CF testing????

I was at the Dr today and we were talking about TTC and she told me about a test you can now have to see if you or your DH is a carrier for Cystic Fibrosis.  However most Insur Co. will not cover it until you are preg (too late) and the test costs $600.  Has anyone had thisor heard of this and if it does come back positive can they do anything?

[luv_babies]

Didn't your dr give you a pamphlet about it? My dr gave me the same info, and it said everything that I needed to know. DH and I did not do the test.

[greenpixie]

I took that test but only after we had conceived.  Both parents have to be carriers in order to pass it on.  If you decide to go ahead and do it then you should just test yourself first.  If it comes back negative then there's no reason to test your DH.  Oh, and I do not believe there is much you can do about it if you are a carrier.

[Jenny10146]

thanks I think I will check with my insur co to see what is covered!!!

[misseltoe]

This is an important test, though I don't think most of it know about it until we are pregnant.  If both parents are carriers the child has a 25% chance of being born with CF. Those are not great odds, though they could be worse.  

I know a couple that did IVF to get pregnant and the testing was not done correctly (mixed up forms, etc) and they are both carriers. They should not have been allowed to do IVF and now they are pregnant with their child and have this hanging over their heads.  They won't know until the child is born if the child has CF or not.  

You could still both be carriers even if you do have a healthy child.  It's really up to you and your peace of mind.  The odds are probably in your favor at this point, but CF is really horrible and scary.  I did some reading up on it as my doctor only put it on my lab sheet and didn't explain anything about it.  I had heard of it before but didn't really know anything about it.  It is just horrible.

[Jenny10146]

Thanks...I figured there was not much you can do. We have a healthy 3yr old DD so I think I might just pass on the test.

No my Dr did not give me pamphlet abou the stuff.  I guess I could just look it up on the web too.

Thanks so much!!!

[twiceadopt]

my ins covers it if you fit the appropriate 'genetic makeup' to be at risk for CF. same for Tay Sachs and other genetic disorders.