Aa
antibiotic sensitivities--any alternatives?
hello,
in the last 10 years, i have developed allergies to nearly every antibiotic i have taken--just another delightful freaky thing that has happened to my poor body. we went out of town for several days after my LLMD appointment last week and I decided to wait until i got home to start the doxy prescription, just in case. i discussed this with him and he said if i'm allergic to doxy, there's going to be a big problem in treating me since i am sensitive to every other class of meds that treats lyme.
well, it appears as though i am also sensitive to doxycycline since after taking my 3rd dose a few hours ago, my tongue started tingling and swelling a bit. i had benadryl on hand and took it right away. i will call the LLMD tomorrow a.m. to discuss the issue.
i am SO bummed. for a million different reasons.
so, aside from colloidal silver, has anyone else had success in treating lyme via alternative methods (read--without prescription antibiotics)?
when i watched 'under our skin' the woman who worked with U2 was seeing an alternative practitioner. i wonder what treatment he prescribed.
i'm so sad.
binx
in the last 10 years, i have developed allergies to nearly every antibiotic i have taken--just another delightful freaky thing that has happened to my poor body. we went out of town for several days after my LLMD appointment last week and I decided to wait until i got home to start the doxy prescription, just in case. i discussed this with him and he said if i'm allergic to doxy, there's going to be a big problem in treating me since i am sensitive to every other class of meds that treats lyme.
well, it appears as though i am also sensitive to doxycycline since after taking my 3rd dose a few hours ago, my tongue started tingling and swelling a bit. i had benadryl on hand and took it right away. i will call the LLMD tomorrow a.m. to discuss the issue.
i am SO bummed. for a million different reasons.
so, aside from colloidal silver, has anyone else had success in treating lyme via alternative methods (read--without prescription antibiotics)?
when i watched 'under our skin' the woman who worked with U2 was seeing an alternative practitioner. i wonder what treatment he prescribed.
i'm so sad.
binx
Carrie -- re thyroid; and Vitamin D
I'd suggest you try the thyroid meds, but consider taking them with food since you have a touchy stomach. They are supposed to be taken on an empty stomach first thing in the morning, but my poor stomach gurgled and rumbled and got very irritated that way. So now I take them first thing in the morning with a banana. No problems.
I feel a **billion** times better on the thyroid meds -- Lyme can mess with thyroid, and it seems it may have with me too. If I forget to take the thyroid meds, I can really tell the difference.
===
About Vitamin D, there is a treatment approach to Lyme by a fellow named Trevor Marshall, down in Thousand Oaks, Ventura Cty, Ca, and it's called ... The Marshall Protocol (a tad pretentious for my taste, but hey). Its adherents are a bit cult-like for my taste, and I cannot figure out the biochemistry behind the approach, but I think the idea is to re-set the body by avoiding all Vitamin D, including from sunlight. And when they say ALL Vitamin D, they aren't kidding. There's a lot on the internet about it.
My LLMD encouraged me to take Vit D supps since my Vit D levels were low, but for a long time I didn't do it because of the Marshall-like theories that it would suppress the immune system somehow. Then I decided on a little experiment: I started being sure to get sun when I could, and even got a tiny tan ... and I felt better. I don't say that disproves the Marshall theories, but it was enough for me to start supplementing Vit D-3 ONLY, at the rate of 1000-IU per day. I've been taking it for a few months now, and intend to continue. for what it's worth.
I'd suggest you try the thyroid meds, but consider taking them with food since you have a touchy stomach. They are supposed to be taken on an empty stomach first thing in the morning, but my poor stomach gurgled and rumbled and got very irritated that way. So now I take them first thing in the morning with a banana. No problems.
I feel a **billion** times better on the thyroid meds -- Lyme can mess with thyroid, and it seems it may have with me too. If I forget to take the thyroid meds, I can really tell the difference.
===
About Vitamin D, there is a treatment approach to Lyme by a fellow named Trevor Marshall, down in Thousand Oaks, Ventura Cty, Ca, and it's called ... The Marshall Protocol (a tad pretentious for my taste, but hey). Its adherents are a bit cult-like for my taste, and I cannot figure out the biochemistry behind the approach, but I think the idea is to re-set the body by avoiding all Vitamin D, including from sunlight. And when they say ALL Vitamin D, they aren't kidding. There's a lot on the internet about it.
