About bicornuate uterus...

Hello, everyone.  This is more of a heads up than a question.  I just wanted to let everyone who has a bicornuate uterus that w/ uterine anomalies sometimes there are kidney anomalies.  There is a chance that you may only have one kidney.  I found out during a level 2 ultrasound when the person doing the U/S asked, "Did anyone ever check to see if you had both kidneys?".  She told me that uterine and kidney anomalies go hand in hand.  No one ever had checked, so she looked on both sides and I found out that I only have my right kidney.  This was confirmed by the attending physician.  Needless to say I was shocked.  I've been fine with the one kidney, but God forbid I should ever lose it...yikes!  I just want everyone to consult their physician about this.  It is very important!  Good luck to all.

Julie

[HopeinAl]

wow... did they jsut remove a bad kidney when you were a child or are you saying you were born without a kidney??? That would totally freak me out... i also have a bicornate uterus and i did have kidney trouble when i was small. i had a kidney reflux and i had surgery... i was also a bed wetter until i was in 6th or 7th grade. i spent my childhood covering that up. anyway,, do you have any kids?? I'm 12 weeks pregnant with my 6th... i miscarrried early on ... up till now. idid carry one to 19 weeks and his little heart jsut stopped beating. i don't know what cuased it.. i asume it had something to do with my uterus... but the funny thing is most Docs i have talked to say uterine anomolies don't neccessarily cause problems..they all differ and i get confused... i jsut simply prayed and asked god to please bless me with a child in spite of my uterus and i got pregnant with this almost immediatly.. my uterus is responding well  anyway thanks for the info.. and I'm glad to know you can make it with one kidney.. i bet you are too!!! Hope

[juliebird]

Hi, Hope.  In answer to your question...I was born with only one kidney.  Like I said I was really surprised to find out that I only had one.  I also thought it was a little sad that I had to find out from an ultrasound technician, rather than the physician who originally found out that I had a bicornuate uterus.  He should have told me that there was a possibility that b/c of the bicornuate uterus that I could also have kidney anomolies!  But he didn't.  And yes I am very glad that a person can thrive with only one kidney!

No, I don't have any children.  This will be my first and I've been so lucky not to have any miscarriages...Thank God!  At least none that I'm aware of.  They say that you can have a miscarriage very early in a pregnancy and never know it.  I just pray that my little one is healthy and happy.  

Sorry to hear about all of your troubles.  I wish you the best of luck with this pregnancy!

Julie

[Micaela]

Hi, I also have bicornuate uterus, and God has also blessed me with only one kidney. I found them on my teen age years when I was suffering a urinary tract infection. And under an ultrasound, they failed to locate my right kidney. Right now I am living for 27 years and still kicking. Knowing these abnormalities, I am really careful of my only kidney. My abnormalities, kidney and uterus, are always the reason for me to go the hospital and see the doctor. Worse, ther are exclusions from my healtcare card. So I have to shell out my own money for all the expenses related to them.  

I suffer dysmenorrhea from time to time , and lately, I had a prolong bleeding. I checked with the OB and she said I am having hormonal abnormalities, the culprit. I am under medication, on my 4th month taking pills in order to regulate the menstrual cycle. We tried to stop it on the 3rd month but my system failed to recognize the pill's activity on my cycle. So here I am going back to square one.

To think I am still single. Its hard to feel this way, I am dreaming of having kids but I cannot manage to convince myself to see it differently. I am doubting my own body.

Knowing that I have problems the same with you make me feel that I am not alone. Thanks for sharing your own baggages, at least I have something to look forward to. Knowing GOD's blessings you receive gives me the comfort and the hope I am needing. =)

[Micaela]

Hi, I also have bicornuate uterus, and God has also blessed me with only one kidney. I found them on my teen age years when I was suffering a urinary tract infection. And under an ultrasound, they failed to locate my right kidney. Right now I am living for 27 years and still kicking. Knowing these abnormalities, I am really careful of my only kidney. My abnormalities, kidney and uterus, are always the reason for me to go the hospital and see the doctor. Worse, ther are exclusions from my healtcare card. So I have to shell out my own money for all the expenses related to them.  

I suffer dysmenorrhea from time to time , and lately, I had a prolong bleeding. I checked with the OB and she said I am having hormonal abnormalities, the culprit. I am under medication, on my 4th month taking pills in order to regulate the menstrual cycle. We tried to stop it on the 3rd month but my system failed to recognize the pill's activity on my cycle. So here I am going back to square one.

To think I am still single. Its hard to feel this way, I am dreaming of having kids but I cannot manage to convince myself to see it differently. I am doubting my own body.

Knowing that I have problems the same with you make me feel that I am not alone. Thanks for sharing your own baggages, at least I have something to look forward to. Knowing GOD's blessings you receive gives me the comfort and the hope I am needing. =)

[fortyplus]

It is truly a very weird to thing to discover at 40+ when you are attempting pregnancy.  I too recenlty learned of a unicorniate uterus, dysfunctional (undeveloped) left fallopian tube, and missing left kidney when undergoing testing. Fortunately, both ovaries function, though to get pregnant (naturally) we'd need to depend on right side ovulation.  Funny enough, U/S & MRI pictures don't tell the whole story, after a laparoscopy & hysteroscopy (to remove a large uterine polyp), my new OB/G concluded that my uterus actually had a small protruding left horn, so he declared it bicornate. Irregardless of medical definition, he felt we could still get preg, but would need to go IUI / IVF.  The information I found on the uterine congenital BD was referred to as a "Mullarian Anomaly". Further research led to info on women with this same genetic defect as being potentially caused by DES, if their mothers were given DES during pregnancy. If you apply a bit of theory, it could hold true that DES could impact the very egg follicle that would eventually become you, because at the DNA/cellular level, there is no discrimination of negative impact of drugs on the body/cells. I found my own mother to have been given DES during her pregnancy with my sister, 1 1/2 years prior to my arrival in this world.  Still bazaar news to hear at any point in life.  I am without doubt far more aware of my one kidney, and am glad to say I am not a drinker, maybe subconsciously my kidney was telling me something.  

