Aa
please tell me about your 'muscle pain'?
Just a small request - I have a lot of neck/shoulder pain - esp. during a flare - my latest one was a 'bolt from the blue' - ie;Sunday fine - Monday terrible. I am not good at describing my flares - maybe I forget to mention things because I have become so 'used' to them - all of this started so long ago.
I have never had a positive lyme test - LLMD. diagnosed me on symptoms/tick-bite - it's about 4 years since the tick-bite - the 'unrelenting' symptom is neck/shoulder muscle pain - I have tried just about everything = I think!
I would like to hear 'others' symptoms - stories - that involve the neck/shoulder muscles. I feel I will never know if this symptom is from lyme - it's just that following a tick-bite - I had an episode of 'very-stiff-neck' - as well as a lot of other possible lyme symptoms.
Has anyone found this type of 'muscular' pain has improved from maybe 'long term antibiotics'
I read on another forum one lady has had great improvement from abx. - over the last 2 years - having recently stopped the abx. her pain symptoms are 'creeping' back - I am guessing then that the lyme bacteria is still present?
I have days [as I am sure we all do] where I just say to myself - I can't do anymore - I have no more energy to put in to this 'thing' - I am having one of those days - except here I am ! - asking for help.
Take care - 'all'
gorbs
I have never had a positive lyme test - LLMD. diagnosed me on symptoms/tick-bite - it's about 4 years since the tick-bite - the 'unrelenting' symptom is neck/shoulder muscle pain - I have tried just about everything = I think!
I would like to hear 'others' symptoms - stories - that involve the neck/shoulder muscles. I feel I will never know if this symptom is from lyme - it's just that following a tick-bite - I had an episode of 'very-stiff-neck' - as well as a lot of other possible lyme symptoms.
Has anyone found this type of 'muscular' pain has improved from maybe 'long term antibiotics'
I read on another forum one lady has had great improvement from abx. - over the last 2 years - having recently stopped the abx. her pain symptoms are 'creeping' back - I am guessing then that the lyme bacteria is still present?
I have days [as I am sure we all do] where I just say to myself - I can't do anymore - I have no more energy to put in to this 'thing' - I am having one of those days - except here I am ! - asking for help.
Take care - 'all'
gorbs
wonko's right, when you get too high on the magnesium (in whatever form), diarrhea results.
I have also however learned that my kidney ache when I've been taking too much, on either side on my back, just above waist level. At first I didn't realize what it was, but there seems to be an association between the Mg intake and the ache. I may just be touchy that way. It stops aching when I lower the dose.
I take Mg malate because I've read that it's an easily absorbable form, but I don't know if that's true.
I have also however learned that my kidney ache when I've been taking too much, on either side on my back, just above waist level. At first I didn't realize what it was, but there seems to be an association between the Mg intake and the ache. I may just be touchy that way. It stops aching when I lower the dose.
I take Mg malate because I've read that it's an easily absorbable form, but I don't know if that's true.
Sorry to be graphic, but as a tip, I've read that you'll know when you're taking too much Mg when you start to get diarrhea.
That's regardless of the source. Magnesium malate is a salt of magnesium. Some supplements have the oxide form. Either way, you'll know you're getting too much if it gives you the runs.
That's regardless of the source. Magnesium malate is a salt of magnesium. Some supplements have the oxide form. Either way, you'll know you're getting too much if it gives you the runs.
I take 250mg magnesium and was thinking about going up to 400mg daily. You mentioned that the kidneys can be harmed if taking too much.
Confused: taking too much of magnesium or the malate?
Confused: taking too much of magnesium or the malate?
Ouch. I'm having a similar issue. My right shoulder is killing me this weekend. It aches alot, but never to this extent. Interesting I just started my heavy antibiotic regimen. I can safely say I feel worse this weekend than I have in a long time. Maybe this is part of herxing. I don't know. I do know it hurts and my usual ability to sweep symptoms under the rug is gone. I am left to sit on the couch when I have so much to do.
.....intended to mention - I was given 'Amoxicillin' for abcess - if I have been having herx. then maybe this is a sign that I do need more abx.
wow! - your description of - right shoulder blade pain - being present from the start is exactly the same as me - only it started in my left shoulder blade - sort of near my spine and just under the shoulder blade - my severe 'stiff neck episode' came later. The odd thing is that I can go for weeks with no pain in the left shoulder blade area but if I get a really bad flare - as it starts to lessen - the last painful area that I notice is that same shoulder blade area.
