lyme or something else

[john2live]

Sorry if this is to long.  I am a 26 year old male. My symptoms started 2 years ago on my 24th b day. It started with swollen lymph node under chin. Then my upper very back tooth started hurting for a week. So that caused me to get it pulled. Since then i still have the swollen lymph but all these other symptoms started happening to me. I started getting chest pain, I fainted, which both caused an ER visit that they dismissed as anxiety or gerd. Then it felt like my skin was more sensitive to my heater than ever. ALso i started to notice in the winter it feels like my skin is more sensitive to the sun than in the summer time. Then my body started getting twitches ALL OVER and my brain felt like i was gonna get a stroke or some electric shock feeling. I talked to my mom who told me to ask my doctor about lyme disease cause i always go camping and take my boat out. Well before all my symptoms i took my boat to lopez lake in CA which is infested with dears all over the place on the campsites, i mean they try to walk up  to u cause to many people feed them. I dont remember getting bit at all by a tick and no rash. but still my mom told me to ask. I asked and he orderd a blood test which came back possitve for lyme. Prescribed me antibiotics but symptoms still there. I went back and the doc and he orderd another blood test, i think it was the same test and that one came back neg. So i gave up on that. Now my right tonsil been feeling sore for a month and it comes and goes during the day. Also i noticed now whenever i go on a elavator and get off it feels like im still on it like the ground is moving, never felt that. Now i got ct scans of my head 2 times with contrast and without. Also got cbc test done and ultra sound of liver and kidney. All they say normal. I am worried about everything on what i could have. As iam only 26 years old with 2 boys thats wants to live long. What is the chances of having lyme even if it came possitive then neg. Cause i had blood test 2 check for cancer and ct scans and nothing. I am wondering if i have some disorder thats hasn't been found in me. Any input would help

Jonathan

[patsy10]

How long were you treated for lyme?

[john2live]

2 weeks

[gorbybelle]

Hi, there is no need to apologise for your long post - it is important to try to explain your symptoms/history etc; - there are many folks here with a diagnosis of lyme disease who can offer you advice or point you in the right direction to hopefully get some answers etc; - blood tests for lyme are unreliable - many folks are diagnosed on symptoms and any history of tick-bites and/or rashes - the circular 'bulls-eye' rash being the most 'obvious' tick-bite rash - but ticks can carry other bacteria.

Some folks - diagnosed with lyme -  never see a tick or any kind of rash.  

My advice to you would be to find a doctor who is knowledgeable about lyme disease - these docs. are known as LLMD's. [lyme literate medical docs.]

The treatment you were given - 2 weeks of antibiotics - is not enough to treat a lyme infection. - I would think atleast one month of 'high dose' antibiotics would be the minimum treatment.

I am not medically qualified in any way - I do have a 'lyme' diagnosis - and so have experience of trying to find an answer to my own health issues - which thankfully led me to an LLMD.  



Your symptoms don't sound like 'typical' lyme symptoms but then again lyme symptoms are not 'straight foward' - lyme can effect any part of the body in different ways.

The fact that you did have a 'positive' test for lyme and you have/do spend time around deer - and all the tests you have had have come back normal - other than the lyme test - makes me think an appointment with an LLMD. is a good idea.

One of the possible symptoms of lyme is 'anxiety' - which of course is made worse when we feel unwell but have no diagnosis.

keep us posted - post as much as you need to - gorbs x

[momof3littleangels]

I think you should find a LLMD ASAP.  I found my doc at www.turnthecorner.org and he has me on a ton of antibiotics and supplements.  I have been treated for Lyme for over 2 months and not a lot of relief.  Lyme is crazy, symptoms come and go and are weird.  I have had some of your symptoms too.  

I do not beleive that 2 weeks of antibiotics would kill it all.  The cycle for the bateria is 30 days, a rule of thumb for Lyme is to treat until you are 2 months symptoms free.

Also I belong to a Lyme support group at www.mdjunction.com my screen name there is Tennesseemom7.  You can contact the group leaders on there and they have a list of LLMD's for you.

Best of luck!!!
Brenda