Ah, but getting preg? Fortunately, I do ovulate regular cycles and have great hormone levels for someone my age, I consider myself lucky in that respect. When we stated basic hormone blood tests and found we were not getting preg after 6+ mos, we then, tested and discovered my husband had a few minor morphology issues of his own.... So, all this news decidedly left our family planning in the hands of fertility specialist.   We are undergoing our first IVF after 5 IUI attempts.  It's been close to 2 years.  

I can only say to all women, please always ask questions, push for answers and demand diagnostic testing (our original OB/G did not even think I needed a HSG (dye test) after 6 + mo of no luck).  Once we saw my left tube was blocked/not working, test after test, and a new OB/G finally gave us a clear image of where we are, 2 years later now trying IVF.  Certainly we wasted much valuable time in getting to this point, but we learned much along the way.

Good luck to all of you with your life's endeavors, please take care of yourselves.  :~)

[coqui]

Congratulations to you both on your pregnancies.  I too have a bicornuate uterus which was discovered when I was 8 weeks pregnant.  Prior to that I had 2 miscarriages and never knew about my condition. During my 8th week of my pregnancy I started bleeding and clotting, my husband and I thought for sure I was having another miscarriage.  After an ultrasound confirmed I was still pregnant, my doctor did a series of tests which revealed my problem.  I had never heard of this condition before. My doctor told me in my case the membrane that divides my uterus almost completely divides it into two.  So joy of joys was I still pregnant. However, the other 1\2 of my uterus, acted as if I were not pregnant at all and was menstruating (and continued through out my pregnancy).  In my case even though I don't have a complete division making me have two uterus', each of my halves seem to act independently from each other. Which now explains why as a teenager I had to be put on birth control pills to regulate my cycle. I sometimes could go a whole month menstruating.
Our condition does make pregnancy a little more challenging.  After a period of time (in my case the 5th month) there isn't alot of room for the baby, so things get uncomfortable.  Once I was diagnosed, my doctor told me I was pretty certain to require a c-section because the baby would most likely be breech.  After a certain point baby can't turn around and pretty much stays in a certain position. The baby only has 1/2 the amount of space he should.  My doctor told me that a high percentage of babys are lower birth weights and are harder to carry to term.  His comment to me was we'd be lucky if he was able to get to 6lbs.  Well I always love to beat the odds.  I am happy to say despite two preterm labor scares, I now have a healthy robust 10 year old.  He was born at 37 weeks by c-section (he was breech) and weighed in at 8lbs 13oz. I was ready to have him out!-but it was all worth it. My doctor said he was one for the records. So ladies stay strong, take extra care of yourselves and try not to stress.  We can become moms and enjoy God's blessing.
P.S I have never had kidney problems, but at my next physical I'm definitely going to inquire to see if I have two.
Take Care!!

[coqui]

Congratulations to you both on your pregnancies.  I too have a bicornuate uterus which was discovered when I was 8 weeks pregnant.  Prior to that I had 2 miscarriages and never knew about my condition. During my 8th week of my pregnancy I started bleeding and clotting, my husband and I thought for sure I was having another miscarriage.  After an ultrasound confirmed I was still pregnant, my doctor did a series of tests which revealed my problem.  I had never heard of this condition before. My doctor told me in my case the membrane that divides my uterus almost completely divides it into two.  So joy of joys was I still pregnant. However, the other 1\2 of my uterus, acted as if I were not pregnant at all and was menstruating (and continued through out my pregnancy).  In my case even though I don't have a complete division making me have two uterus', each of my halves seem to act independently from each other. Which now explains why as a teenager I had to be put on birth control pills to regulate my cycle. I sometimes could go a whole month menstruating.
Our condition does make pregnancy a little more challenging.  After a period of time (in my case the 5th month) there isn't alot of room for the baby, so things get uncomfortable.  Once I was diagnosed, my doctor told me I was pretty certain to require a c-section because the baby would most likely be breech.  After a certain point baby can't turn around and pretty much stays in a certain position. The baby only has 1/2 the amount of space he should.  My doctor told me that a high percentage of babys are lower birth weights and are harder to carry to term.  His comment to me was we'd be lucky if he was able to get to 6lbs.  Well I always love to beat the odds.  I am happy to say despite two preterm labor scares, I now have a healthy robust 10 year old.  He was born at 37 weeks by c-section (he was breech) and weighed in at 8lbs 13oz. I was ready to have him out!-but it was all worth it. My doctor said he was one for the records. So ladies stay strong, take extra care of yourselves and try not to stress.  We can become moms and enjoy God's blessing.
P.S I have never had kidney problems, but at my next physical I'm definitely going to inquire to see if I have two.
Take Care!!

[Adelia]

Hi all:
I too have a severe bicornuate uterus which was diagnosed early 1996. At that time, I did not realize what would be the impact and my doctor did not alert me of anything that could wrong!!!
Today, after 1 year,I was not even able to conceive so have no idea what are the feelings of being pregnant. I am concerned. My doctor said that I should keep trying and if nothing comes out, he will try an insemination. Worried, I checked with another OB for a 2nd opinion and this one is telling me now I should do a surgery to fix my BU. I am very confused because my regular doctor had initially excluded such option saying it was of a high risk: the division is too deep and within a large space so he said it will impact seriously the uterus. 15 months we have been trying and I don't know what to do /think of it. I am so desesperate that it is hard. My husband and I are now after 2 years of marriage confronting tense in our sexual relation...mentally we are thinking of the baby we would like to have. We should stop think of it of course but it is often beyond us and things are becoming difficult for me. And surely to him as well. Please, advise us: do you think it is worth going through the surgery??? For those of you who have been pregnant how lond did you wait for??? I am scared...i see our relationship escalating into problems... thank you all for your support.