I have been recently trying a therapy called 'Bowen Therapy' - very light massage/moves to the muscles - following my seconed treatment - which involved gentle massage around my face/neck area - I had an 'abcess' in my gum - I thought it was maybe a bad tooth but dentist said no - the 'Bowen' therapist felt sure it was from the massage - so maybe this therapy caused a herx type reaction as that is how I have felt the last few days - the same as when I started abx. and had what I would say was a herx.
This latest 'flare' has been short but intense - I have felt horrible pain intensifying - then heat all over - then as this calms down I notice stabbing pains all over the place - I have had several 'bouts' of this each day.
I too can - sweep lyme under the carpet - on good days - then as you describe - on bad days I become 'taken-over' by this stuff - body and mind - I do manage the 'anxiety' side of things much, much better than I used too [touch wood!] .
The 'Bowen Therapist' - suprisingly - seems to have done her home work on lyme - this therapy aims to 're-balance' the bodies hormonal systems, etc: - her thoughts as far as I am concerned is my 'fight or flight' reaction is out of sync. - ie; over-reactive - [ I am not good at explaining all this stuff !] - its like if you were to actually tear a muscle it would become inflamed as the body set to heal itself - this natural reaction can become over-reactive - I guess this could be to do with the battle against the lyme bacteria.?
I have been recently trying a therapy called 'Bowen Therapy' - very light massage/moves to the muscles - following my seconed treatment - which involved gentle massage around my face/neck area - I had an 'abcess' in my gum - I thought it was maybe a bad tooth but dentist said no - the 'Bowen' therapist felt sure it was from the massage - so maybe this therapy caused a herx type reaction as that is how I have felt the last few days - the same as when I started abx. and had what I would say was a herx.
This latest 'flare' has been short but intense - I have felt horrible pain intensifying - then heat all over - then as this calms down I notice stabbing pains all over the place - I have had several 'bouts' of this each day.
I too can - sweep lyme under the carpet - on good days - then as you describe - on bad days I become 'taken-over' by this stuff - body and mind - I do manage the 'anxiety' side of things much, much better than I used too [touch wood!] .
The 'Bowen Therapist' - suprisingly - seems to have done her home work on lyme - this therapy aims to 're-balance' the bodies hormonal systems, etc: - her thoughts as far as I am concerned is my 'fight or flight' reaction is out of sync. - ie; over-reactive - [ I am not good at explaining all this stuff !] - its like if you were to actually tear a muscle it would become inflamed as the body set to heal itself - this natural reaction can become over-reactive - I guess this could be to do with the battle against the lyme bacteria.?
My latest flare has left widespread "achiness" in its wake, so I can relate. As I've been complaining for a long time, I can also go between extremes in very little time, and it's quite a physical and emotional ride.
My neck pain is not constant, and when present is often worse on one side and hurts the most when I turn my head. My neck often "crackles" when I bend it, too. I don't think it is audible to others, but in my head it sounds like popping that bubble-wrap packaging.
I've had come-and-go shoulder pain, worse on my right side, for years. It feels like it is in my shoulder blade, and makes moving my right arm painful. It is deeper and more sharp than my neck pain. This shoulder pain pre-dates my Lyme diagnosis, and even when I knew I was sick. I always thought it was from computer use, but when I was very sick and not using computers, it got worse and flared up from treatment along with other Herx symptoms. And now with my antibiotic treatment, it has improved.
I have a similar situation with my legs. I blamed much older issues, predating my knowledge or suspicion of this type of illness, on other causes (weight, fitness level, stress). Only upon losing weight and exercising more and treating Lyme do I now understand that this has been affecting me for longer than since my acute illness began.
I find that my preoccupation with Lyme disease scales with how well I am doing. On my awful days, I can't distract myself from my symptoms and become consumed with the direct effects and the emotional fallout of the disease. On my medium days, I can distract myself for at least part of the time, but can't get away from it. On my good days, I immediately sweep it under the rug and try to deny that it will ever come back, though to date it still finds a way.
