Can Beta-Thalassemia Minor have symptoms? - Maternal & Child

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Can Beta-Thalassemia Minor have symptoms?

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DreaaBrown

Jun 12, 2012

Hi im 15 years old and i had thalassemia all my life and i never knew that i had it untile i was 11 and i get very very tired. When i wake up im still tired. But today my symptoms are very different now. I get light headed and feel like i have to throw up and pass out. I dont know what i should really do about it. And its difficult to have.

tlove24

Jun 12, 2012

I agree with everyone I'm now 30 I found out I have thalassemia minor when I was 18 I didn't finish school because I been so tire I just thought I just was tire my school tried to put me in jail for sleeping to much in now my bone been bothering me I get bad headach I get hot real bad I heart pains in my doctor first told me I should have no sympthom but I do in when I go back to tha docotor he say I think its your thalassemia I said well I thought it don't have sympthom in my name TERESA

Temari_Kage

Jun 12, 2012

Since we don't have answers to all of the questions that are being asked here, wouldn't it be interesting if people, after they've seen their doctors, reported back here. Ik think it would give a more coplete 'overview'. I know I'd be interested to hear back from everyone!
@Dreaabrown: Fainting and being sick can be caused be all sorts of illnesses, also ofcourse by thalassemia. It does sound like something you need to take very seriously, I think you should definately need to talk to a doctor about this. Good luck and get well soon!

Temari_Kage

Jun 12, 2012

To: AspiringPersonalTrainer

I get that to, being ridiculously tired at times, though now not quite as often as I used to. I also find that exercising helps. But then: being in good shape is known to boost your energy level, right? I'm also thinking that though our blood may not be very effeciently designed, making sure that at least it can get really well to all the places in your body where it needs to be, might help. Personally I do whatever I can to be and stay healthy: I work out (and if I can't do heavy exercise, I do light exercise), I make sure I eat very healthy (I read a ton of info on food/nutriton), I reduce stress as much as I can (yoga & relaxation exercises for instance) and I try to get enough sleep every night, though that remains a struggle. ;) I find that doing all of this helps alot.

markzuni101

Jun 14, 2012

To: MCmnbvgyuio

I am 24 male I have Thal Minor i exercise and take certain vitamins (folic acid and fish oil). To be honest i don't really feel tired, I wake up at 4:30 am to workout before work. The only obvious symptoms i do have are;dark under eye circles, low blood count, jaundice, and an enlarged spleen(which I don't think is a problem and prey to god it does not become a problem because I have read certain peoples' spleens being so large they cannot eat a full meal without feeling discomfort and at times severe discomfort, and i eat a ton all day for i need the energy for my workouts, and i have not felt any abdominal discomfort.)But as far as the dizziness, fatigue,fainting, and getting sick often etc. i get sick maybe once a year with the common cold nothing major and other than that up to now in my life i have not had any other complications. i might not check back on this site very often pls relpy to me here as well as my email i would like to hear your thoughts or any advice. ***@****

markzuni101

Jun 14, 2012

To: riya968

I am 24 male I have Thal Minor i exercise and take certain vitamins (folic acid and fish oil). To be honest i don't really feel tired, I wake up at 4:30 am to workout before work. The only obvious symptoms i do have are;dark under eye circles, low blood count, jaundice, and an enlarged spleen(which I don't think is a problem and prey to god it does not become a problem because I have read certain peoples' spleens being so large they cannot eat a full meal without feeling discomfort and at times severe discomfort, and i eat a ton all day for i need the energy for my workouts, and i have not felt any abdominal discomfort.)But as far as the dizziness, fatigue,fainting, and getting sick often etc. i get sick maybe once a year with the common cold nothing major and other than that up to now in my life i have not had any other complications.Other than what i listed i like to think as myself as a pretty healthy individual being some thal minors have it way rougher with the fainting spells,fatigue,depression,and getting sick constantly.***@****

evey23

Jun 17, 2012

To: ALL

I was diagnosed with Thalassemia Minor at birth. The chronic fatigue is a constant battle (attracts very little sympathy too!)