[LADYAPRIL]

HELLO EVERYONE,
      I TOO LIKE THE REST OF YOU HAVE A BICORNATE UTERUS. I HAVE ONE LARGE RIGHT KIDNEY AND NO LEFT. I HAVE SUFFERED FROM TWO MISCARRIAGES ONE IN 2001 AND THE OTHER IN 2002. BOTH MISCARRIAGES PRETTY MUCH HAPPENED THE SAME WAY. I CARRIED TO ABOUT 8 WEEKS THEN I STARTED BLEEDING, CLOTTING, AND CRAMPING. IT IS THE WORST FEELING IVE EVER ENDURED. SINCE MY LAST D&C IVE HAD IRREGULAR PERIODS. SOME MONTHS I WOULD GET A NORMAL PERIOD, OTHER TIMES NO PERIOD AT ALL AT NOW I BLEEDING AND WON'T STOP. MY DRS SAY I SHOULDN'T HAVE A PROBLEM GETTING PREGNANT BUT NOW IM TO THE POINT WHWERE IM SCARED. SCARED THAT I WONT GET PREGNANT AND OR IF I DO I WON'T CARRY TO FULL TERM. ITS SO NICE TO TALK WITH OTHERS WHO ARE GOING THROUGH THE SAME THING. KEEP ON WRITING EVERYONE!

[foreverhopeful]

Hello Everyone,

In 1994 I was diagnosed as having a bicornuate uterus after experiencing my first miscarriage.  Ten years later and two more miscarriages I finally opted for thorough testing with a local organisation called the miscarriage centre.  Three ultrasounds performed by different technicians produced different opinions, it's bicornuate, no its septated no it's bicornuate.  Interestingly during one of these procedures one technician commented that  uterine anomolies often affect kidneys.  Although we never looked further after hearing all your comments I would be very intrigued to check that one out.  As for my uterus it was only after having a hysteroscopic laparoscopy that a physician finally comfirmed I have a septated uterus.  Apparently unlike our friend the bicornuate uterus this is the worst kind to have and has been known to cause early miscarriage.  After this diagnosis I didn't know whether to laugh because they had the correct diagnosis or cry because it was the worst kind.  Quite frankly I don't believe there is a worse kind, reading your comments I think we have all shared pain through miscarriage, irregular bleeding or infertility.  In some ways I was happy to hear there may have actually been a reason why my body rejected the foetus.  As it turns out there is a procedure where they cut the septum known as a hsteroscopic septoplasty.  Most women who have had this procedure have a high success rate of full term pregnancy.  I am due to have this done next Thursday.  Initially it took me a while to come to terms with someone cutting into an area of my body I consider very sacred, however after much discussion with our specialist  I realise this is the way to go.  I am now very excited and have high hopes for the future.  One thing I didn't mention is that I also have polyscystic ovaries and will have to deal with this at some point but I guess it's one hurdle at a time.

Thank you for all your stories, I wish you all well for the future and to those lovely ladies currently pregnant my prayers are with you.  

Regards Jen

[foreverhopeful]

Hello Everyone,

In 1994 I was diagnosed as having a bicornuate uterus after experiencing my first miscarriage.  Ten years later and two more miscarriages I finally opted for thorough testing with a local organisation called the miscarriage centre.  Three ultrasounds performed by different technicians produced different opinions, it's bicornuate, no its septated no it's bicornuate.  Interestingly during one of these procedures one technician commented that  uterine anomolies often affect kidneys.  Although we never looked further after hearing all your comments I would be very intrigued to check that one out.  As for my uterus it was only after having a hysteroscopic laparoscopy that a physician finally comfirmed I have a septated uterus.  Apparently unlike our friend the bicornuate uterus this is the worst kind to have and has been known to cause early miscarriage.  After this diagnosis I didn't know whether to laugh because they had the correct diagnosis or cry because it was the worst kind.  Quite frankly I don't believe there is a worse kind, reading your comments I think we have all shared pain through miscarriage, irregular bleeding or infertility.  In some ways I was happy to hear there may have actually been a reason why my body rejected the foetus.  As it turns out there is a procedure where they cut the septum known as a hsteroscopic septoplasty.  Most women who have had this procedure have a high success rate of full term pregnancy.  I am due to have this done next Thursday.  Initially it took me a while to come to terms with someone cutting into an area of my body I consider very sacred, however after much discussion with our specialist  I realise this is the way to go.  I am now very excited and have high hopes for the future.  One thing I didn't mention is that I also have polyscystic ovaries and will have to deal with this at some point but I guess it's one hurdle at a time.

Thank you for all your stories, I wish you all well for the future and to those lovely ladies currently pregnant my prayers are with you.  

Regards Jen

[foreverhopeful]

Hello Everyone,

In 1994 I was diagnosed as having a bicornuate uterus after experiencing my first miscarriage.  Ten years later and two more miscarriages I finally opted for thorough testing with a local organisation called the miscarriage centre.  Three ultrasounds performed by different technicians produced different opinions, it's bicornuate, no its septated no it's bicornuate.  Interestingly during one of these procedures one technician commented that  uterine anomolies often affect kidneys.  Although we never looked further after hearing all your comments I would be very intrigued to check that one out.  As for my uterus it was only after having a hysteroscopic laparoscopy that a physician finally comfirmed I have a septated uterus.  Apparently unlike our friend the bicornuate uterus this is the worst kind to have and has been known to cause early miscarriage.  After this diagnosis I didn't know whether to laugh because they had the correct diagnosis or cry because it was the worst kind.  Quite frankly I don't believe there is a worse kind, reading your comments I think we have all shared pain through miscarriage, irregular bleeding or infertility.  In some ways I was happy to hear there may have actually been a reason why my body rejected the foetus.  As it turns out there is a procedure where they cut the septum known as a hsteroscopic septoplasty.  Most women who have had this procedure have a high success rate of full term pregnancy.  I am due to have this done next Thursday.  Initially it took me a while to come to terms with someone cutting into an area of my body I consider very sacred, however after much discussion with our specialist  I realise this is the way to go.  I am now very excited and have high hopes for the future.  One thing I didn't mention is that I also have polyscystic ovaries and will have to deal with this at some point but I guess it's one hurdle at a time.

Thank you for all your stories, I wish you all well for the future and to those lovely ladies currently pregnant my prayers are with you.  

