I have been having a relapse of my symptoms with burning sensations pretty much all over.....eyes, spine, legs, arms, pretty much all over. Does anyone have this? I recently started back on doxy and wonder if it might be related.
I know you are a more seasoned Lyme veteran than I am, but I can relate. I wouldn't say I get burning sensations everywhere, but it is a widespread problem. My face, arms up to my elbows, and eyes all can burn, and were doing so quite consistently before I started treatment. My legs were more likely to be tingling or feel like water was pouring down them. My lower back and butt can have a more dull burning and aching.
I get the twitches, too. When they first appeared, they were confined to my legs and would act up in heat or after exertion. But eventually spread into my arms and back. They have died down a lot, but when I lie flat I will still experience them.
All this stuff (and more, as I'm sure you can understand!) accumulated slowly over about 1.5 years. But I also know what it is like to have the symptoms return suddenly, as that is what happened to me after taking steroids this summer. I thought everything was gone, but in less than two weeks all of my symptoms re-appeared and brought friends. It was more upsetting to have it all come back so suddenly than the slow build.
Hopefully, the return of your symptoms is a sign that the doxy is doing it's job?
I don't have burning...but I have ITCHING everywhere!!! I am also still on Doxy and I have SEVERE itching all the time! I have to soak in AVEENO products and use the itching bodywash and lotion. Its CRAZY! Plus, you guys can tell I usually have flawless skin, and I have sores on my face and ears...its crazy!
Sounds like a Herx, maybe. Hang in there. It should pass in a few days at the most.
I haven't been on doxy, but the Herxes are all a variation on a theme with whatever drug I'm on. The worst part is when a Herx is coming on and I don't realize it -- it's just scary and depressing -- but once I realize what it is, it's half over and I'm soon better.
I hope you are right. Even though I think this is what it is it still scares me. It brings back memories of the real bad days in the past. It does make sense though. The symptoms have been creeping back in for the past couple of months so I went back to my doctor. You said it when you wrote "it's just scary and depressing". Hopefully it will pass soon.
Sometimes to take my mind off it and trying not to get overwhelmed by it, I will say to myself, 'Okay, it's Tuesday [or whatever], and if I'm not any better by Friday morning, I'll call the doctor.' And usually by that later date, I'm better. There was one time I wasn't, and it turned out I was having a reaction to the meds.
I keep brief written or typed notes of how I'm feeling on those bad days, so I don't get lost in the illness and can look at my notes to remember how long I've been feeling poorly -- it helps keep me more objective and oriented to the passage of time. (Lyme has distorted my sense of time, along with my memory, so I have to use these mental crutches for not only getting things done, but also simply to get through the week sometimes.)
I am VERY much better just recently, and it's quite exciting. I hope it lasts. And I hope you get better soon too.
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