My LLMD encouraged me to take Vit D supps since my Vit D levels were low, but for a long time I didn't do it because of the Marshall-like theories that it would suppress the immune system somehow. Then I decided on a little experiment: I started being sure to get sun when I could, and even got a tiny tan ... and I felt better. I don't say that disproves the Marshall theories, but it was enough for me to start supplementing Vit D-3 ONLY, at the rate of 1000-IU per day. I've been taking it for a few months now, and intend to continue. for what it's worth.
Hi Binx:
Glad you got a call back from the Doctor. I was wondering if you might be experiencing a herx instead of an allergic reaction when you mentioned about your tongue. Someone else said that if you were having an allergic reaction than mostly likely, you would have felt it right away...can't remember who. If in-fact it was a herx, that would be a very good sign that in-deed you have lyme and the meds were REALLY working.
However, I totally understand that you are scared and why.
Regarding the Vitamin D, I was just thinking about posting about that this morning. I had mine tested when all my symptoms started and it was 27. They put me on massive doses for quite a while too and now I maintain with 5000 iu daily to keep my level in the 70's. I've read a few things though that our bodies keep the Vitamin D low on purpose because the lyme thrives in Vit D environment (or something like that). This is on of my questions for llmd next visit.
I still haven't started my thyroid meds that the llmd prescribed to me. Not sure what to do about that.
Hopefully I'll have my rife machine in a few weeks. I just ordered Bryan Rosner's books and am going to read through them before I starting "rifing".
Glad you got a call back from the Doctor. I was wondering if you might be experiencing a herx instead of an allergic reaction when you mentioned about your tongue. Someone else said that if you were having an allergic reaction than mostly likely, you would have felt it right away...can't remember who. If in-fact it was a herx, that would be a very good sign that in-deed you have lyme and the meds were REALLY working.
However, I totally understand that you are scared and why.
Regarding the Vitamin D, I was just thinking about posting about that this morning. I had mine tested when all my symptoms started and it was 27. They put me on massive doses for quite a while too and now I maintain with 5000 iu daily to keep my level in the 70's. I've read a few things though that our bodies keep the Vitamin D low on purpose because the lyme thrives in Vit D environment (or something like that). This is on of my questions for llmd next visit.
I still haven't started my thyroid meds that the llmd prescribed to me. Not sure what to do about that.
Hopefully I'll have my rife machine in a few weeks. I just ordered Bryan Rosner's books and am going to read through them before I starting "rifing".
Glad to hear you are doing better.
Lyme has such a profound effect on the whole body, including the nervous system, that the tingling and aching in the big muscles of the body is mirrored in the part of the nervous system that you can't feel: the brain. And that irritation, along wiith the messing with the endocrine [hormonal] system, means that we all feel out of sorts, uncertain, unsure, fearful, anxious, etc. And those physical and chemical effects on the body are made worse by the medical community's uncertainties surrounding Lyme diagnosis and treatment and the consequent erratic treatment we receive.
How you are feeling is part of the disease process. It will get better with treatment. If your symptoms get worse or change in a bad way, then of course, call your doc again, but I remember well feeling as you describe.
Hang in there.
Lyme has such a profound effect on the whole body, including the nervous system, that the tingling and aching in the big muscles of the body is mirrored in the part of the nervous system that you can't feel: the brain. And that irritation, along wiith the messing with the endocrine [hormonal] system, means that we all feel out of sorts, uncertain, unsure, fearful, anxious, etc. And those physical and chemical effects on the body are made worse by the medical community's uncertainties surrounding Lyme diagnosis and treatment and the consequent erratic treatment we receive.
How you are feeling is part of the disease process. It will get better with treatment. If your symptoms get worse or change in a bad way, then of course, call your doc again, but I remember well feeling as you describe.