Regards Jen

[Amaleesmum]

I am blown away about the bicornuate uterus and kidney anomilies being related.
I always had trouble with my kidneys as a child...one being much larger than the other..and the smaller one suspected to not function at all...
i was diagnosed with a bicornuate uterus when i was 18...purely by chance...i was having an u/s and they did a quick look at the uterus...thus finding a bicornuate one. well anyway..wante to put my two cents in..

[robinlynn81]

Hello,
       I just found out in November of 2003 that i have a bicornuate uterus. i suffered from a miscarrige in November which is how i found out about the condtion. I am now pregnant again I'm 18 weeks along. I have been have a reaccuring bladder infection and I am worried that it could be associated with a problem with my kidneys. I am not sure if my OB doctor will have it checked out once I tell her that these two have been linked. Should I go see a urologist?
Robin

[curline]

Hi Everyone,
One thing I know for sure is that I am really happy that I am not unique in the fact that I have a bicornuate uterus. I have had a few miscarriages and only one live birth, my daughter is 13 this year. My only concern is that I am now a newly wed and we would like to have a child but it seems a bit hard. Also myself and my doctor believe that I recently have another miscarriage. We are not financially able to go through all these fertility tests so we are just praying and believing God for our baby. The next thing is that I have never heard of the connection between bicornuates and kidney problems so I will have to check into that also. The only problem I have with my kidneys is that some times for a whole month I would urinate so frequently and urgently that I even wet myself at times. I am only 36yrs.
I will keep all you in my prayers and hope that we all will get the desire of our heart....a beautiful baby. by the way I hope a bicornuate who has carried multiple births to full term would write because my husband is a twin and twins run in his family.

[whitehart181]

I have just been diagnosed with a small cyst on my left ovary. While undergoing the scan the doctor found that I have a bicornuate uterus. Ihave already had my right tube and ovary removed, have no children, but would like too. The doctor does not want to remove the cyst as the adhesions from the op could  reduce the chance of pregnancy but also the bicorn uterus can result in miscarriage anyway. Has anyone else been in the same situation & what did you do.

[nursercb]

Hello all.  I was just given the news about my infertility problem. It turned out to be BC.  I have tried for 3 years and as far as I know have never been pregnant.  My husband has 2 children from a previous marriage and thinks he understands what I am going through.  I can't seem to get him to understand its not quite the same.  I have read your other comments and am trying to remain hopeful.  I start on clomid tomorrow and have my dye test next week so maybe we will have some definite answers soon.  My entire life has been lived waiting for this moment( to get married and have children).  I just hope and pray this is God's will.  Both my younger brother and younger sister have children and it has been a great struggle to be happy for them at the same time it is so painful for me.  Lots of prayers are being said for me and all of us where infertility is concerned.  I am very grateful for this site.  I feel a heavy burden being lifted off my shoulders just by reading your comments.  Thanks for being there.

[PJ71]

Hello everyone!  I also have only one kidney and I had a bicornuate uterus when I was 12.  However, it ruptured causing internal bleeding and endometriosis.  The doctors had to do plastic surgery to resconstruct my uterus.  I have never had endometriosis again and I have been to my OBGYN every year since the surgery.  It is a bit unnerving though because my husband and I have been married for one year.  we are ready to start trying to have kids but I am scared to death.  My lower abdomen is fairly numb and I worry if this is because of scar tissue in my uterine cavity.  I want children so bad and I guess all we can do is pray our dreams will come true.  I just know that scar tissue can prevent a successful pregnancy as well as possible other complications from all of the intense surgery.  has anyone else ever had this type of surgery? How long agao and were you able to have children?  I really am trying to be hopeful!

[Tay bean]

Hi I am 13 years old and found out i have a bicornuate uterus!   I have always been sick as a child as far as having asthma, seasonal allergys (allergies), bronchial problems, and sleep problems and now I have a bicornuate uterus.   Is this going to affect any thing else on me?    I really need help!  I am not planning on having kids any ways but I was just wondering if this could affect my kidneys or anything?   any help would be wonderful


        Thanks, Taylor

[Tay bean]

Hi I am 13 years old and found out i have a bicornuate uterus!   I have always been sick as a child as far as having asthma, seasonal allergys (allergies), bronchial problems, and sleep problems and now I have a bicornuate uterus.   Is this going to affect any thing else on me?    I really need help!  I am not planning on having kids any ways but I was just wondering if this could affect my kidneys or anything?   any help would be wonderful


        Thanks, Taylor

[Tay bean]

Hi I found out i have a bicornuate uterus!   I have always been sick as a child as far as having asthma, seasonal allergys (allergies), bronchial problems, and sleep problems and now I have a bicornuate uterus.   Is this going to affect any thing else on me?    I really need help!  I am not planning on having kids any ways but I was just wondering if this could affect my kidneys or anything?   any help would be wonderful


        Thanks, Taylor

[Tay bean]

Hi I found out i have a bicornuate uterus!   I have always been sick as a child as far as having asthma, seasonal allergys (allergies), bronchial problems, and sleep problems and now I have a bicornuate uterus.   Is this going to affect any thing else on me?    I really need help!  I am not planning on having kids any ways but I was just wondering if this could affect my kidneys or anything?   any help would be wonderful


        Thanks, Taylor

[Tay bean]

Hi I found out i have a bicornuate uterus!   I have always been sick as a child as far as having asthma, seasonal allergys (allergies), bronchial problems, and sleep problems and now I have a bicornuate uterus.   Is this going to affect any thing else on me?    I really need help!  I am not planning on having kids any ways but I was just wondering if this could affect my kidneys or anything?   any help would be wonderful


        Thanks, Taylor

[Tay bean]

Hi I found out i have a bicornuate uterus!   I have always been sick as a child as far as having asthma, seasonal allergys (allergies), bronchial problems, and sleep problems and now I have a bicornuate uterus.   Is this going to affect any thing else on me?    I really need help!  I am not planning on having kids any ways but I was just wondering if this could affect my kidneys or anything?   any help would be wonderful


        Thanks, Taylor

[belinha]

I was diagnosed with a Bicornuate Uterus when I was 7 weeks pregnant.  I am almost 33 weeks pregnant and I had the perfect pregnancy so far.  My baby boy is not even breeched anymore and I am planning to have a natural delivery.  I was really scare when I found out about this anomaly, however, my body and positive attitude has proved that you can have a normal pregnancy with a Bicornuate uterus.  I am glad that I did not know about this condition before I got pregnant and I truly believe that it was the reason I got pregnant so easy.  Keep the positive attitude and everything will be fine.  I still have 7 weeks to go, but my doctor is very confident that everything will be just fine.

