and I am now officially a Flagyl taker as of tomorrow. He has me taking 250mg once a day for 2 weeks and then increasing to 250mg twice a day for two weeks, then none for two weeks, and then 250mg twice a day for two weeks and then off for two weeks.

We discussed the herxing, and he said it is possible but not certain as everyone is different. I have bloodwork in 30 days and a follow up appt in 8 weeks (March 31, 2008) in the grand scheme of things that really isn't that long!

He did add a weekly dose of diflucan...which is for yeast infections which luckily I have yet to experience any with this treatment plan but he wants me to take a weekly pill just as a precautionary.

Thank you guys so much for your prayers and encouragement. I, like some of my family was very skeptical of joining a group for fear that the negativity and woes me attititude would be very high but I have to praise ALL of us for keeping a positive can do attitude.

Guys you can and will heal from this! Keep your head up...because one bad day can bring you years of good ones!!!!

[EricaO]

Here is the first post I ever posted.

I was diagnosed wih Lyme disease for the first time in 2002. I had the bulls eye rash on my left hand and was sent to a Dermatologist by my general Dr. The Dermatologist misdiagnosed the rash as...well just that a rash and gave me some ointment which of course did not fix the problem.

I was admitted in and out of the hospital with chest pain, vomitting, random black outs and a high grade fever. In the state of Texas after so many visits to the hospital the state requires several tests, HIV, Lyme, and a multitude of other tests and THAT is how I was finally diagnosed with Lyme disease, and started treatment. I had Lyme disease along with the co-infections epstein bar virus and parvovirus. The parvovirus caused the fever, vomitting, black outs etc. I actually developed hepititus due to all of the medications while I was in in the hospital...the meds were causing liver problems. It was a very scary time for me and my family. I followed up with 4 weeks of oral antibiotics and was told by the IDD (infectious disease doctor) that I was completely well, and I would never have an issue again......

YEAR 2008

For many years I have been having signs of Lyme disease but I also had a thyroid that was functioning by synthroid so whenever I felt lethargic or had Lyme disease symptoms I was always tested for my TSH levels, and of course they would come back fine...NO ONE thought to test me again for my LYME!!!

July 2008.

I was rushed to the ER with numbing and tingling pain all on my left hand and arm. I was terrified and convinced that I was either a. having a stroke or b. having a heart attack...Neither of these were likely being that I was 26 years old. The ER Doc sent me to a spinal surgeon thinking I must have a pinched nerve in my back and HE is the one that saw the history of Lyme and said I needed to be tested again, it was possible it was back....Now I was really confused and decided to research it and the CDC said the chances of having a relapse or second occurance were 20% so not very likely. Well, I did come back positive and decided to go see the IDD that treated me before. Not only did she not remember me but she didnt keep any of my records and MY AUNT was a nurse for her!!!! She said we needed to skip all the oral antibiotics and go straight to the IV meds. This was a conflict of interest in my opinion being that she just opened a new state of the art IV infusion facility....I of course declined and she offered to put me on 6 weeks of doxy 200mg a day...after 6 weeks I tested again and came back clear.

After I got married in Sept, I knew it was back I could feel it...I was tested and guess what! Positive again for the third time!!!!

This time not only was I positive but I also had a co-infection of Rocky Mountain Spotted Fever. I was just terrified at this point and I decided once and for all I was going to get a Dr that knew what he was doing this had to end!!!

*************** is the place that I found my Dr in the DFW/Texas area but they are a HUGE resource for Drs. nationwide, plus it is nice to talk to people that understand what you are going through.

Anyway, I am on aggressive antibiotics...400mg of Doxy daily and 1000mg of Ceftin daily along with 14 supplements. I take 35 pills a day. This was VERY difficult for me to swallow....ha. I have never been one to pop pills and prefer natural remedies as opposed to drugging myself but I have been on treatment for almost 60 days and the changes are AMAZING.

Tonight is not the best because I am suffering joint pain....I mostly have it in my knees and calves and ankles, and I relate the pain to growing pains, when you are a kid and you are growing you just have that sore, achey pain that is so deep you cant use heat or anything to get it to diminish.

Well, I hope this helps anyone that had any questions. I just joined the site so please feel free to ask questions or post about you and your treatment I would love to learn about others!!!

God Bless.

[PlateletGal]

Congratulations on your success !

[skarey]

YaY!!   A success story!!  It's always good and encouraging to hear these.  I am so happy for you.  

And I ditto what Jackie said could you summarize your dx etc...It would be helpful for us who are new here and looking for answers.

congrats.

[JackieCalifornia]

Sincere congratulations!  It is always good to hear such good news.

Would you post back summarizing your diagnosis (Lyme only, or coinfections also) and the treatment approach (pulsed or constant meds, which meds), and how long the treatment lasted?  

There is such variability in approaches that I always find it interesting to hear what has worked.

BRAVO!!!