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MSK (Medullary Sponge Kidney Disease) User Group
How close to research group are we?
About This Group:

This patient Support Group is for discussions relating to MSK (Medullary Sponge Kidney Disease). If you or somebody you know suffers from MSK, you've come to the right place to give, get, & share advice about this oftentimes painful, uncommon disease. WELCOME to our GROUP ~ We're Here to Help!

Founded by ChitChatNine on September 22, 2009
37 members
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How close to research group are we?

Hey all.  How close or where do we stand with the private research group?  I don't want to be left out.
Thanks! Jaim
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Honestly I sent out an e-mail to everyone who said they wanted to be a part and only
got a response from you and 2 others.  The next step I think that would be good would
be to have an online chat.  Through our other website I have access to set up a free
online chat.  We would sign up in advance and have a password so once we open the chat room you can enter easily..  

I would really like to some input on a good time to do this for all??  And to hear back from the few that have not contacted me, but if it is just us 3-4 that is OK too?

Shelly
Jaim, we can talk directly too if you want to help me get this thing rolling,!
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