[sylievanna]

I have just been told I have a bicornuate uterus also. I am going to be 35 this fall and my husband and I have just recently decided to start trying to have a baby (only 3 months trying). We both though it would happen right away - pretty naive I guess. My mom and two sisters didn't have any problems conceiving so I just thought I wouldn't either. Plus two of my friends and both my sisters in law became pregnant as soon as they started trying so I have been feeling kind of down. I decided to start checking myself out and was surprised to discover the bicornuate uterus - especially since I had an ultrasound at age 26 for an ovarian cyst and they didn't say anything about it then. If I had known earlier I probaby would have started trying to have a baby earlier as I have been with my spouse for 13 years - but I guess I should have pursued my fertility situation myself earlier.
I've been on the pill since the age of 12 because of debilitating menstrual cramps, save for one year in my twenties until they returned again (the only thing they could do with me is give me Demerol - nothing else worked) but they haven't returned since I've been off this time. I am going for an HSG in the next few weeks and hopefully that will uncover that I only have a mild form of this abnormality. I am glad to know about this beforehand though so that I can be prepared if anything should go wrong during my (hopefully) pregnancy. I am hoping that my body is still adjusting it's hormones to being off the pill and that I will be pregnant soon. Belinha I was so happy to hear your positive comments - so much out there about this condition is negative. Thanks. I hope more women with successful pregnancies with bicornuate uterus will publicize thier stories too.
Sylievanna

[5prayer]

I was diagnosed w/ kidney problems about 8 years ago and last year I discovered that I had a septate uterus (similar to bicornuate) my doctors also told me that the two are related.  They explained that during gestation when the mesoderm layer if forming the two symmetrical sides of your kidneys and reproductive organs a defect occurs which leads to both uterine and kidney abnormalities.  Hope this helps all w/ similar diagnosis.  Fortunately for me, I was a candidate for surgical repair and am now 10 mo post op and 5 weeeks pregnant.  Very hopeful.. good luck

[suemor]

In January 96 I went for my ultrasound and discovered that the fetus was in the rudementary horn.  I was sent to a hospital a few hours away where I was checked and tested. I was informed that If I continued to carry the baby there could be a rupture as the baby grew. I had to terminated the pregnancy. I was able to get pregnant 2 years later with just one tube. I have had to have c-sections for all my births because they were transverse.  I did not know that I had a bicornuate uterus until my 2nd pregnancy. The doctor I had for my first baby did not tell me. Is there anyone out there that has been able to deliver when the baby was in the horn?  Sue

[bridgey1128]

I was wondering. My mother in law had a bicornuate uterus and didn't realize it until after my husband's bother was born in the 70's. She also had several miscarriages. I am not sure of the extent of her condition but I was wondering if it was genetic. Also, I find the fact that women have either a missing kidney or kidney problems. My niece will be 5 in Nov and has had kidney problems since she was a baby. I am assuming that they would have never checked for a bicornuate uterus, considering her age, but I do not know if they did an ultrasound to check and see if she had both kidneys. She was on antibiotics for an entire year because of her kidney problems. I also have a daughter who is 3 1/2 and I was worried that this was a genetic disorder. Just trying to put two and two together.

[stinasmom]

No, not genetic, just a deformity of the uterus.

[featherstar]

hello everyone. fisrt i would like to appoligize for any mis spellings i may have in this note. spelling is not one of my stronger sides. i also have to say how very happy i am to have found a web site like this one, were i get to hear so many other stories that relate to mine. also i would like to thank Behinha for your possitive message and hope that there are many more positive stories out there. and i would like to thank Coqui, as your message particually touched me as it is so very close to what i am going through this very momont. i am 20 years old, married and very much so would love to have a child. i have had two miscariages this year and i am now on my third preganacy (pregnancy). the doctors found that i have a bicornuate uterus directly after my first miscariage with a simple vaginal ultrasound. i lost my first 2 within the 4-6 week period. i am currently on my 3rd pergancy and i am 10 1/2 weeks. i found out i was pergant at 6 weeks which was also the exact time that i started spotting for the first time. which ofcourse my husband and i both assumed i was having another misscariage. when i went to see my ob/gyn i was amazed when they took the vaginal ultrasound and found a heart beat. (this is the first time we have even had a heart beat!) i continued to spot every week one to three days a week for the continuing three weeks. then at 9 1/2 weeks i started bleeding very heavyly. again i thought i was having a miscairge and went to the er. the doc at the er just checked my cervix, said it was closed and sent me home. the following day i visited my ob and we did an ultrasound which still showed a lovely heart beat. like i said earlier i am now 10 1/2 weeks and i im still going back in forth from bleeding heavy to spotting, but so far everything seems to be going well with the baby. well i do not mean to jeber jaber so much, but it was wonderful hearing coqui's story, it filled my heart with so mush joy. so now i can just keep hoping and praying that everything keeps going well. bless all of you and thank you all for taking your time to share your stories. good luck to everyone of you!