Hang in there.
okay, so i finally got a call back from LLMD's office person this morning. she told him my story and he feels my reaction wasn't a true allergic response, but was a reaction to the medication--like a herx. he wants me to restart the medication.
i'm scared to do it.
wonko: thank you for your reponse and for the tips re: alternative treatments & docs. i am going to look into buhner's protocol a little more intently once i can get my head around all of this. i am still a tad overwhelmed. i am pretty sure there are some other docs within an hour or two of where i live in earthy crunchy northern california who take a holistic approach to treatment of lyme, but i thank you for reminding me about dr. k who treated the woman in the movie. i couldn't remember the guy's name for the life of me.
jackie: thanks for the Web site. i'll do some more poking around in the coming days.
WAF: thank you for pointing out the benefits of detoxing. i underwent a rather rigorous detox process about a year ago before my lyme testing, and it was pretty helpful to me. i cut out all grains, nearly all sugar, and drank green drinks every day. i had intended to restart the regimen last week, but after having the reaction to the doxycycline, i kind of flipped out and ate about 90lbs of sugar. not really, but let's just say i haven't done myself any favors with my diet during the past week. i am motivated to get back on the horse and try again this coming weekend.
one thing that has accompanied my illness is heat intolerance, so i have avoided saunas. i have heard good things about infrared sauna treatment for lyme, but i get really spaced out, sick to my stomach and my neuro symptoms flare when i get hot. i don't know if this happens to anyone else, but i find it unnerving.
my vitamin D was tested 2 years ago and it was very low--16. i was subsequently treated with the 50,000 iu/week for 8 weeks and now take 5000iu of D3 5x/week for maintenance. i don't know if it's helping or not, but i've been able to keep a decent level in my blood for a while, so that's a good thing i suppose.
the rife machine sounds very promising, but it's a bit out of my reach right now, unfortunately. i will keep my eyes open and look forward to hearing about carrie's experience with hers once it arrives and she puts it to work!
blessings to you all~
binx
i'm scared to do it.
wonko: thank you for your reponse and for the tips re: alternative treatments & docs. i am going to look into buhner's protocol a little more intently once i can get my head around all of this. i am still a tad overwhelmed. i am pretty sure there are some other docs within an hour or two of where i live in earthy crunchy northern california who take a holistic approach to treatment of lyme, but i thank you for reminding me about dr. k who treated the woman in the movie. i couldn't remember the guy's name for the life of me.
jackie: thanks for the Web site. i'll do some more poking around in the coming days.
WAF: thank you for pointing out the benefits of detoxing. i underwent a rather rigorous detox process about a year ago before my lyme testing, and it was pretty helpful to me. i cut out all grains, nearly all sugar, and drank green drinks every day. i had intended to restart the regimen last week, but after having the reaction to the doxycycline, i kind of flipped out and ate about 90lbs of sugar. not really, but let's just say i haven't done myself any favors with my diet during the past week. i am motivated to get back on the horse and try again this coming weekend.
one thing that has accompanied my illness is heat intolerance, so i have avoided saunas. i have heard good things about infrared sauna treatment for lyme, but i get really spaced out, sick to my stomach and my neuro symptoms flare when i get hot. i don't know if this happens to anyone else, but i find it unnerving.
my vitamin D was tested 2 years ago and it was very low--16. i was subsequently treated with the 50,000 iu/week for 8 weeks and now take 5000iu of D3 5x/week for maintenance. i don't know if it's helping or not, but i've been able to keep a decent level in my blood for a while, so that's a good thing i suppose.
the rife machine sounds very promising, but it's a bit out of my reach right now, unfortunately. i will keep my eyes open and look forward to hearing about carrie's experience with hers once it arrives and she puts it to work!
blessings to you all~
binx
Hi WAF:
I just posted on the MS forum under your post. You made such a good post about Lyme.
Although I'm not allergic to the drugs (as yet), I am having some difficulty with them wreaking havoc with my digestive system (heartburn somedays worse then others).
Interesting about the Vitamin D. I have also read about Vit D and Lyme. I am taking 5000 iu daily which is very high but my Vit D levels were very low at one point. I'll have to ask my LLMD about this next time I see him.
I just posted on the MS forum under your post. You made such a good post about Lyme.