Over the years (I’m now 30) I have found that a daily intake of fresh wheatgrass and regular (2 x month) B12 injections provide great relief. This coupled with Folic Acid, Omega 3, Vit D and B12 vitamins. Must avoid alcohol and smoking... have plenty of sleep!

I was vegetarian for 12 years - which resulted in a complete energy meltdown. To a point that I was unable to operate effectively. I was forced to start taking my diet seriously.

As my iron levels are very low, I have avoided taking iron supplements - as this would lead to excess iron in my body. But I eat iron rich food (on the advice of doctors).

I was interested to see that the opposite has been described in these posts with many of you avoiding iron rich food? Or taking Calcium to prevent iron absorption when eating? Please send your thoughts!

Temari_Kage

Jun 18, 2012

hi! The Iron confuses me somewhat. I've been a vegetarian since my 13th (so that's 13 years) and iron from plants is harder to absorb for your body than the iron found in meat, So I've always made sure that I eat plenty of iron rich food. Despite that, a few years ago (before I got diagnosed with TM) my iron was so low my hair was falling out and I could've gone into coma had it stayd that low for another week. I don't really care to go back to that. So I do still eet iron rich foods and I combine them with something high in vitamine C and I make sure I'm not at the same time eating something containing significant amounts of calcium. After I've calculated what I ate that day (or will eat), I might even have a low dosage supplement if I didn't get the recommended daily amount.
Do you think I should stop doing that?

Temari_Kage

Jun 18, 2012

Or, more specifically: What is the daily amount of iron for people with TM?

Lanier0258

Jun 19, 2012

I'm 54, and though my family on my Mother's side have been diagnosed with Thallesimia Minor.. I havent been officially test. I too experience all the symptoms mentioned.. which tells me its not just my imagination. Various members of the family take B12.. some as little as once every 6 weeks, once a month, and even once a week.

I've mentioned to my regular doctor about Thallesimia running in the family.. but she says that it doesnt show up on the CBC. *sigh* Do I need a referral to see a Hemoglobin Doctor?

Rhachis

Jun 20, 2012

To: All

Has anyone here experienced aquatic pruritus in connection with their BTM? For me the itching started when I turned 38. It is driving me nuts. I have to take loratadine to stop the itch every time I shower and sometimes if it is humid. I have not had my spleen tested. Also I have found that if my spouse spoons me at night and his hand rests near my spleen or liver, I wake in a panic because it feels like I am being crushed. Anyone else have similar symptoms?

Zarchy

Jun 24, 2012

i m 20 & hve recently diagnosed wit beta thal minor
i m always tired n often get joint pain
i m attending med school n when it comes to round the ward n learn...i jus cant concentrate ..mayb becuz i get tired for standing HOURS..so i had to call a guide for my studies....i also cant hve fun on weekends cuz i m tired..its always about tiredness ..i m so sick of my life for not hving the fun of young life.
i m also afraid that i cant b a good doctor one day becuz i m always tired
what am i supposed to do with my life???

deelindob34

Jun 28, 2012

To: wygvn

I have Tbm and yes I have a large issue with bloating. I find the more I cut back on dairy that it helps.. Hope this help you!

Missiemae

Jun 30, 2012

I was born jaundiced and anemic. I started feeling overwhelming fatigue when I was forced to attend afternoon split-sessions in school from grades six through twelve. I've had chronic fatigue throughout my career, marriage and parenthood years. At 67 years old, I'm now retired; and while I've enjoyed traveling, as well as babysitting my grandddaughter, my fatigue still accompanies me in all my activities! All my life my blood work has continue to show abnormal bilirubin and hemoglobin counts.

My diet consists mainly of fish, chicken, veggies, fruit and salads, in addition to supplements of folic acid and B12. Exercise seems to reduce muscle/bone pain, but does not bring relief from fatigue. While many other conditions can contribute to fatigue, I believe TM plays a large part; and I can understand and empathize with all who post here.

