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MSK (Medullary Sponge Kidney Disease) User Group
does this even sound like MSK or possibly misdiagnosed?
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This patient Support Group is for discussions relating to MSK (Medullary Sponge Kidney Disease). If you or somebody you know suffers from MSK, you've come to the right place to give, get, & share advice about this oftentimes painful, uncommon disease. WELCOME to our GROUP ~ We're Here to Help!

Founded by ChitChatNine on September 22, 2009
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does this even sound like MSK or possibly misdiagnosed?

Hello everyone! I am new to this site! I am 22 and I just found out last week that i may have MSK. I went to the doc and found out I had a uti with blood in my urine. A couple days later I had a persistant back pain (lower right of my back) and ended up going to the hospital. I had a CT scan and the doc said my kidney looked "unusual" and that they think it may be MSK. I don't have frequent UTI's nor have i had a kidney stone that I am aware of! I am really worried about this! I go to my family doc tmrw to discuss the findings of my CT scan. Did anyones symptoms start out this way?
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1531898_tn?1292259805
My symptoms started out the same way and that was over a year ago. It took my doctor 8 months to find anything wrong with me and last week I was diagnosed with MSK I have a severe UTI and Stones and the pain just keeps getting worse. It is better that you find out now so this can be prevented. Drink a crazy amount of water everyday thats my best advice for you. Hope that helps.
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489228_tn?1291535054
cb2010... I think though I miss you question here I answered in on the urology board.//
but I would get a copy of the radiologist report.  There are many who have said IVP is the standard for MSK diagnosis.  The nephro calcinosis shows up on a CT scan but the the IVP collecting duct issues.
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