Also, I've read several cases of people who greatly improved on abx, but unraveled when taken off. It often requires a few times through that cycle to finally beat it. Others seem to need a certain level of "maintenance" treatment ongoing for long stretches of time.
Just as my infection smoldered below the surface for years before exploding, it seems it can do the same in the opposite direction, with treatment knocking it down but not quite out in some cases, allowing it to rear its ugly head again in the future. The potential for relapses scares the ---- out of me, as I'm eager to recovery and end this detour in life. But I try to focus on the positive that recovery is possible and that if I get through it once, I'll be able to do so again.
It is a long road. I can hardly believe it, but I've been on antibiotics for a full year now. While I'm improved, I would not (and nor would my doctor) stop treatment now or anytime soon.
My neck pain is not constant, and when present is often worse on one side and hurts the most when I turn my head. My neck often "crackles" when I bend it, too. I don't think it is audible to others, but in my head it sounds like popping that bubble-wrap packaging.
I've had come-and-go shoulder pain, worse on my right side, for years. It feels like it is in my shoulder blade, and makes moving my right arm painful. It is deeper and more sharp than my neck pain. This shoulder pain pre-dates my Lyme diagnosis, and even when I knew I was sick. I always thought it was from computer use, but when I was very sick and not using computers, it got worse and flared up from treatment along with other Herx symptoms. And now with my antibiotic treatment, it has improved.
I have a similar situation with my legs. I blamed much older issues, predating my knowledge or suspicion of this type of illness, on other causes (weight, fitness level, stress). Only upon losing weight and exercising more and treating Lyme do I now understand that this has been affecting me for longer than since my acute illness began.
I find that my preoccupation with Lyme disease scales with how well I am doing. On my awful days, I can't distract myself from my symptoms and become consumed with the direct effects and the emotional fallout of the disease. On my medium days, I can distract myself for at least part of the time, but can't get away from it. On my good days, I immediately sweep it under the rug and try to deny that it will ever come back, though to date it still finds a way.
Also, I've read several cases of people who greatly improved on abx, but unraveled when taken off. It often requires a few times through that cycle to finally beat it. Others seem to need a certain level of "maintenance" treatment ongoing for long stretches of time.
Just as my infection smoldered below the surface for years before exploding, it seems it can do the same in the opposite direction, with treatment knocking it down but not quite out in some cases, allowing it to rear its ugly head again in the future. The potential for relapses scares the ---- out of me, as I'm eager to recovery and end this detour in life. But I try to focus on the positive that recovery is possible and that if I get through it once, I'll be able to do so again.
It is a long road. I can hardly believe it, but I've been on antibiotics for a full year now. While I'm improved, I would not (and nor would my doctor) stop treatment now or anytime soon.
I think the recommended daily amount of magnesium is 400 mg, but different kinds of magnesium (e.g., malate) are better absorbed than others.
Hi - I was taking magnesium - though probably not the correct dose - I will research it more carefully - Thankyou
Gorbs,
Are you taking magnesium supplements? That seemed to work for me, but I don't experience (or simply ignore) a fair amount of physical pain ... I had a medical condition long ago that taught me to dissociate from pain, so sometimes I can ignore it as though it doesn't exist ... however when I first got Lyme, I had very strong muscle pains, and even now if my magnesium gets low, I wake up with strong muscle cramps esp in my legs and feet.
I take magnesium malate, but I don't really know the best chemical construction for Mg supplements ... I read somewhere that malate is the most easily digested/deployed in the body.
And PS an MD told me not to exceed the daily limit because it can be very hard on the kidneys.
Take care --
Are you taking magnesium supplements? That seemed to work for me, but I don't experience (or simply ignore) a fair amount of physical pain ... I had a medical condition long ago that taught me to dissociate from pain, so sometimes I can ignore it as though it doesn't exist ... however when I first got Lyme, I had very strong muscle pains, and even now if my magnesium gets low, I wake up with strong muscle cramps esp in my legs and feet.
I take magnesium malate, but I don't really know the best chemical construction for Mg supplements ... I read somewhere that malate is the most easily digested/deployed in the body.
And PS an MD told me not to exceed the daily limit because it can be very hard on the kidneys.
Take care --
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