263?1253617153
MSK (Medullary Sponge Kidney Disease) User Group
MSK RESEARCHER GROUP???
About This Group:

This patient Support Group is for discussions relating to MSK (Medullary Sponge Kidney Disease). If you or somebody you know suffers from MSK, you've come to the right place to give, get, & share advice about this oftentimes painful, uncommon disease. WELCOME to our GROUP ~ We're Here to Help!

Founded by ChitChatNine on September 22, 2009
38 members
Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

MSK RESEARCHER GROUP???

I just had an idea, esp with all our newbies.  

1.  How many would be interested in a private part of our forum for
us to discuss, list, share and compare research and info on MSK?  Maybe even more a of pro activist group to help get the word out etc.  I know with the holidays it will have to wait a while but this is just an idea and I'd like to see if anyone else is interested.

2.  Through our IC support website I have access to a private chat room... medhelp might have this also don't know
but how many would love to have an giant online MSK support meeting chat at some point?

  I just know with my IC groups we see forming, there is something so empowering of not only reading but talking to  others like you... and knowing I am not crazy, I am not alone and my pain is real!!  To hear someone voice the deepest sorrow in your heart as well!

Shelly
Related Discussions
2 Comments
Blank
1411302_tn?1333552561
i would luv to be a part of this i dont have much info but really want to learn and share with others
Blank
625490_tn?1318210149
I would love to compare notes and also share helpful info to hopefully help out other sufferers, I think its a great idea and that it would indeed be empowering, count me in!
Blank
Recent Activity
11218792_tn?1416615027
Blank
Kymberli84 added the Mood Tracker
Nov 21
11218792_tn?1416615027
Blank
Kymberli84 added the Mood Tracker
Nov 21
11218792_tn?1416615027
Blank
Kymberli84 is in PAIN,Depressed Comment
Nov 21
MedHelp Health Answers