Aa
sudden flare?
hi, does anyone relate to this : some days I can be feeling quite well! - then out of the blue a flare-up hits me - wam bam - I get a lot of - pain - fatigue - nauseous - hot [sweaty] - overall yukkie - then after maybe 20 mins or so I start to feel o.k. again - is this common with lyme? could it be abx.? I would like some 'lymies' opinions - experiences - I have been taking 'amox' for 1 month - 2g. daily.
gorbs.
gorbs.
Welcome to MedHelp. Others here can give you more information, but just briefly, 'Lyme' is a bacterial infection carried by tiny ticks. It's called Lyme after the town of Lyme, Connecticut, where a cluster of people with the infection were identified and it got the attention of the medical community and in the news.
The technical name for the infection is borreliosis, borrelia being the family of bacteria that cause Lyme. You'll see 'Lyme borreliosis' also. The term 'borrelia burgdorferi' is the scientific name for the bacteria that causes Lyme, named after a scientist who first identified it: Willy Burgdorfer.
It all sounds very confusing, and there is a lot of confusion in the medical community about how to diagnose and treat Lyme disease.
Let us know if you have other questions -- we're happy to help.
The technical name for the infection is borreliosis, borrelia being the family of bacteria that cause Lyme. You'll see 'Lyme borreliosis' also. The term 'borrelia burgdorferi' is the scientific name for the bacteria that causes Lyme, named after a scientist who first identified it: Willy Burgdorfer.
It all sounds very confusing, and there is a lot of confusion in the medical community about how to diagnose and treat Lyme disease.
Let us know if you have other questions -- we're happy to help.
I don't think it's menopause since I had a hyst many, many years ago, although I am not sure if you can still experience it, I really didn't think of that. Hmmm, something for me to check into..thanks much.
hi, do you feel the sweating is related to menstruation - I am near your age - 48 - and I really don't know how much of my symptoms would be happening regardless of lyme considering my age - I have had my hormone levels checked - which came back as normal - but my periods are almost non-existant these days - I get worsening of pain and nausea along with the sweating - people I know who have had 'hot flushes' due to menopause - have the added 'bonus' ! of turning bright red on the face and neck areas - I haven't experienced that - [knock on wood].
I have a lot of pain when walking some days- other times I feel pretty much o.k. - the pain is mostly in my right hip/leg [thigh/shin].
gorbsx
I have a lot of pain when walking some days- other times I feel pretty much o.k. - the pain is mostly in my right hip/leg [thigh/shin].
gorbsx
Hi guys, I am not currently on any meds however I am experiencing the sweating sit big time....however like you guys said it last only about 20-30 minutes then I am feeling better. I thought it was maybe my sugar, however I have been tested, seems to be fine. I am now thinking it's the lyme flares. Also I am finding it very difficult to walk sometimes, I was blaming that on my age...50...lol..however I don't think it is...lol I am sometimes in a lot of pain and can't walk.. Thanks for listening everyone.
I didn't make it to the 'bath' - got distracted as usual - ended-up staying up far too late - oh well - maybe today.
Jackie California - I understand what you are saying about my family - I'm not a 'mother' but I do care for 'mother' some of my family - I guess it's my fault for 'carrying-on' as I have alway's done - I am prob. just feeling sorry for myself - it will pass.
I am grateful to have you all here - I hope I can/have done my share of helping folks here in some way - this 'place' has helped me a lot - esp. when I need 'real' understanding of this 'life form' !!
gorbsx
Jackie California - I understand what you are saying about my family - I'm not a 'mother' but I do care for 'mother' some of my family - I guess it's my fault for 'carrying-on' as I have alway's done - I am prob. just feeling sorry for myself - it will pass.
I am grateful to have you all here - I hope I can/have done my share of helping folks here in some way - this 'place' has helped me a lot - esp. when I need 'real' understanding of this 'life form' !!
gorbsx
For what it's worth, my skin was pretty smooth during abx treatment, but it was kind of spongy feeling, like slightly squishy. Now that I'm into several months' drug holiday, little bits seem to be trying to escape my pores -- little hard bits sometimes, usually whitish, very tiny.
Has anyone tried sauna or at least a facial steam? I can't tolerate heat very well anymore, and I think that's a Lyme thing, so maybe sauna isn't a good idea.
I think I mentioned recently that after a new internist did a ton of tests on me, the only thing I was deficient in was magnesium, and I can't seem to find the time/energy to do epsom baths -- so I'm now taking magnesium (Mg) malate supplements.
400mg/day is (according to the label) the min. daily requirement, and I'm taking 533mg/day total (in 2 split doses) and feeling much much better. I chose Mg malate because I read it's easy on the stomach, and I'm tolerating it fine along with other supplements like Vit C. Mg also helps with constipation, which I was having (prob. due to not enough Mg in my system), and what I've read says to take Mg 'to tolerance' -- if you start getting diarrhea, back off some. So far, my dosage is working perfectly as I refill my internal Mg tank. The mood elevation and stabilization is a real bonus, and some days --like today-- I feel absolutely like The Original Me. And my heart is nice and steady, which when my Mg is low, it is not. End of speech.