Although I'm not allergic to the drugs (as yet), I am having some difficulty with them wreaking havoc with my digestive system (heartburn somedays worse then others).
Interesting about the Vitamin D. I have also read about Vit D and Lyme. I am taking 5000 iu daily which is very high but my Vit D levels were very low at one point. I'll have to ask my LLMD about this next time I see him.
Hi,
Although I'm new to Lyme and am going to start antibiotics soon, I fear having a problem, like you do, of not tolerating the antibiotics because I don't tolerate most drugs and supplements now. Allergies often start immediately, but actually, you can develop an allergy suddenly anytime to something you previously tolerated just fine.
How are you detoxing? If you have no detox routine, a buildup of the toxins from the Lyme you are killing and the subsequent increasing acidity of your body will cause you significant unpleasant herx symptoms to the point where you can't tolerate your antibiotics. I was told that using an "infrared sauna" works wonders for detoxing. Also staying "regular" is important even if you need to use a laxative. Staying away from sweets and red meats as well as drinking green smoothies made with raw broccoli, kale etc. is helpful I hear. One theory is that limiting vitamin D could help since D may help Lyme reproduce (this flies in the face of the current attitude of increasing vitamin D). I know when I take vitamin D I have bad results - numbness. Being in dry heat over 107° is said to stop Lyme from reproducing (maybe we should move to the Mohave Desert?). Using buffered vitamin C to alkalize your system helps - because dying Lyme makes you more acidic. Some like EmergenC. Acetylglutathione can be used to help detoxify the liver. A vitamin C IV by someone knowledgeable BEFORE you start the next antibiotic might help your system better prepare for the new med.
Your adrenals may need to be built up to where you can tolerate the antibiotics better. That's what my LLMD has been trying to do for me because my adrenals are in bad shape - really flattened out. You can do that by supplementing with things that help build up the adrenals like Cortrex. Also, by chilling out, reducing stress, thinking good thoughts, being happy etc. (all the things that are so hard for you to do at this time, I know).
One man in our Lyme support group swears by (not at - LOL!) his Rife machine. However, the Rife, from my understanding (please correct me if I am wrong about this) is not a detoxification item, but, rather, replaces or supplements antibiotics by actually killing Lyme bacteria. So it kills Lyme rather than detoxifies. Rife machines can be fairly pricey - you can Google and actually find a video of someone using their Rife. The guy in our group who has a Rife can only use it for about a half a minute every 2 weeks. Yet he feels it does help. He herxes afterwards and drinks lots of green raw veggie smoothies. He is using the Rife instead of antibiotics because he could not tolerate them.
Hope some of the above will help you!!
WAF
Although I'm new to Lyme and am going to start antibiotics soon, I fear having a problem, like you do, of not tolerating the antibiotics because I don't tolerate most drugs and supplements now. Allergies often start immediately, but actually, you can develop an allergy suddenly anytime to something you previously tolerated just fine.
How are you detoxing? If you have no detox routine, a buildup of the toxins from the Lyme you are killing and the subsequent increasing acidity of your body will cause you significant unpleasant herx symptoms to the point where you can't tolerate your antibiotics. I was told that using an "infrared sauna" works wonders for detoxing. Also staying "regular" is important even if you need to use a laxative. Staying away from sweets and red meats as well as drinking green smoothies made with raw broccoli, kale etc. is helpful I hear. One theory is that limiting vitamin D could help since D may help Lyme reproduce (this flies in the face of the current attitude of increasing vitamin D). I know when I take vitamin D I have bad results - numbness. Being in dry heat over 107° is said to stop Lyme from reproducing (maybe we should move to the Mohave Desert?). Using buffered vitamin C to alkalize your system helps - because dying Lyme makes you more acidic. Some like EmergenC. Acetylglutathione can be used to help detoxify the liver. A vitamin C IV by someone knowledgeable BEFORE you start the next antibiotic might help your system better prepare for the new med.
Your adrenals may need to be built up to where you can tolerate the antibiotics better. That's what my LLMD has been trying to do for me because my adrenals are in bad shape - really flattened out. You can do that by supplementing with things that help build up the adrenals like Cortrex. Also, by chilling out, reducing stress, thinking good thoughts, being happy etc. (all the things that are so hard for you to do at this time, I know).