Zarchy

Jul 05, 2012

To: tlove24

Is it that tired??? Did u really stop school??i want totoo..its lyk i m in hell..
But i jus cant

Temari_Kage

Jul 08, 2012

To: Zarchy

You're gonna stand tall and be strong and build tons of character by pushing through this!
You wanna be a doctor right? Do you want to become a doctor because it's your dream and you'd just love being one? Or are there more extrinsical motivations, like having a good income? Then you might wanna change your plans. If not: you are going to do what it takes and you are going to keep your eyes on the prize and push through!

Going through college was hard for me too. I've always been in decent shape, and still I sometimes fainted on the stairs in school, due to TM symptoms (but I didn't know I had it at the time). I would wait for it too pass and then go to class (and get scolded at for being late, but whatever). I would go to classes while I had a reasonably high fever (cause missing one class meant flunking the course and thereby having to do more the following year). Sometimes asthma attacks would coincide with a fairly low blood pressure (on hot days especially) and being very anemic at the same time. I still rode my bike to go to college. Looking back, I sometimes don't even know how I did it, I know I sometimes felt like I'd rather die - dying is easy right? Living is hard sometimes. By the time my hair was falling out (big time), my doctor said: "Some people just get that, or try eating some dried apricots, their high in iron." (For the record: I didn’t let her get away with that, though ;))

And are you doing everything you can to stay as healthy as you can? Give up your social life and claim it back later. Or use one year extra to get your degree, if it means getting some time and space to breathe, I’d say it’d be worth it (since dying isn’t really a good option ;))
And you know, if you really like being a doctor, you can always do that for say 3 days and then, if you must for income purposes, do a sitting/easier job the other two days. And maybe you can manage by just working four days, that would take a load off, right? Sometimes it takes a plan B to do what you want to do.
What are your thoughts?

mony867

Jul 08, 2012

You crave spinich because the lack of iron, but the you dont need the iron, My daughter has the trait and her spleen is enlarged. Which the trait is not suppose to have this syptom (symptom). Her italian great aunt died from an enlarged heart, Because once the spleen fills with iron. The iron goes to your heart and causes it to be enlarged. She was only suppose to have the trait also. I did alot of research on this. I keep my daughter away from Iron as much as possible. When she eats food high in iron she drinks orange juice to help her body absorb it. I think my daughter has more severe symtoms (symptoms) than the rest of her dads family. Everyone in the family complains of fatique. They all love to sleep. She is the only one with enlarged spleen and she gets jaudice also. I never met the great aunt she must have suffered badly also. I think this is more than a trait. There needs to be more research.

hana1010

Jul 16, 2012

Hi all! I found this forum while doing some research on Thalassemia and am glad to see I am not alone. I am 32 and have known all my life that I have had this blood disorder but have never really had it monitored until right now. As a kid I remember feeling pretty normal and was active and played like any other kid. As an adult I have ALWAYS dealt with chronic fatigue, shortness, of breath, and constant dizzy spells and now heart palpitations that come out of nowhere. After my 2nd child was born my hemoglobin was in the low 5s and yet I still never had a transfusion. I was discharged and went home only to be back in the hospital a few days later with what ended up being congestive heart failure. It was a horrible, scary experience. I "recovered" and was my normal tired self. I later had a surprise 3rd child with similar symptoms after delivery but I knew the warning signs and was treated sooner. Still never had a transfusion. I have started running the last couple of years but noticed that I can never build my endurance. I struggle with shortness of breath and dizziness constantly. About 4 weeks ago I contracted a virus of some kind that made me very ill...could not stand for days, flu sypmtoms as well as severe dizziness and pain in my chest...stayed in bed for a week and a half. Eventually ended up in the ER with breathing issues and they discovered my hemoglobin was at 7.2...and this was after I had started recovering from the virus. I imagine it was much lower and I didn't know. Now I am in the process of seeing several doctors (hematologist, cardiologist, gastroenterologist) to monitor my Thalassemia and try to get my number up without a transfusion. I am currently at 8.6 so it's heading in the right direction. I am still fatigued but I do feel much better than I did a few weeks ago. I am just tired of being tired...and tired of struggling to exercise. I wish there was something I could take to feel normal and be able to run long distances.

