Greetings --
Until your post today, this thread had not had an update for almost five years, and I don't know if patsy10 is still checking the website. If she doesn't, you could try to reach her by private message through this website -- hover your mouse over her name where it says 'To: patsy10' and click 'send message'. A new message box will open up and you can send an email that the system will forward to Patsy. If she still has that email address, she will get the message.
In any event, others here may have some data for you as well.
All good wishes to you --
Did your sensations stop if so how
Yes I have this. There are comments about this on this link.
http://www.medhelp.org/posts/show/787844