Update on me...

[carrie235]

Hi Everyone:

I haven't updated on me in quite a while.  My LLMD changed my meds to Rifampin and Zithromax in late September.  he did this because my co-infection of Erlichosis did not appear to be improving on my last blood draw.

I have been herxing like crazy on these meds and basically feeling like doo doo most of the time.  This last week though, I had about five days where I felt FANTASTIC!!!  Like my old self.  I sure was dissapointed though to awaken the next morning to crazy all-over twitching, soreness and pain in every muscle and joint, major fatigue, you name it.  That happened for about two days.  This morning though, I woke up feeling much better.  

Anyway, I 'm trying to get back on track with using my far infrared sauna.  This also causes me to herx though.  I have not been using my Rife machine since starting the new meds because I cannot handle a rife herx on top of a medicinal herx.  I would say that I'm herxing more often than not herxing on these new meds.  They must be really powerful!

Anyway,  I see my LLMD again on Dec 14th.  I just got my Igenex lab work done for follow-up a few weeks ago.  I'm very excited to see the results and see if I'm improving.

I'll update after that.

Hope everyone is doing really well!

Carrie

[drsdonthelp]

Hi Carrie,
Thanks for your update!! I have been looking for personal experiences with herxing because of the meds that I am on now. In the first month of treatment I was on Doxy. I had fatigue, twitchy muscles, back of leg pain near the knee and calf, everynight around 5 I started to have flu like symptoms of body aches, and body temp. felt hot / with chills but my temp. was 97.1. I am now on flagyl and zithromax for 30 days, so far, fatigue like crazy, some hip joint pain and irritability...

I have Graves disease too,, and having the thyroid messing around with you at  the same time is the "little Critters" makes for a fun ride. LOL

Hope you are doing well now!!

Take Care, Pam

[JackieCalifornia]

Good to hear you are plowing along --

fwiw, when I was crawling out of the hole Lyme had put me in, I went on thyroid meds, thinking I would need them forever ... my mother was on them most of her adult life, so I figured it runs in families, oh well, carry on.

Then a few months ago, after maybe 1 or 2 years on the thyroid meds, I started getting really amped up, thought it was just Life Anxiety, dealing with the economy and work and so on, to the point that I couldn't sleep sometimes (VERY unusual for me).  I was terribly jittery, couldn't concentrate, and it was interfering with work.  I was also dropping weight like crazy, and then the skin started peeling off my fingers, which were reddish.  I also was having trouble sleeping, which just doesn't happen to me ever.

Well........ the only different thing I had been doing lately was eating sardines often, like every day for a few weeks.  Because I'm on a largely vegetable/fruit/grains diet, I figured there are good things the lil fishes could bring, and I like the salty taste.  

So when I got the jitters and realized I was a mess, I did some digging around on the 'net, and realized I may have been iodine-deficient, but with steady intake of sardines AND thyroid meds, I was doubling up.  So maybe I wasn't thyroid deficient, but instead was IODINE deficient, which thyroid needs to do its job.  

I don't understand the chemistry behind it, but I took myself off the thyroid meds, cut back on the sardines to a few times a week, and started taking iodine supplements in the form of drops I got in the vitamin section at Whole Foods.  4 drops a day in water.

I haven't seen the doc since I did this about 3 or 4 months ago, but I feel *really* good.  I'd suggest you check with your doc about whether this might be worth trying, rather than freelance like I did, since thyroid is a touchy thing that I have tried to understand but can't get my head around all the feedback loops in the chemistry.

Just a thought ....

[carrie235]

Oh...I wanted to add.  I saw my endriconologist day before yesterday.  My thyroid is pooping out too but not to the point where I need meds yet.  Based on an ultrasound of my thyroid, she can tell that I have Hashomoto's but my blood work is not showing it just yet.

She told me that if I start having any of the symptoms of fatigue, etc. to call her!  ha ha.  I told her that I ALWAYS have those and that I would not know when I am having symptoms because of my lyme disease.  So, she is putting me down for lab work in Dec and then every couple of months after that to keep an eye on it.

So..another pill coming soon!!!

My sister has had Hashomotos for many years so it runs in our family.  I told the doctor, please....I don't want to lose my hair...she said that will not happen as long as it's caught early.

Oey vey...