Summertime77

Jul 18, 2012

To: Christineindc

Yes, I also have scoliosis along with Thallasemia. I was shocked to hear they are related! Please let me know more about this.

Ultra_One

Jul 19, 2012

I come from the Mediterranean region and have β Thalassemia Trait.
I think that most of you are exaggerating as this condition is NOT an illness but more of a "hidden" characteristic.
For those who are not aware of it, β-Thalassemia Trait (or minor) people are self immune to Malaria and have lower risk of coronary disease than people who don't carry the trait!
As far as the fatigue, migraines and all the other effects that most of you describe, these are mostly caused due to Low Iron which is one of the bad things about the trait.
If you supplement your self with Iron whether this is by iron tablets or by nutrition (parsley, spinach, lentils for example have high levels of iron) you will not have any of these symptoms :)

Ultra_One

Jul 19, 2012

To: mony867

I am really surprised by what you say because low iron is the norm among BTM people.
My iron stores throughout my life has been always lower than normal and in some occasions (when I felt the strongest fatigue ) was at dangerously low levels!!
You don't have to over-do-it by taking daily supplements but eating Spinach and Lentils once a week as well as Parsley with your salad will not cause you any harm!

Ultra_One

Jul 19, 2012

To: mony867

And red meat of course!

Amanda_z5

Jul 20, 2012

I'm 17 and was just diagnosed with Beta Thalassemia today. No one would expect me to have it, I'm from the U.S. and very, very white. I don't understand much about it, just that it runs in my family and could be causing most of my headaches and fatigue and stuff. As soon as they called I was crying. My dad had it too. I'm scared and don't know what to think..

glcam319

Aug 03, 2012

To: Akshay1964

Pleeeeaaase elaborate!!

Frazer848

Aug 09, 2012

To: Amanda_z5

I am 52 and a pharmacist in UK . with betathalasaemia minor..I dont know what all the fuss is about...It PROTECTS you from dying of malaria.( !)..In the past a lot of Italy and europe was swampy malarious...therefore its prevalence in that area and middle east.There is NOTHING to worry about...most people who visit these kind of forums are hypochondriac depressives...nothing to do with thalassaemia trait.. I have two lovely daughters.I look extremely young for my age..you will find this in other trait carrriers..this is because the oxygen tension in the blood is low and the body doesnt go'rusty' as quickly. I have Identicle twin..fit as a fiddle and has a Phd and three lovely clever kids. Chill. ... I think my sister is a carrier also.. she also is extremely young looking and pretty 50 years old with lovely healthy daughters.relax.

purpleclouds

Aug 20, 2012

Hello, I guess almost everyone here has thalassemia right? Needless to say, I am one too. :( I was diagnosed with Thalassemia minor at the age of 4 but when I was young, I dont have much symptoms. However as I grow older, more symptoms started to appear, btw, I am only 14.
Despite sleeping for more than 10 hours on weekends, I will still feel tired and will take 2-3 hours afternoon nap. I cant sleep that long hours on weekdays because I attend a full day school. In school, we have mass run, about a mile, and the whole school will run together. It is quite embarrassing for me to run and pant loudly during the run, whereas my friends dont. My hands will turn cold and be numbed.
In school, it is a must to take up an extra activity. As I am not the musical talented type, I chose to play badminton. The physical during the training is really tough. Most of my friends will complete the physical with ease while I will turn pale and pant really hard. When it comes the stamina wise, I always will lose out.
My parents always nag at me for being an athletic yet have no stamina. It is not that I dont want to train or improve, but I am always tired out easily. Though my dad and sister has thalassemia, they dont really have much symptoms as me. They dont get as tired as me when it comes to long distance running and staying awake for long hours.
My head will throb whenever I dont not have enough sleep. I also cannot seem to study. I will always tend to doze off while studying.
Am I the only one who is experiencing this or...? and how do I cope with this?

