iv's

is their anybody in here that has been on iv treatments for 6 months or longer and still dealing with all the symptoms you had when you started iv's? also what about swollen glands..............thxs

[im_ticked_off]

i cant believe nobody answered this, im the only one out their that has been on iv for this long. umm  was hoping somebody  would respond.

[JackieCalifornia]

You might be right -- my LLMD doesn't use IVs at all, I don't THINK -- but then I don't know the other patients!

There are plenty of Lyme patients who would LIKE to be on IV, I believe -- it's possibly more effective than oral meds, but also trickier to avoid infection of the IV line.

What does your MD say about why you're on IV so long?

[patsy10]

I haven't been on Iv's but 2 people I know have.  One was on them for 8 weeks twice, a few months apart.  The other was on them for 8 weeks one time.

[im_ticked_off]

he says as long as i am herxing or having symptoms of lyme he will keep me on them, having a herx with an iv is for me twice as bad as when i was oral,i can always tell when one is going to attack me, i get tired. i am waiting to start back up on iv until my biopsy from my glands are in should hear something today on that i hope. keep wondering sometimes if its not something else going on in me. hope you all are having a great day

[Amyloo]

I was on IV Rocephin for seven months.  Some progress, but it is slow.  Am currently on Biaxin and Septra at the moment.

[knice]

I have been on IV therapy for 2 weeks and will be on for 4 to 9 months my brother in manhattan is starting and his very well known lldr is telling him 12 month hang in there...

[theTick_inmysoup]

Hello...from my childhood experience glands can scar from severe swelling and never be normal. I had german flu when i was 18 and now at 45 my glands are almost the same size as they were after the illness and harder than normal.

I never heard of over 6 months with no change on iv? seems strange. I have had LD since 1998 and was originally misdiagnosed(in friggin Connecticut) As a result it went chronic and I also test pos for 2 coinfections.

A recent emotional trauma brought on the recurring fever within 48 hours and it is still on and off at regular intervals daily for 6 days now. At the last onset I felt the distinctive nerve pain of LD right at the location of the original infection, the following day the nerve pain was pulsing in my spine and on the opposite side of my body.

This is a miserable...whatever it is.