One man in our Lyme support group swears by (not at - LOL!) his Rife machine. However, the Rife, from my understanding (please correct me if I am wrong about this) is not a detoxification item, but, rather, replaces or supplements antibiotics by actually killing Lyme bacteria. So it kills Lyme rather than detoxifies. Rife machines can be fairly pricey - you can Google and actually find a video of someone using their Rife. The guy in our group who has a Rife can only use it for about a half a minute every 2 weeks. Yet he feels it does help. He herxes afterwards and drinks lots of green raw veggie smoothies. He is using the Rife instead of antibiotics because he could not tolerate them.
Hope some of the above will help you!!
WAF
PS
I just did a search for 'lyme homeopathy california' and one of the many sites that popped up was:
www. lymeinfo. net / alt. html [take out all the spaces before pasting into your browser]
It's quite a list, with a section on books, one of websites, a list of naturopathic Lyme docs, and all sorts of goodies.
I just did a search for 'lyme homeopathy california' and one of the many sites that popped up was:
www. lymeinfo. net / alt. html [take out all the spaces before pasting into your browser]
It's quite a list, with a section on books, one of websites, a list of naturopathic Lyme docs, and all sorts of goodies.
You crack me up, wonko. :) Your geography is fine, it's the 'wide open spaces' that are deceptive.
California is full of alt med docs, so I'll bet there are a few lurking around near Binx.
California is full of alt med docs, so I'll bet there are a few lurking around near Binx.
OK, JackieCalifornia sent me a message about my faulty geography...The aforementioned Dr. K would be something like 800 miles away. I guess since I travel 900 mi to see my LLMD, my relative definition of "close" is somewhat skewed.
Can I blame it on the Lyme brain?
Can I blame it on the Lyme brain?
Hi Binx,
I'll confess to not having read all of the replies in detail, so pardon if this is repetitious!
I would also question your doc about how to distinguish allergies from herx-like reactions. It is my (untrained, limited) understanding that allergies occur right away, not only after the 3rd dose. Herxes on the other hand are often delayed. But of course see what your LLMD has to say.
If it was not already mentioned, I think that liquid Samento is an effective herbal antimicrobial. My LLMD had me take it in the weeks before starting abx. His theory is that Lyme is like an onion and you need to peel off the layers, so he didn't want to put me on abx right away and we took the more gradual approach starting with samento.
I have also heard, but never tried, olive leaf extract as an herbal remedy.
There is a book by an herbalist (not sure off the top of my head the details of his training) named Buhner, so you may want to look into that.
There is a doc in your part of the county, Dr. K., who is alternative. (Forget exactly where he is, but he's within a state. Since I got 1/2 cross the county to see mine, I count that as "close.") He is the doc that the U2 girl in UOS went to see. I don't like to post doctor names, but if you need his full name feel free to PM me. I personally am wary of him based on bits and pieces of reading I've done about him, but then again my options are not limited in the way that yours are.
FWIW, my tongue was somewhat swollen for years before I was dx-ed, to the point that I had chronic sores from biting it in my sleep and it had "scallop" marks on the side from where my teeth caused imprints. I'm not sure exactly when that cleared up, but it seems back to normal now.
Hope your call goes well.
I'll confess to not having read all of the replies in detail, so pardon if this is repetitious!
I would also question your doc about how to distinguish allergies from herx-like reactions. It is my (untrained, limited) understanding that allergies occur right away, not only after the 3rd dose. Herxes on the other hand are often delayed. But of course see what your LLMD has to say.
If it was not already mentioned, I think that liquid Samento is an effective herbal antimicrobial. My LLMD had me take it in the weeks before starting abx. His theory is that Lyme is like an onion and you need to peel off the layers, so he didn't want to put me on abx right away and we took the more gradual approach starting with samento.
I have also heard, but never tried, olive leaf extract as an herbal remedy.
There is a book by an herbalist (not sure off the top of my head the details of his training) named Buhner, so you may want to look into that.