Gorbs, your family probably doesn't know what to do. My mother was chronically ill for years at a level where she functioned day to day but wasn't really feeling well, and the rest of us just adjusted to that being 'her' -- which looking back on it, I realize was not the case -- it was a suffering and reduced version of her. Those closest to you have the hardest time seeing the difference in old-you vs current-you, but I'm sure they don't mean to do that to you. They are prob. used to YOU taking care of THEM, so it's not natural for them to suddenly take on the caretaker's awareness and approach. (It means you're a good mother.)
I've thought a lot about this and why I didn't realize what my mother was going through, and it was because I was wrapped up in myself and assumed she was the Rock of Gibraltar and would always be, as she had been my whole life. I am certain your family love and value you and don't want you to suffer, but if they are like I was, they are just gently and unintentionally clueless, because you are the North Star in their sky: always been there, always will be. So come talk to us here, or if it is really getting you down, think about a therapist you can talk to about it just to delineate the issues and figure out how to deal with them so you don't feel so isolated. Sending you a big hug and a wish for a nice epsom salts bath.
And ... wishing everyone a peaceful and restful weekend.
Has anyone tried sauna or at least a facial steam? I can't tolerate heat very well anymore, and I think that's a Lyme thing, so maybe sauna isn't a good idea.
I think I mentioned recently that after a new internist did a ton of tests on me, the only thing I was deficient in was magnesium, and I can't seem to find the time/energy to do epsom baths -- so I'm now taking magnesium (Mg) malate supplements.
400mg/day is (according to the label) the min. daily requirement, and I'm taking 533mg/day total (in 2 split doses) and feeling much much better. I chose Mg malate because I read it's easy on the stomach, and I'm tolerating it fine along with other supplements like Vit C. Mg also helps with constipation, which I was having (prob. due to not enough Mg in my system), and what I've read says to take Mg 'to tolerance' -- if you start getting diarrhea, back off some. So far, my dosage is working perfectly as I refill my internal Mg tank. The mood elevation and stabilization is a real bonus, and some days --like today-- I feel absolutely like The Original Me. And my heart is nice and steady, which when my Mg is low, it is not. End of speech.
Gorbs, your family probably doesn't know what to do. My mother was chronically ill for years at a level where she functioned day to day but wasn't really feeling well, and the rest of us just adjusted to that being 'her' -- which looking back on it, I realize was not the case -- it was a suffering and reduced version of her. Those closest to you have the hardest time seeing the difference in old-you vs current-you, but I'm sure they don't mean to do that to you. They are prob. used to YOU taking care of THEM, so it's not natural for them to suddenly take on the caretaker's awareness and approach. (It means you're a good mother.)
I've thought a lot about this and why I didn't realize what my mother was going through, and it was because I was wrapped up in myself and assumed she was the Rock of Gibraltar and would always be, as she had been my whole life. I am certain your family love and value you and don't want you to suffer, but if they are like I was, they are just gently and unintentionally clueless, because you are the North Star in their sky: always been there, always will be. So come talk to us here, or if it is really getting you down, think about a therapist you can talk to about it just to delineate the issues and figure out how to deal with them so you don't feel so isolated. Sending you a big hug and a wish for a nice epsom salts bath.
And ... wishing everyone a peaceful and restful weekend.
those little bumps that are like pimples, but they don't erupt and therefore hang on much longer? I've been practically covered in them at times: Face, forearms, lesgs below the knee, back and chest. My recent outbreak occurred when I restarted abx after ~2 weeks off (yeast). Right now almost my whole back and much of my chest is affected. My back/chest feel almost like sandpaper, NOT smooth!
I hate it when they are on my face. At least my back is covered when I got out...
I didn't get these before treatment, only after starting abx. So I figure it's either a reaction or perhaps related to die off/toxins. My LLMD just said that he sees them a lot.
Mine don't itch, so it's mote of a gross/aesthetic matter.
I hate it when they are on my face. At least my back is covered when I got out...
I didn't get these before treatment, only after starting abx. So I figure it's either a reaction or perhaps related to die off/toxins. My LLMD just said that he sees them a lot.
Mine don't itch, so it's mote of a gross/aesthetic matter.
I really don't know what they are - I was wondering if it is 'toxins' trying to find a way out!
maybe someone else here can help.
maybe someone else here can help.
Gorby,
I've been getting the little white bumps on my face lately too!! I didn't know what they were and was wondering if it was lyme related or not. Wow! Weird... cause I was literally going to post about this to see if anyone else got it. What is it? I don't have many... but I will get one here and there... and they are tiny. But still strange.
I've been getting the little white bumps on my face lately too!! I didn't know what they were and was wondering if it was lyme related or not. Wow! Weird... cause I was literally going to post about this to see if anyone else got it. What is it? I don't have many... but I will get one here and there... and they are tiny. But still strange.
