burning

[jkv44]

Evening,

I hope all of you had a restful and nice weekend.

any of you experience burning/stabbing pain in ribs, arms, legs?  It's not really that much of a distraction but still there.

I like what someone posted regarding the symptoms. I believe it was your symptoms can't hurt you.


I sometimes wish there was a local support group. I so value all of you and your suggestions, opinions.

It would be nice though to actually see someone face to face. I've tried to locate a group in my area, but had no luck.

[Hope75]

Burning/neuropathy is my main complaint.  It waxes and wanes.  You aren't alone in the burning at all!

[patsy10]

Antibiotic treatment resolved most of the paresthesias but I still get them.

[wonko]

For me abx treatment has reduced my paresthesias.  I also took neurontin for awhile and it helped, but only in masking the symptoms (it won't cure you, it's an Rx for neuropathic pain).

There are other meds for relief of neuropathic pain.  You could ask your doctor about it.

[jkv44]

Hi,
thanks for your imput. I know my postings are lyme especially tingling, buring. It's just nice to be re-assured.

Was there anything that helped with the paresthesias? Or is it just time that makes them better?

JKV

[patsy10]

I've had tons of burning on nearly every area of my body.  These are abnormal sensations or paresthesias.  They are very scary but they have never seemed to cause me any permanent damage.  I think it's irritated sensory nerves possibly from dye off or toxins.  This is just my guess.

[wonko]

I'd say I'm just barely in the DC metro area, to the NW.  I've only lived here a couple of years.  

Have you checked out NatCapLyme?  They hold support meetings in DC and surrounding areas.  Also there is a big LDA/ILADS conference in DC in late October.  I think it is geared more at health professionals but there are some activism sections as well.  That may be a way to meet up with others who are not extremely sick.

I don't know other Lyme patients in person, just through online support groups.  I'm not comfortable with discussing my diagnosis and controversial long-term treatment in person.

[jkv44]

Hi,
I guess you are right "burning/stabbing is more than just annoying. It's a pain in the a**** to say the least.

I know what you mean about the live support groups. This disease has many levels and although we know we feel terrible and getting better, others may be worse off.

I live in the northern Va area right outside DC. I can't tell you how many people I talk on a regular basis have lyme and aren't getting treated properly. I went to the gym to put my membership on hold and the manager and her assistant both had it bad.

The cost of meds is expensive enough. I got a part time job tutoring to pay for this. I have an HMO and currently battling with them to pay for the meds.

Where do you live Pa, NJ, or CT? JKV

[wonko]

Well, I'm not sure how "burning/stabbing pain" is not that much of a distraction, lol.

If you use the "Search this community" feature up and to the right, you'll stumble on many past posts about burning sensations.

I've had a lot of burning sensations in my skin and also shooting pains in my limbs.  My joint involvement can feel like burning on the inside of my hands/feet.  My pain level can range from annoying to something that keeps me from bring able to leave my home.  Thankfully lately it's in the annoying category.  I never had much rib pain, though.

I have not attended in-person support groups myself.  I was warned that they can be depressing.  There are many stages/levels with this disease.  Some people are still living their lives through more mild symptoms.  Others are notably disabled, confined to wheelchairs.  Some have lost careers, homes, families, etc.  I'm not sure where you are from but I'm in an endemic area and know that there are some really sick people in my area battling this.  Just a thought to be prepared should you pursue a live support group.