There is a doc in your part of the county, Dr. K., who is alternative. (Forget exactly where he is, but he's within a state. Since I got 1/2 cross the county to see mine, I count that as "close.") He is the doc that the U2 girl in UOS went to see. I don't like to post doctor names, but if you need his full name feel free to PM me. I personally am wary of him based on bits and pieces of reading I've done about him, but then again my options are not limited in the way that yours are.
FWIW, my tongue was somewhat swollen for years before I was dx-ed, to the point that I had chronic sores from biting it in my sleep and it had "scallop" marks on the side from where my teeth caused imprints. I'm not sure exactly when that cleared up, but it seems back to normal now.
Hope your call goes well.
jackie: i met with an allergist at UCSF about 7 years ago to discuss this problem. they tested me for penicillin allergy via skin test and the results were ambiguous (of course). they said that penicillin was the only antibiotic allergy they could test for, and that everything else was just a wait and see. there isn't anything they can do about it according to the attending doc there other than desensitize me in hospital for immediate treatment, but they only do that when one is admitted. maybe it's time to revisit this problem.
frustrated: thanks for the input re: rife. i have been hearing and reading a lot about the benefits of those machines, but i am not in a position to make that kind of an investment at this point, unfortunately.
i'm going to call my doc tomorrow a.m. in the mean time, thank you for all the feedback. i am still rather frustrated, but i'll get myself back on track.
blessings,
binx
frustrated: thanks for the input re: rife. i have been hearing and reading a lot about the benefits of those machines, but i am not in a position to make that kind of an investment at this point, unfortunately.
i'm going to call my doc tomorrow a.m. in the mean time, thank you for all the feedback. i am still rather frustrated, but i'll get myself back on track.
blessings,
binx
I would highly recommend using resonant frequency treatments either with a rife machine and/or doug coil machine. I own a plasma coil machine and have used a doug coil machine for over 8 months. This is the only kind of treatment I would recommend for anyone fighting Lyme.
binx,
have you consulted with an immunologist since the antibiotic allergy began? It might be worth a visit to get an overview of what's going on.
thinking of you -- J.
have you consulted with an immunologist since the antibiotic allergy began? It might be worth a visit to get an overview of what's going on.
thinking of you -- J.
thanks so much for your replies.
i have been pretty much unable to deal with this emotionally as i am so incredibly bummed about this road block. i am going to take a break for a couple of days and then i will call the doc on monday to let him know what happened.
then i will more or less do what you said, jackie--pick myself up, dust myself off, and get back on the path to figuring all of this crazy business out. i'm just so tired and disappointed right now, i can't deal with it.
carrie, unfortunately, i don't think the tongue swelling and sensations were from herxing although i sure wish that were the explanation. i have had strange buzzing in my palate and tongue on and off for the past year and this was really different. it felt pretty scary and i'm afraid to tempt fate by trying the doxy again.
thanks so much for the support!
hugs to you,
binx
i have been pretty much unable to deal with this emotionally as i am so incredibly bummed about this road block. i am going to take a break for a couple of days and then i will call the doc on monday to let him know what happened.
then i will more or less do what you said, jackie--pick myself up, dust myself off, and get back on the path to figuring all of this crazy business out. i'm just so tired and disappointed right now, i can't deal with it.
carrie, unfortunately, i don't think the tongue swelling and sensations were from herxing although i sure wish that were the explanation. i have had strange buzzing in my palate and tongue on and off for the past year and this was really different. it felt pretty scary and i'm afraid to tempt fate by trying the doxy again.
thanks so much for the support!
hugs to you,
binx
Binx,
Carrie is right, there are other options, inlcuding Rife. I have never spoken with anyone who has used Rife, but you might look online for Bryan Rosner's books -- he is not an MD but writes a great deal about Lyme (he has it too). I have several of his books and they are quite readable. One is 'Top 10 Lyme Disease Treatments' and another is 'Lyme Disease and Rife Machines'. Accurate and thorough, I don't know, but I tend to think he makes some good sense and is not a loon. I'd start with the 'Top 10' book.