Lopita

Aug 23, 2012

To: mattmadjerich

You may also be positive for the MTHFR genetic mutation (not uncommon). Whether you are or not, try taking only the active form of folic acid, that is, 5-methyltatrahydrofolate. If you have the mutation your body may not convert the folic acid you take to the form the body needs to use and the fa can pool in the blood and promote the growth of cancer cells. Also, I would suggest you take the active forms of B12, methylcobalamin, and B6 as P5P. You can visit mthfr.net for more info. I have chronic fatigue syndrome but I know my mother has thalassemia minor. So now, after reading this blog, I am going to get checked for it.

ALPHA666

Sep 04, 2012

To: ALPHA

FIRSTLY  I WISH ALL THE BEST TO THOSE THAT ARE HAVING PROBLEMS.
RECENTLY FOUND OUT I AM A CARRIER. I  SUFFER FROM  FATIGUE. GO OUT FOR 6 HRS SLEEP FOR 18HRS. THE DOCTORS SAY I'M DEPRESSED DUE TO DELAYED BEREAVEMENT AND ARE TRYING TO FORCE SOME MEDICATION. THANKS TO ALL YOU LOT I KNOW BETTER.
I NEVER HAD ANY PROBLEMS WITH FATIGUE. I HAD A LOT OF ENERGY WHEN  I WAS YOUNG.
I THINK I SHOULD TARGET  BLONDE OR RED HAIRED GERMANIC/CELTIC INDIAN RACE OR JAPANESE MONGOLOID AS A POSSIBLE MATE TO BREED WITH.

JackOfShadows

Sep 12, 2012

Hello, I am currently 19, almost 20.
I was diagnosed with this blood condition when I was 17 after the doctor mistook it for Anemia, telling me to take Iron tablets (Huge waste of money)

After discovering that it was BTM I was immediately told that it had no symptoms to worry about, this was not the case for me, a bit later I was diagnosed with ADD, I have no problem paying attention, but the details of what I learned seem to become foggy or blurred when I try to recall them. My life seems to have been filled with people just being lazy about my conditions and passing it off as another.

During the span of my life I have had these symptoms, not sure if they are connected with my blood disorder, but here they are none the less, you will find that some are similar to others previously posted.

- Muscle pain, which could last up to three days
- Dizziness randomly
- Headaches randomly
- Dark circles under my eyes, even though I get a good amount of sleep
- Sometimes (Rarely) I cannot sleep at all for a whole day
- I will pass out if I stand up to fast
- Drowsiness throughout the day
- Easily fatigued
- And last but not least, Fogginess of memory.

I am fine with how my life is, It can be challenging at times but I've managed to keep my body in pretty good shape given that I become tired so easily and have the possibility of blacking out.

Let me know what comment you guys have on this.

Thanks for reading!

-Chris

eleni27

Sep 28, 2012

To: purpleclouds

not everyone experiences exactly the same symptoms but I do seem to feel better when i maintain a diet plenty with a lot of red meat, fruits, juice and a lot of water. Taking folic acid everyday also helps my condition. About tiredness this really doen't go away for me. I chose to take up music and theatre at school, would prefer not to do any sports although I enjoy it.

eleni27

Sep 28, 2012

To: eleni27

as others have said, at least I find other people who have the same symptoms and do not think of me being crazy!

I'm 27 female and look like at most 20. I was diagnosed when I was 16 when I passed out at school, doc gave me iron and folic acid and put me on a diet with lots of red meat, which helped a lot. Being at school sucked, i couldn't finish gymnastics class and I used to get really bad marks because the teacher had no idea about my condition and just thought I was lazy. I finally became overweight, something I am trying to change right now.

When I get the flu it can take up to a month to recover where other people would be OK in 3-4 days. And I have another strange symptop, I have slightly higher than normal fever which will not go away for long time and only when I take vitamin supplements.

