neurapathy and tindamax

hi,
on my second round of tindamax and after about five days am beginning to get tingling, pins in hands, feet.

I read that this is acommon side effect.

How many of you have experienced this? JKV

[wonko]

I had neuropathy before Tindamax, and often when I herx my neuro symptoms worsen, so for me that's a chicken/egg situation.  On my last neuro exam (August), I have loss of sensation in a stocking/glove pattern (feet/hands, worse at tips and gets better going up).  This doesn't shock me since I had constant tingling and burning for around 8-12 months before my diagnosis.

I pulse Tindamax, on a less frequent schedule than my LLMD originally suggested, since it really knocks me out.  At my last appt, I was told to stop it all together for now but might try another short pulse soon because I really want to get through treatment.  (I'm at about 14 months on abx...)

I would suggest (of course check with your doc) that if the neuropathy gets bad, lower your dose.  When I do take Tindamax, I take 1/4 of the originally rx'ed dose.  And I still Herx.

[jkv44]

Hi,
thanks for the insight. I herxed really bad the first two rounds of tindi. The last few were ok and only felt a slight herx. Which I understand is a good thing.

I'm just frustrated with all that goes along with getting well.

I'm now going to try cholestryamine for the neurotoxins plus a vitamin C detox.

Have you ever tried any detox? JKV

[Karen_Boulder]

Hello, Our LLMD wants my 17yo daughter to take 500 mg tindamax 2x/day for at least 30 days. I am worried about the herx. Would you mind sharing what dosage you were on and how long? You said you herxed pretty bad the first 2 '"rounds" so I wonder what a round means. Thanks! - Karen

[jkv44]

Karen,
I did 500mg twice a day when I could handle it. It's tough and can cause neurapathy if you don't watch it.

I round for me was  five days on and two days. Sometimes couldn't do even the five days.

Tini knocks your socks off. JKV