Also look for Steven (Stephen?) Buhner's books. He is a dedicated herbalist and explains very clearly in his books why he thinks what he does, and what he recommends. I have two of his books, 'Healing Lyme' and 'Herbal Antibiotics'. (I don't remember at the moment if one is better than the other.)
I also have Connie Strasheim's 'Insights into Lyme Disease Treatment -- 13 Lyme-Literate Health Care Practitioners Share Their Healing Strategies", which has a wide range of views and suggestions for various treatment approaches. It's useful not only for specifics but to get a big picture of Lyme and its effects and how to counter them.
Kenneth Singleton MD's 'Lyme Disease Solution' puts antiobiotics as the first line of attack, then lifestyle/nutrition, then alternative therapies ... but he assumes antibiotics are the basis of treatment; while this won't work for you, it seems, the surrounding support he suggests may be useful at some point. I'd put this book at the bottom of the list.
Be sure to keep both you LLMD and your other doc informed of what you are taking and have had issues with --
Above all, don't despair. Be sad and bummed, have a good cry, then yank up your socks and take another run against the bugz. But keep fighting.
Hugs J.
Carrie is right, there are other options, inlcuding Rife. I have never spoken with anyone who has used Rife, but you might look online for Bryan Rosner's books -- he is not an MD but writes a great deal about Lyme (he has it too). I have several of his books and they are quite readable. One is 'Top 10 Lyme Disease Treatments' and another is 'Lyme Disease and Rife Machines'. Accurate and thorough, I don't know, but I tend to think he makes some good sense and is not a loon. I'd start with the 'Top 10' book.
Also look for Steven (Stephen?) Buhner's books. He is a dedicated herbalist and explains very clearly in his books why he thinks what he does, and what he recommends. I have two of his books, 'Healing Lyme' and 'Herbal Antibiotics'. (I don't remember at the moment if one is better than the other.)
I also have Connie Strasheim's 'Insights into Lyme Disease Treatment -- 13 Lyme-Literate Health Care Practitioners Share Their Healing Strategies", which has a wide range of views and suggestions for various treatment approaches. It's useful not only for specifics but to get a big picture of Lyme and its effects and how to counter them.
Kenneth Singleton MD's 'Lyme Disease Solution' puts antiobiotics as the first line of attack, then lifestyle/nutrition, then alternative therapies ... but he assumes antibiotics are the basis of treatment; while this won't work for you, it seems, the surrounding support he suggests may be useful at some point. I'd put this book at the bottom of the list.
Be sure to keep both you LLMD and your other doc informed of what you are taking and have had issues with --
Above all, don't despair. Be sad and bummed, have a good cry, then yank up your socks and take another run against the bugz. But keep fighting.
Hugs J.
Hi Binx:
I was thinking....is it possible that instead of an allergic reaction to all these meds that you might instead be having a herx reaction? I have no idea, but I just thought of that... Might be something you want to talk to doc about....
I was thinking....is it possible that instead of an allergic reaction to all these meds that you might instead be having a herx reaction? I have no idea, but I just thought of that... Might be something you want to talk to doc about....
Hi Binx:
There is a lady here in Pleasanton that along with her husband owns a health food store. She is very knowledgeable.
She had lyme disease but went the natural route to recovery. She saw an MD I think in Los Altos or Palo Alto who treated her with natural products along with RIFE. She swears by the rife machine. Brian Rosner (I think that's the name) has a book about healing with rife.
I'm going to forward you the email she sent to me naming the doctor that she used. I may be right behind you because I'm not tolerating the abx very well either...
I was just getting on to post and saw your post.
I'll email you that information shortly.
Carrie
There is a lady here in Pleasanton that along with her husband owns a health food store. She is very knowledgeable.
She had lyme disease but went the natural route to recovery. She saw an MD I think in Los Altos or Palo Alto who treated her with natural products along with RIFE. She swears by the rife machine. Brian Rosner (I think that's the name) has a book about healing with rife.
I'm going to forward you the email she sent to me naming the doctor that she used. I may be right behind you because I'm not tolerating the abx very well either...
I was just getting on to post and saw your post.
I'll email you that information shortly.
Carrie
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