yme Disease

[Brandi141]

I'm in Florida -- I was bitten in jungles of Mexico-- see the bump and rash a few weeks later and after that I been suffering from all these symptoms decribed in this forum. Took rash long time to go away as I remember first symptoms are high fever /achey /sleeping all the time . Then as disease progressed I get very dizzy and rooms spinning around and I thought it was a stroke. Then I think maybe kidney infection or Urine Infection. Neaver hear of Lyme and neaver associtated the bite at all.Someone says get checked for Lyme so I went to reg. Md and he does western blot--tests come back negative . Over course of 8 years I have had western blot and ELISE tests neg again so I give up thinking was all in my head . I get bad headaches which I took (self dosed) asperin and tylenol. Every day I wake up to this. New symptoms started to appear like arthritis in knees and then wrists--would spread to left then right. Then muscles are tender and I hurt just thinking maybe I bad flu which I didn't . Now because of headaches I had several MRI done which shows two leisons in front lobe and two in back In white matter. Now I was so dizzy and depressed also my cordination was off and balance. I could not figure out what was going on. I have memory problems and now short term memory loss like I have brain in fog --cannot consentrate /forget things all the time and it makes feel like I'm going crazy/twitching in my left eye and bridge of nose/seizures/incontenense( lack of bladder control/ panic attacks/ stomach problems/sensitivitty  to sound and light /left arm almost useless. They run tests galore from thryorid to Lupus to Ms . I see the bite I know what it looked like.Then all these symptoms started to appear a few weeks to a month after . I was riding horses In Mexico jungle. When my primary care doctors tells me "You can get Lyme anywhere". I did not know this. I even had a spinal tap--neaver want to get that ever again! All tests were negative . Now I developed a heart sac inflamation . This slow moving disease in some sense but fast in other areas seems to me. My joints are deteratoring--meanwhile I have had no treatment and it's been years. I don't know of any Lyme Doctors in Florida and I'm on medicaid which makes it worse. I know there is an answer out there I just don't know  from who--or what I should do next . I was 36 when I contracted this --now been several years and I'm still suffering terrible. I'm in a wheelchair now. I was having hopes on finishing college and getting either cirtified for Master Web Design and Firewall security. All that's destroyed. I don't know what to do --- I have Lyme Disease in what stage now I really don't know. I need someone to help me work through this if there is a chance I can get help as I don't to keep living like this. I was sent to this forum and some say on contact  a literate Lyme doctor--but how can I even hope to be treated when I don't know if they even take my kind of insurance? How do we write doctors and so on. It would be so great if some symptoms could be treated--and I could live somewhat normal life--I don't even remember what's its liketo be healthy again.         Thank You_Brandii

[GEORGIAJAYNE]

I know it has been a while since your post. I just wanted to atleast post and try to suggest some help for you. Alot of your symptoms sound like mine and I was diagnosed with neurological lyme disease. It is imperative that you find a doctor that is familiar with lyme disease. I have heard of a doctor in Tampa Florida. I don't know much about him I just saw him come up on a site before. Go to lymenet.org and register then go to (flash discussion) and then  go to (seeking a doctor). I hope that you find help. I know how it is to deal with such horrifying symptoms, especially when all of the doctors that you trust don't help. The problem is that most doctors don't have alot of knowledge about lyme so they blame symptoms on other more common illness, and that is also because lyme disease causes so many different symptoms that I would probably be stumped also if I was ignorant about the disease. Most doctors are not going to help you because the tests for lyme are extremely unreliable alot of people are suffering because of this. Alot of people with lyme have negative test results but are living with extreme symptoms. Please try to find a doctor that is lyme literate!
God bless you,

Jayne

[patsy10]

Go to lymenet dot org and post under seeking a doctor.  I'm so sorry for your illness.  I don't know if you have lyme but you sound very sick.

[sheepfarmer]

WOW!!, sorry to hear that.I don't know,someone will help you, im sure of it.
Good luck