LYMPHEDEMA COMMUNITY
Lymphedema - Why no Forum for this?

Lymphedema - Why no Forum for this?

I enrolled with medhelp.org, looking for information and possibly a support group for lymphedema but there isn't one here.  

There are posts I've looked at in this Forum where lymphedema is mentioned - but it seems to me that there needs to be a Forum specifically for lymphedema.  

There are many who know they have lymphedema and are living with it (in and out of treatment for it) - all kinds, more than that following breast cancer.  I attend a small lymphedema support group in the next town and there are people who have primary lymphedema and those who have lymphedema following surgery (breast cancer & other surgeries).  I had hoped to find a larger group here to supplement the exchanges we have in the local group.  

My Question:  How are Forums formed?  
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6 Comments Post a Comment
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492898_tn?1222247198
I don't know why medhelp has no Lymphedema Forum, but if you google for this, you will find places that do provide both information and support.
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962875_tn?1314213636
One Web site that might be helpful is lymphedemapeople.com
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25201_tn?1255584436
You might try (bcsupport.org) .... there are several sections on the left of the home page and the last one is "Lymphedema" ... this is a pt. to pt. discussion group and many of the women who post there have years of experience and are more than willing to share.     Regards ....
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739091_tn?1300669627
google lymphadema and they usually come up with .org sites :)

Did you know there is a surgeon in New Orleans taking lymphnodes from one part of the body and putting them elsewhere? Google Marga Massey and look at what she can do!!
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969286_tn?1253763991
Thanks, everyone!  I'll follow up on the suggestions made.  

Still think this site would be an excellent place for a Lymphedema forum...  
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739091_tn?1300669627
Yes it would make a great site for Lymphadema forums!

Moderators.... is this possible? :)
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