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Avatar universal

all over body pain.

Hello,
I am 44 years old with unexplained fatigue, insomnia, joint and muscle pain, leaky gut, chronic diarrhea, some tingling and numbness in the extremities.  
I have been dealing with this on and off for about 2 years now.  The Diarrhea started 3 years ago after a camplobacter infection.   Since then a whole host of issues have come my way.  
I just recently did an Igenex lyme tests that was pretty much inconclusive.  My recent test results showed I have High level of EBV above 300, deficient in many vitamins and nutrients including B12.  I am currently doing IV vitamin treatments and getting weakly B12 shots.  I am also on an anti Viral and whole hosts of vitamins probiotics and under the care of a physician...  
After all this, I am still getting no relief.  I might even think I'm getting worse.   My lyme test is not conclusive so I have not started any treatment yet.  Very afraid of long term antibiotics that can further harm my gut which as is, is not absorbing any nutrients.  I eat pretty healthy.  Stick to a organic, gluten free, juicing everyday lifestyle.  
I am at a loss and don't know what to do and which way to turn.  I've been progressively getting worse since May of this year.  Any and every advice would be greatly appreciated..
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1763947 tn?1334055319
I was just going to say the same thing. What we might think is negative is really positive with lyme. Please start treating by finding a lyme literate Doctor near you.
Helpful - 0
Avatar universal
[NOTE:  This is a duplicate of a message I pasted into another thread just now.  I didn't see that you had started this new thread, so no need to go read the other one.]
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Sorry you are having such a hard time!  I understand that you have NOT started treatment for Lyme yet, correct?  That could be a big part of your symptoms.

If you cannot get your current doc to sit down and go through the concerns you have stated here in your post (and deal with them!), then consider finding another MD for a second opinion ... and I would make sure this doc is a Lyme specialist.  If you need help finding a Lyme doc near you, let us know and we can outline for you ways to do so.  

You might also consider taking a wise friend or family member with you to the doctor appointment who can be your advocate in talking with the MD.  When I was very ill, I had trouble collecting my thoughts and expressing my concerns -- it's the illness getting in the way.  

There are ways to treat with antibiotics that take into account your ailing digestive system -- this is something your MD should know about and take care of.  

You don't say what Lyme test was used -- your Lyme doc and your regular doc should be communicating about all this so that diagnosis and treatment are coordinated.  If the docs are not in close touch, then your friend-and-advocate should make certain the information is communicated between them.  

If you have a copy of your Lyme test results, would you share them with us?  When I hear that test results are 'inconclusive', it sounds like they are NOT NEGATIVE ... and in Lyme, 'not negative' can very well mean POSITIVE.  

Let us know how things go -- take care!  Sending you all good thoughts --
Helpful - 0
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