Thanks for the responses - it is reassuring when other folks with lyme experience the same wierd stuff!! - I must say I haven't had any really good days since starting 'amox' - I wonder if this is a good or bad sign? - I guess we all have so many questions - yet all we can do is wait and see - I have heard/read that many people don't get a lot of improvement untill well over a year on abx. - that seems quite daunting to me after only one month on continual abx.
I haven't noticed any 'triggers' although I think any stress - particularly what I would call 'little stressors' - seems to make me feel worse - just little irritating things rather than major stuff !!
an example would be a phone call from someone who is 'anxious' about something - it kind of takes me from a relaxed 'feeling o.k.' state to feeling 'yukkie' - I guess that it could be a 'sensory overload' sort of thing!!
like 'wonko' I can't handle stress/anxiety with the same ease that I used to - I guess knowing how 'bad' it can make us feel - causes us to become even more sensitive to it
I am going to have a 'epsom salts' bath later - I have been promising myself one for over a week - but end up having quick showers.
my facial skin has become covered in blocked pores [yuk] - like lots of little white bumps under the surface - I know it may seem trivial or vain but I have always had a good clear complextion - has anyone else noticed anything similar - or have any 'miracle' suggestions!! - my sister said 'it's probably age related' - that cheered me up so much!!!!
I don't think any of my family believe I have lyme - no one ever talks about it to me - except on the occasions that I have not been able to 'carry-on' as [almost] normal - even I get fed-up with hearing me say 'I feel ****' - so I guess it has become something they just expect me to say - but it goes over their heads - so I am becoming more and more alone in my world of 'this stuff' - being this new me is so 'odd'. it is almost like there is 'two of me' - if that makes sense.
take care 'all'
gorbsx
I haven't noticed any 'triggers' although I think any stress - particularly what I would call 'little stressors' - seems to make me feel worse - just little irritating things rather than major stuff !!
an example would be a phone call from someone who is 'anxious' about something - it kind of takes me from a relaxed 'feeling o.k.' state to feeling 'yukkie' - I guess that it could be a 'sensory overload' sort of thing!!
like 'wonko' I can't handle stress/anxiety with the same ease that I used to - I guess knowing how 'bad' it can make us feel - causes us to become even more sensitive to it
I am going to have a 'epsom salts' bath later - I have been promising myself one for over a week - but end up having quick showers.
my facial skin has become covered in blocked pores [yuk] - like lots of little white bumps under the surface - I know it may seem trivial or vain but I have always had a good clear complextion - has anyone else noticed anything similar - or have any 'miracle' suggestions!! - my sister said 'it's probably age related' - that cheered me up so much!!!!
I don't think any of my family believe I have lyme - no one ever talks about it to me - except on the occasions that I have not been able to 'carry-on' as [almost] normal - even I get fed-up with hearing me say 'I feel ****' - so I guess it has become something they just expect me to say - but it goes over their heads - so I am becoming more and more alone in my world of 'this stuff' - being this new me is so 'odd'. it is almost like there is 'two of me' - if that makes sense.
take care 'all'
gorbsx
Morning,
that sounds very familiar. I feel quite well for some days and then out of the blue, feel terrible and then about 30 minutes or so later, feel better.
The symptoms seem to vary daily and the pain is very migratory. Which can be very frustrtating.
that sounds very familiar. I feel quite well for some days and then out of the blue, feel terrible and then about 30 minutes or so later, feel better.
The symptoms seem to vary daily and the pain is very migratory. Which can be very frustrtating.
I would make sure these events are not triggered by an agent, such as a certain food. If not, it sounds like Lyme is just messing with you.
I noticed as time went by on abx, my stomach grew less tolerant of sugar and other foods, so sometimes I'd get really hit by symptoms after eating. Of course my medication schedule can also influence how I feel, and even supplements can set off some people. Temperature and exertion are other potential triggers, and of course STRESS and ANXIETY are huge. I find myself less able to handle emotional strains with the same ease as when I was well.
Between the bugs and drugs, it can be tough to decipher what's happening. Flares can be relatively mild or severe, brief or ongoing. Predictability is not a strong suit of Lyme! It bothers me a lot to not be able to schedule around my illness due to these hills and valleys.
I do my best to keep track of what stirs up my symptoms and triggers flares, but sometimes even on my "best behavior" I can get a sudden and intense yet brief attack such as you describe.
I noticed as time went by on abx, my stomach grew less tolerant of sugar and other foods, so sometimes I'd get really hit by symptoms after eating. Of course my medication schedule can also influence how I feel, and even supplements can set off some people. Temperature and exertion are other potential triggers, and of course STRESS and ANXIETY are huge. I find myself less able to handle emotional strains with the same ease as when I was well.
Between the bugs and drugs, it can be tough to decipher what's happening. Flares can be relatively mild or severe, brief or ongoing. Predictability is not a strong suit of Lyme! It bothers me a lot to not be able to schedule around my illness due to these hills and valleys.
I do my best to keep track of what stirs up my symptoms and triggers flares, but sometimes even on my "best behavior" I can get a sudden and intense yet brief attack such as you describe.
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