To put things in persective this is is not such a bad thing, you can live with it a normal life just have to take care of yourself. The thing THAT REALLY BOTHERS me is doctors ignorance and as a result society's ignorance. I've been pocked by friends when I had to go to sleep early and had difficult time at school. I wish that could stop.

7sparrows

Oct 01, 2012

To: truckerswife1996

please,Never take iron with thalassemia.it will store in your liver and ruin your liver.i was told this by a hematologist at UAB years ago.also a genetitist said that if both parents have the disorder you run the chance of having a child with thalassemia major.also most dr's are not aware of the different types of anemia,but should be!and Love prescribing iron,it will cause heartproblems later and hemochromatosis.

VidhiM

Oct 06, 2012

I got the results to my beta thalassaemia test half an hour back. And I am tested positive. I am 22 years old and I am always tired... Also, I have always been a sick child. I have read through all the posts and realized that folic acid is good. I will take it and post my results.

bindu999

Oct 16, 2012

To: om26082010

Hi, my name is bindiya
I also have a son with the same .
If you need any advise let me know

nanoo18

Oct 17, 2012

To: Chipodzo

hi Chipodzo,
sorry to hear about your daughter,I have also BTM,and i have severe pain in my hands,but dr says its not due to BTM.They gave me ibuprofen 3 times a day,for pain.

mommabull

Oct 17, 2012

To: flomartine73

beta thalassemia can most deff have symptoms. Doctors and others will tell you that it doesnt but they have finally done a study proving that more than half the people with beta thalassemia minor have symptoms. I suggest you go to thalassemiapatientsandfriends.com and look under thal minor, it helped me to learn a lot of information that I did not know and it has a link to the study.

mommabull

Oct 17, 2012

To: 7sparrows

my grandmother was placed on iron infusion weekly for over a year and it ended up killing her of iron toxicity of the liver. She died a very painful death and we could not understand because they told us she had scerosis but she had never drank. It was not until I went to the same hemotologist and he tried to make me start the iron infusions and got very mad at me because I refused and made him send my for a transfusion. I then looked into what my grand mother had been recieveing. How can a blood specialist do this? He killed my grandmother and she died a horrible painful death.

Aurora68

Oct 31, 2012

To: Frazer848

I've read most of the posts.  I can't recall anyone commenting on the younger-than-we-are look, it's really true.  I am 44, I am an Interior Designer with a full service Wedding Business, I work 6 days a week and when I give my age when asked people are always amazed.  No one thinks am past 32, amazing, and I don't particularly take extremely good care of myself.  So thanks for the info.

To the general community, I live in the Caribbean so am always tired but I have learnt to work around it.  When am tired I rest.  Unlike most of you my count hardly ever gets to 10 I maintain an 8/9.  Red wine or Brandy helps I don't know why but it does, so I indulge about twice a week.

I live and try to enjoy every day  am able to get out.  So happy to have found you guys.

Darkagent06

Nov 03, 2012

To: Pathetic

Many of you are the most depressing people/group/ weaklings I have ever seen in my whole life. Thal minor has it's benefits. You all inherited this from ancestors whos body's evolved to fight the malaria disease which is why your red blood cells are oval shaped. You guys are all weak and lazy due to your weak mindedness about this so called disease. Workout hard eat healthy and your body/ energy will reward you. Continue to moan and groan all day you will remain a weakling. Be happy you have eyes/ feet/ and arms. Be happy you wake up everyday from your sleep. This has taken a negative placebo effect on you all. Your mind is in your control, regain it or you won't have anything left.

