lyme test

[bruce622]

after many misdx i've finally found a doc who agrees w me....lyme disease....even tho i've been testing neg...He scheduled for a spinal tap.by the way the doc is a neuro.I know this can go many ways.i'm still not very trusting of MDs and what they say.What can I expect next??? If someone could please enlighten me...i would like to ask some of the so called people of the medical profession a question .why do our pets receive better dx and treatment than their human counterparts do???In case there are any MDs of the unenlightend persuasion that decide to tap into this site.

[itsallinmyhead1969]

hey, im the winner of its all in my head!  i've tried telling them all the symptoms tried getting them to run the tests...hmf! its a waste of time!  i guess i can just consider it a down pament of life insurance for my kids.  maybe they can sue em and get something when i finally croak from all this stuff. dont know if its fibro, ms, lupus, or that tick that made me deathly sick about 11 yrs ago...blurred vision, numb hand, face(sometimes) feet, leg, thigh, buzzing in ears...just crazy stuff...stiff joints, tingling...its just awful. glad you finally diagnosed yourself...glad i found this place....caught my doc giving me meds to screw up my blood test i was fixing to take...aint that something. the va don't want to pay that disability i guess...best of luck to ya

[paul_zone5ct]

I have gone 15 years w/o a dx.  Went to doc after doc after doc. All standard Lyme tests were neg. Finally saw a neurologist who was on a "Best Docs" list.  He did spinal tap, brain scan.  All neg for Lyme. He said idiopathic neuritis.  I finally dx'd myself, said it MUST be Lyme, confronted my primary care doc who conceded it must be Lyme.  Went to a LLMD, got tested by IGENEX, positive IGM and IGG and started treatment w/three antibiotics 2 mos ago. I can't tell you how angry I am at the sheer incompetence of all these docs, here in CT, the BIRTHPLACE of Lyme, who couldn't figure out that it was Lyme. My most bizarre symptom was like a seizure, middle of the night, arms paralyzed and jerking, I was awake. Docs were CLUELESS. I don't know what patients do who have no education,don't know the internet, I guess they just roll over and die.  You have to take charge of your own health, do your own research, find the right doc.  Now I'm hoping that the abx will undo at least some of the 15 years of damage to my brain, heart, nervous system, joints, and vision.

[bruce622]

I agree w you... a neuro agreeing w me.still skeptical.although,I was told that they are seeing another patient w lyme.He is doing a blood work up,I'm requesting an expanded western blot tomorrow.I would suppose the reaction I get,will tell all.Going to the spinal tap issue-I believe the doc is covering all bases.I'm also schduled for other neuro tests MRI etc.he said he wanted to see how much nerve damage has been inflicted.If time and treatment prove that I"ve found an LLMD....I know,for obvious reasons,I can't post specifics.I will say I'm a booney rat residing in upstate ny.there are a few possibilities in the region.for those who are looking...all I can say is research.I wish I could name names....sorry.  

[patsy10]

FYI, lyme rarely shows in spinal fluid even if you have it.  I think it's around 10-20% so don't expect to get a positive result.  I hope your neuro knows this.  I am very surprised your neuro thinks lyme.  This is very rare from my experience and that of others.  I have been through the same situation as you as far as the medical profession.  I'm not a doctor but I work in the medical field.  I'm not sure why doctors don't pursue this.  I think doctors treat based on abnormal test results so if tests are negative then you don't have it and you get diagnosed with things like fibromyalgia, cfs or "it's all in your head".  Doctors are very busy these days, see lots of patients and don't really have much time.  Healthcare has become just a business these days.  I've watched it change over the years.  I had the bullseye rash, followed by numerous problems for years.  All my tests have been negative.  I have improved on antibiotics.  If your doctor doesn't help you then find a doctor who specializes in lyme so you can get a good evaluation.