[featherstar]

hello everyone. fisrt i would like to appoligize for any mis spellings i may have in this note. spelling is not one of my stronger sides. i also have to say how very happy i am to have found a web site like this one, were i get to hear so many other stories that relate to mine. also i would like to thank Behinha for your possitive message and hope that there are many more positive stories out there. and i would like to thank Coqui, as your message particually touched me as it is so very close to what i am going through this very momont. i am 20 years old, married and very much so would love to have a child. i have had two miscariages this year and i am now on my third preganacy (pregnancy). the doctors found that i have a bicornuate uterus directly after my first miscariage with a simple vaginal ultrasound. i lost my first 2 within the 4-6 week period. i am currently on my 3rd pergancy and i am 10 1/2 weeks. i found out i was pergant at 6 weeks which was also the exact time that i started spotting for the first time. which ofcourse my husband and i both assumed i was having another misscariage. when i went to see my ob/gyn i was amazed when they took the vaginal ultrasound and found a heart beat. (this is the first time we have even had a heart beat!) i continued to spot every week one to three days a week for the continuing three weeks. then at 9 1/2 weeks i started bleeding very heavyly. again i thought i was having a miscairge and went to the er. the doc at the er just checked my cervix, said it was closed and sent me home. the following day i visited my ob and we did an ultrasound which still showed a lovely heart beat. like i said earlier i am now 10 1/2 weeks and i im still going back in forth from bleeding heavy to spotting, but so far everything seems to be going well with the baby. well i do not mean to jeber jaber so much, but it was wonderful hearing coqui's story, it filled my heart with so mush joy. so now i can just keep hoping and praying that everything keeps going well. bless all of you and thank you all for taking your time to share your stories. good luck to everyone of you!

[KellieT]

I'm not sure how I wandered onto this site - but WOW! I was diagnosed as having a bicornuate uterus after my first miscarriage at the age of 21. I was told by my physician that I would NEVER have children, and if I got pregnant again I would miscarry before term. After a second miscarriage I became pregnant for the third time. This time, even after 5 months of complete bedrest, I proved that doctor wrong! I delivered a baby girl in Oct. of 1988. She was born with a dislocated knee, so she was in a cast for a while (they blamed this on her not having enough room). But besides that, she was perfectly healthy and just turned 16 last Sunday.
I waited 12 years before even attempting to go through it again. I got pregnant after 1 month of trying, and had a perfectly normal pregnancy. No bed rest this time at all! I delivered another baby girl in April of 2000. Perfectly normal and healthy.
So for those of you who have been told you can't have a normal pregnancy - sometimes we can prove them wrong.
As far as the kidney problems, I have never had any, but I will definitly be getting checked at my next physical.
Thanks for all the info. and good luck to everyone!

[ToriRae]

Hi- I was diagnosed with endometriosis and a bicornuate uterus at 14. I'm now 23...and 8 weeks pregnant- and I have had one previous miscarriage about a year and a half ago. I started having some problems last week- woke up to some blood that was fairly bright. I went in to the dr (family one as I hadn't started seeing my ob- my 1st appt is this next Thursday actually) where they did a urine test (positive) and lab work (came back positive with normal levels), and then they did a songram as well- I wasn't having any cramping...just the bleeding, which was slowing and becoming more of a brownish than red as the day wore on. In the sonogram, we discovered that the baby is in the left horn- he/she was alive and well there...got to hear the heartbeat and everything then too. It seemed there was a place where the placenta has attached that had gotten a small tear started and they thought that was causing the bleeding- so they want me on bed rest so it will go ahead and heal over properly. However, the also saw what the ultrasound tech described as "junk" in my right horn. It's appearing to be pretty full- though of what they couldn't be sure. The dr said it could be that the right side "thinks it needs to be pregnant too" and its an over abundance of growth in the lining...but they can't be sure- so my appt for the ob was moved to next Thursday so they can give me more/better information as far as that goes. I had heard of some people having what was like a regular period- only just from the one side (thus being my right side...) and still carrying the baby to term sucessfully. However, my dr said she didn't see how that was possible. Have any of you had that experience? I keep having bleeding issues- after my episode last week and the appt, it has been little amounts and farily dark brown- but I have some occasions where there are a few drops of brighter red blood when I go to the bathroom (never enough to soak a pad or liner or anything...)but it subsides from there and goes back to the dark brown. I'm just wondering if any of you have had similar experiences and carried and delivered a healthy baby? I'm very worried about miscarrying. Thanks!
Tori

[SarahPear]

Hi,

I am glad to come across this line of posts. I was told after a vaginal ultra sound at 6.5 weeks pregnant, that I have a bicornuate uterus. I had some mild spotting and went in for the ultra sound. At an appointment at 8 weeks my doctor ordered a ultrasound for 10 weeks to learn more about what exactly was going on with my uterus and had said he was glad they found it early so they can more closely monitor me. He said they would be able to tell then what side the baby was on. At this 10 week appointment I saw a different doctor in the practice and he had no new information for me. It was almost like there was no reason for the ultrasound at all. He said the technician had nothing for him in the chart. I actually was the one that brought up my bicornuate uterus at the appointment when it seemed he was ready to send me home without even mentioning it. He set me up to come back in four weeks at 14 weeks and said my next ultrasound will be four weeks after that at 18 weeks. Does this seem like sufficient monitoring to you all? For those of you who did have a baby with a bicornuate uterus how frequently were you monitored in your early pregnancies? I feel like this issue is being ignored as I am on a regular every four week schedule which is what they lay out for normal pregnancies. They tell me at 6 weeks I have this abnormality with only a 60% success rate and pretty much sent me on my way to worry. Any thoughts or help? Thanks so much.

Sarah

[mari-p]

I think I was ignored with my 2nd pregnancy after being diagnosed with a bicorn uterus. I had actually started cramping at 8 weeks and I went into the ER and then was diagnosed and when I got back to my doctor the next day he told me that my pregnancy was a high pregnancy and that he was going to send me to another doctor that could attend me better. He was a good doctor but I still felt he ignored a lot of my pregnancy. I gained 98 pounds and he did not tell me anything about it. Even I know that is not healthy, but I think I was just retaining the weight. I never asked. My baby was premature and I needed a c-section on me because he was breach. I was treated like a normal pregnancy also went every month had only one ultrasound because my husband requested at 28 weeks. My third pregnacy was not successful because I think I was ignored. I thought by changing doctors I would get more attention, but I was wrong. I had informed her that I was spotting but she had told me that it could be of intercourse I left it like that. I carried until 13 weeks and bleed for 1 week and then I went to the ER. The doctor decided that I should a D&C. Which was performed because my baby had no heartbeat. Now my doctor has informed me that she would like to do a MRI on my uterus to see if she could fix it. I am excited for that. I think I am going to do my own research and ask lot's of questions from now on. For example I did not know that having a bicorn uterus could relate to having one or just having one kidney that functions correctly. I will be asking my doctor that because she or any other doctor has informed me about that and I have seen alot of doctors.

