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undiagnosd seccondary lymphedema of the left leg
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undiagnosd seccondary lymphedema of the left leg

As of march 2004, i began developing a very mysterious case of Unilateral Lymphedema of my left leg.  The condition began without explanation, or provocation, that is, no DVT, no Lymphoma, it is unlikely that I am a carrier of the Filariasis Larvae, no family history, no trauma to the inguinal nodes, no infection, no pain, just edema.  The conditions spans from the rail of the inguinal nodes, to just above the inguinal nodes down to my ankle and toes.  Brfore this condition i was a very different person than i am today.  I hiked and went backcountry ski touring, rock climbed and rode mountain bike, i was an avid backpacker, and into orienteering throughout the mountain west, i dated beautiful and exciting girls, and was myself a very energetic leader, and an attractive man.  Now, just a few years later and only 26 years old, I lumber up a flight of stairs, have suffered through sweltering summers in long pants and compression garments, look physically monstrous without explanation, don't want to date, and basically wish to sleep as much as possible.  I am still a student at the university, and have very little money and cannot afford insurance. With the extensive futile medical diagnostics i have undergone, in conjunction with LE drainage therapy, i am deeply in debt and have no prospect of affording insurance in the future, given the status of my income and my shattered credit history given the medical pile up.  With all of these factors influencing my life so brutally, I am truly on the brink of suicide. I need to know for my life why I have Lymphedema?There is a cauz
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I had never heard of this until last night when I saw a special on television about it.  It can happen to anyone for any reason, even a bump on the leg.  It is when the bodies waist system breaks down and starts filling up like a clogged drain causing edema in the extremitites.  On the television show, the patient went to a hospital which specifically treats this problem and they drained the leg, used massage therapy and wrapped it in an ace bandage.  There is help, you need to find a place that can treat you and give you advice for future.  Hang in there
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Avatar_n_tn
Thelonius, can you give us an update on your condition? How are you doing?
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Avatar_n_tn
I have the same condition!  Two years ago my left leg swelled up from the knee down to the toes.  I have tried everything from lymphatic massage, to wrapping the leg at night, to specially made compression hose and nothing really makes a difference.  My right knee needed a total knee replacement and I was hoping once I got that done the strain of overcompensating on the left leg would make the swelling go away; but my surgery was done last July, my right leg is strong again, but the left leg is still swollen!  No apparent reason or cause.  It is not a blood clot, no veinous problems, doesn't even pain me - it's just an ugly swollen leg!  Can't seem to find a cause OR a cure!
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Avatar_f_tn
I have been so uncomfortable after having breast cancer and radiotherapy, I had lymph nodes removed, firstly I got a swollen painful arm, and now my leg/foot are extremely swollen.  I was fitted for a compression garment, but as I also have a bad knee to my right leg I find them so difficult to get on, and sweat buckets to achieve it.  Taking it off is even more of an issue, and I managed to get the thigh length stocking down to just below my knee, and then I was in agony as it was compressing my leg and it took me all my strength to get the thing off it was that painful I cried. I was next given knee length support which are somewhat  easier, but not really helped, I dont know about you but I get a pain almost like stinging nettlesin my foot  and its tender to touch my foot and leg,if the dog wags her tail and knocks it its painful,  I got bitten by a mosquitto last week and it got infected so Ive had a weeping swollen watery area.  Are there any support groups,clinics etc. and do GPs support lymphatic massage? didnt it work for you at all?  I just dont know what the answer is but am trying to find other sufferers.  Thanks Janice
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Hi, I feel your pain, stress, emotions and the uncomfortable stockings. I have lived with lymphedema since 1996. My right leg calf measures a whopping 32" while my left leg calf is only 14". I consider myself a "Freak of Life". I have excluded myself from society because of the embarrassment, the harsh, rude comments of uneducated strangers, the laughing, gawking, the take a second look-maybe three people who really have know idea how painfully they are destroying me. If you find out anything to relieve the swelling please include me in your miracle. Thank you. Also, I'm a great listener if you want to talk.
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Avatar_m_tn
i have lived with lymphedema for 48 years. doctors know little. primary lymphedema is getting attention only because of the high incidence of surgically induced lymphedema. i've been my own guinea pig over the years because i've gone through the same things you're experiencing: swelling, misshapen legs, small choice in shoes and unaffordable insurance. here are some things that have helped tremendously:
1. eat a HIGH roughage diet - 70%+ raw (salads, fruit, nuts, etc) - 70% of your immune system is in your intestines - avoid meat, prepared  foods, fast foods - they slow down your system and make swelling worse
2. avoid sugar and salt
3. drink water (alkaline is best. NO distilled water)
4. get a tiny book called "eat right 4 your blood type" and follow it (you can order from walmart.com for about $5) - you must know your blood type - works wonders
5. get your full 8 hours of sleep - less causes more swelling - your immune system needs it
6. learn self lymphatic massage and be faithful in wearing wraps and garments
7. be happy, negative emotions also aggravate the condition
8. use a handheld shower head with intense spray to clean "cracks & crevices" and dry thoroughly. use medicated lotion. i clean between toes, behind knees, belly button with swab and alcohol (you can try peroxide)
these things help when you can't afford $300 for treatments, wraps and massages. hope this helps. it's helped me.
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