[saraelizabeth]

First of all, Merry Christmas to everyone and please know that you have someone in Texas praying for all of you - you have all touched my heart and I am sitting here blubbering like a baby after reading all of your comments. I felt really alone when I found out about my bicornuate uterus this August. I am 28 and have been married 4 1/2 yrs. My husband and I never used birth control because I have always had irregular periods and was told at my first pelvic exam at age 17 that I would probably have a hard time getting pregnant. I had all but given up and when I popped up pregnant in Aug. (I had not had any fertility treatment whatsoever, but had lost 55 lbs.) We had been praying consistently for this child and since my name is Sara Elizabeth (the two women in the bible that were blessed by God with children when they thought it was impossible) I always felt like eventually I would have a baby. We were over the moon, of course, but at 6-7 weeks the spotting began. My Dr. put me on progesterone inserts (lots of fun for those of you who haven't had them - very messy) but at 9 weeks I started bleeding heavily and passing tissue, went to the E.R. and they found no heartbeat and my heart was broken. I lost the fetus later that evening. After a serious bout with depression and holing up in my house for 3 months, I changed doctors because I felt I had been brushed off and alot of my questions had not been answered. This was the best decision I could have made. My new DR. is wonderful and a christian and is so positive. I am starting clomid soon and he is convinced that I will conceive again, although I may not be able to carry to term. I was shocked about the uterus/kidney relation. I always got UTI's as a child, so now I'm concerned. Thanks to everyone for bringing this to my attention. Please keep the faith and pray for each other and update your stories! God bless!

[saraelizabeth]

First of all, Merry Christmas to everyone and please know that you have someone in Texas praying for all of you - you have all touched my heart and I am sitting here blubbering like a baby after reading all of your comments. I felt really alone when I found out about my bicornuate uterus this August. I am 28 and have been married 4 1/2 yrs. My husband and I never used birth control because I have always had irregular periods and was told at my first pelvic exam at age 17 that I would probably have a hard time getting pregnant. I had all but given up and when I popped up pregnant in Aug. (I had not had any fertility treatment whatsoever, but had lost 55 lbs.) We had been praying consistently for this child and since my name is Sara Elizabeth (the two women in the bible that were blessed by God with children when they thought it was impossible) I always felt like eventually I would have a baby. We were over the moon, of course, but at 6-7 weeks the spotting began. My Dr. put me on progesterone inserts (lots of fun for those of you who haven't had them - very messy) but at 9 weeks I started bleeding heavily and passing tissue, went to the E.R. and they found no heartbeat and my heart was broken. I lost the fetus later that evening. After a serious bout with depression and holing up in my house for 3 months, I changed doctors because I felt I had been brushed off and alot of my questions had not been answered. This was the best decision I could have made. My new DR. is wonderful and a christian and is so positive. I am starting clomid soon and he is convinced that I will conceive again, although I may not be able to carry to term. I was shocked about the uterus/kidney relation. I always got UTI's as a child, so now I'm concerned. Thanks to everyone for bringing this to my attention. Please keep the faith and pray for each other and update your stories! God bless!

[saraelizabeth]

First of all, Merry Christmas to everyone and please know that you have someone in Texas praying for all of you - you have all touched my heart and I am sitting here blubbering like a baby after reading all of your comments. I felt really alone when I found out about my bicornuate uterus this August. I am 28 and have been married 4 1/2 yrs. My husband and I never used birth control because I have always had irregular periods and was told at my first pelvic exam at age 17 that I would probably have a hard time getting pregnant. I had all but given up and when I popped up pregnant in Aug. (I had not had any fertility treatment whatsoever, but had lost 55 lbs.) We had been praying consistently for this child and since my name is Sara Elizabeth (the two women in the bible that were blessed by God with children when they thought it was impossible) I always felt like eventually I would have a baby. We were over the moon, of course, but at 6-7 weeks the spotting began. My Dr. put me on progesterone inserts (lots of fun for those of you who haven't had them - very messy) but at 9 weeks I started bleeding heavily and passing tissue, went to the E.R. and they found no heartbeat and my heart was broken. I lost the fetus later that evening. After a serious bout with depression and holing up in my house for 3 months, I changed doctors because I felt I had been brushed off and alot of my questions had not been answered. This was the best decision I could have made. My new DR. is wonderful and a christian and is so positive. I am starting clomid soon and he is convinced that I will conceive again, although I may not be able to carry to term. I was shocked about the uterus/kidney relation. I always got UTI's as a child, so now I'm concerned. Thanks to everyone for bringing this to my attention. Please keep the faith and pray for each other and update your stories! God bless!

[saraelizabeth]

First of all, Merry Christmas to everyone and please know that you have someone in Texas praying for all of you - you have all touched my heart and I am sitting here blubbering like a baby after reading all of your comments. I felt really alone when I found out about my bicornuate uterus this August. I am 28 and have been married 4 1/2 yrs. My husband and I never used birth control because I have always had irregular periods and was told at my first pelvic exam at age 17 that I would probably have a hard time getting pregnant. I had all but given up and when I popped up pregnant in Aug. (I had not had any fertility treatment whatsoever, but had lost 55 lbs.) We had been praying consistently for this child and since my name is Sara Elizabeth (the two women in the bible that were blessed by God with children when they thought it was impossible) I always felt like eventually I would have a baby. We were over the moon, of course, but at 6-7 weeks the spotting began. My Dr. put me on progesterone inserts (lots of fun for those of you who haven't had them - very messy) but at 9 weeks I started bleeding heavily and passing tissue, went to the E.R. and they found no heartbeat and my heart was broken. I lost the fetus later that evening. After a serious bout with depression and holing up in my house for 3 months, I changed doctors because I felt I had been brushed off and alot of my questions had not been answered. This was the best decision I could have made. My new DR. is wonderful and a christian and is so positive. I am starting clomid soon and he is convinced that I will conceive again, although I may not be able to carry to term. I was shocked about the uterus/kidney relation. I always got UTI's as a child, so now I'm concerned. Thanks to everyone for bringing this to my attention. Please keep the faith and pray for each other and update your stories! God bless!

[saraelizabeth]

First of all, Merry Christmas to everyone and please know that you have someone in Texas praying for all of you - you have all touched my heart and I am sitting here blubbering like a baby after reading all of your comments. I felt really alone when I found out about my bicornuate uterus this August. I am 28 and have been married 4 1/2 yrs. My husband and I never used birth control because I have always had irregular periods and was told at my first pelvic exam at age 17 that I would probably have a hard time getting pregnant. I had all but given up and when I popped up pregnant in Aug. (I had not had any fertility treatment whatsoever, but had lost 55 lbs.) We had been praying consistently for this child and since my name is Sara Elizabeth (the two women in the bible that were blessed by God with children when they thought it was impossible) I always felt like eventually I would have a baby. We were over the moon, of course, but at 6-7 weeks the spotting began. My Dr. put me on progesterone inserts (lots of fun for those of you who haven't had them - very messy) but at 9 weeks I started bleeding heavily and passing tissue, went to the E.R. and they found no heartbeat and my heart was broken. I lost the fetus later that evening. After a serious bout with depression and holing up in my house for 3 months, I changed doctors because I felt I had been brushed off and alot of my questions had not been answered. This was the best decision I could have made. My new DR. is wonderful and a christian and is so positive. I am starting clomid soon and he is convinced that I will conceive again, although I may not be able to carry to term. I was shocked about the uterus/kidney relation. I always got UTI's as a child, so now I'm concerned. Thanks to everyone for bringing this to my attention. Please keep the faith and pray for each other and update your stories! God bless!

[damion360]

i just found out yesterday through an hsg procedure that i too have a bicornuate uterus. we've been trying for 15 yrs, and had one miscarriage (that i know of) back in 05'. I am a bit nervous about it all now after researching.

[LELA32]

I FOUND OUT ABOUT MY B/U ABOUT TEN DAYS AGO, AND HAVE BEEN ON THE INTERNET TRYING TO FIND OUT WHAT'S GOING ON W/ MY BODY. I AM A MARRIED 32 YR OLD WHO SUFFERS FROM PCOS,AND HAVE A FIBROID ON THE OUTSIDE OF MY UTERUS WHICH I AM TOLD IS NOT AN ISSUE, BUT AFTER TEN YEARS OF UNPROTECTED SEX WITH MY HUSBAND THERE ARE NO BABIES. I HAD BEEN SEEING A REPRODUCTIVE ENDOCRINOLOGIST FOR SIX MONTHS WITH CONSTANT INTERNAL ULTRASOUNDS, YET THERE WAS NO MENTION OF A B/U. IT WASN'T UNTIL I STARTED BLEEDING HEAVILY THAT I HAD TO GO TO SEE MYREGULAR DO, AND GIVEN A TEST TO DETERMINE IF A MISCARRIAGE HAD OCCURED AND THAT WAS NOT THE CASE, SO I WAS TOLD TO COME BACK IN AND HAVE AN ULTRASOUND AND THAT WAS WHEN THE DIAGNOSIS CAME ABOUT. MY DO TOLD ME THAT SHE DIDN'T KNOW WHAT TO DO WITH ME AND REFERRED ME TO GO BACK TO THE WOMENS CENTER TWO HOURS AWAY. I DECIDED AGAINST IT AND DECIDED TO GO TO DUKE FERTILITY CENTER. I'M TRYING TO STAY POSITIVE BECAUSE I KNOW THAT IS THE ONLY WAY TO BE, BUT IT IS VERY HARD. STILL LOOKING IN VA

[stanton146]

Hi,
I just read your story.  I was trying to find out more about bicornuate uterus when I came across this website.  I couldn't believe that there are so many other women out there that was born with this kinf of abnormality also.  But what is more shocking to me is that most of these women commenting about having bicornuate uterus is that they too were born with one kidney.  I am 42 years old and my abnormality was discovered when I was 13 years old.  I first started menstruating when I was 12, but I kept on menstruating everyday.  My cramps were so severe I had to stay home every month from school.  I was not just menstruating normal menstruation everyday.  It was backed up blood from a small rupture of one side of my uterus.  My uterus itself had a mass or wall which made it into a double uterus it had a small rupture that it escaped/leaked old menstruation everyday.  Now for a thirteen year old who had to go through this for almost two years and had to change clothes and take baths two to three times a day was very humiliating because the odor was very bad.  The OB/GYN that I was seeing and did surgery to correct my uterus and said that when they removed the large mass from my uterus all that backed up menstruation came out and it was old blood.  My doctor said if it was not for that small rupture, from my uterus, it would have collected all that old blood and would have damaged my uterus or I could have gone to sceptic shock.  But I thank God everyday of my life for my mother's persistence in finding a good OB/GYN doctor who discovered that thru sonograms and lots of other tests. That is when the sonogram technician discovered that I only had one kidney.  I remember her asking if I had a kidney removed.  And I answered her no.  She said that in the sonogram it only shows one kidney, but is was very big.  Being naive and young I told her that I didn't know I was supposed to have more than one.  I always thought that the one kidney was something separate from my bicornuate uterus until I read all these comments from other women.  Thank God for the internet also.  Anyway, I am glad and relieved of finding out this.  I always thought that I was the only one with these kind of abnormalities.  Also, I was born 2 1/2 pounds.  I suggest that you speak to a good OB/GYN I know now these days medical technology is more advanced.  I wish I could recommend my old OB/GYN, but he moved back to Nigeria. His name was Dr Aquaye.  The doctor OB/GYN who perform my surgery to correct my uterus was Dr. Coleman Henley.  He had is office/clinic on 125th Street NYC.  Don't know if still practices or he still have his clinic there.  I wish you the best of luck and good health to you and all women who are going thru the same thing.