Chippilopez

Nov 05, 2012

Thank you for sharing those stories, it is such a relief to know I am not alone. I can relate to a lot of those symptoms. I am 33, have always needed lots more sleep than the average bear and I find it very hard to go out at night and have fun with friends. I seem to catch every cold that is going around and do not recover for ages. Last year I was sick for 3 months. I have also suffered in and out of mild depression most of my adult life and I have often wondered whether it is the thalassemia. It is quite frustrating that doctors are dismissive or ignorant of what it is like to have it. I am lactose intolerant and vegetarian and would love some informed advice on diet. I have found a low GI diet has helped with tiredness. My twin sister and Nanna also have thyroid issues and thalassemia. I wonder if there is a link.

heer1108

Nov 07, 2012

im so happy to be finding this here..im a BTM diagnosed since i was 16,i started feeling weak very easily in school till i had to stop all of my activities even gave up so many activities,and im still suffering til now,im 23.ive been to numerous doctors and they all tel me that thall trait isnt suppose to be causing these symtoms (symptoms),i get migraines almost every week,get fevers so frequently,and towrds the end of the day i get so tired,that i can barely even lift my arm up ..and also,im very worried as sometimes i get these anemic attacks in episodes,where i get too weak till i need to go to a hospital to get infused wth fluid.im sick n tired of being sick,this is very much disturbing my daily activities..i wish i can get help...

SilvestreChi

Nov 08, 2012

To: JunJunJun28

It is worth investigating the Chinese approach in some depth as well as following the advice here about Folic acid etc. From a Chinese medical perspective thalassaemia trait is a bone marrow issue and there are strategies within the Chinese system to energise the chi - life force - in the bone marrow. I recommend finding a good acupuncturist (word of mouth), investigating Tai Chi and Chi Kung, especially Bone Marrow Washing Set. Also check out Agama Yoga, a taoist approach to using yoga to energise the body. Don't wait for conventional medicine to do anything about thal trait as there is no priority given to research in this area and you will be fobbed off with iron tablets that may not be appropriate for you.

SilvestreChi

Nov 08, 2012

To: eleni27

I also went through similar problems at school with exercise - the level of ignorance among the teachers was shocking. As an adult I have devoted myself to finding forms of exercise that are appropriate and beneficial.

I recommend, in no particular order, walking, 5Rhythms dance, tai chi, yoga, salsa, cycling, swimming, light weight training and rowing, elliptical machines. I have also found much benefit in African healing dance and Indian classical dance. Enjoy the journey of healing!

SilvestreChi

Nov 08, 2012

To: Frazer848

This is a very unhelpful post - as if everyone were the same. You are lucky that you are not adversely affected by symptoms, but many people are, you just don't have the empathetic ability to put yourself in their shoes. I am surprised as a pharmacist you have nothing more constructive to say, but then this approach from the mainstream medical profession is one of the reasons this forum exists.

SilvestreChi

Nov 08, 2012

I also recommend two books about Chinese dietary therapy: Healing with Whole Foods by Paul PItchford, and Longevity: The Tao of Eating by Aileen Yeoh. The Chinese approach is not a quick-fix but by changing your dietary, exercise, and thought habits over a long period of time you will build sustainable health support systems into your life and may even end up with better health than your non-thalassaemic friends who will have burned themselves out!

leli888

Nov 19, 2012

To: Gerly

I am 44 years old, i suffered minor BT, already 6 months in the year I had a very severe anemia, fatigue, frequent infections in the body so that my white blood higher than red blood.
I struggled from childhood until this year to work hard and live life like a normal person, but I admit to 6 months, I almost gave up because I sometimes can not get out of tdur to do the right thing I could do, I need help from others, every week I need medicine to get back to work and within one month I am more in bed than my office to work.
until I found this post yesterday, only 2 days I read the testimony of friends - friends turned out a lot with me to struggle with the disease and live a normal life
thank you everyone who wrote in this post
God Bless our

giftofmagic

Dec 07, 2012

Hi, im 20, thalassemia minor, detected it only 2-3 years ago. the doctor told me that there wouldnt be a problem when im exercising so i've been taking part in sports competitively since i was 13. i too experience breathing difficulties and dizziness when im being pushed too hard in fitness and when i have insufficient rest time. my period's also always early and i always look pale recently. it seems to have gone so bad to the extent that im unable to sustain a run of more than 2k if my starting pace is too fast. im really puzzled if i should continue my training because i really love the sport but i dont seem to be able to last long enough during the game. :(

Frazer848

Feb 08, 2013

To: SilvestreChi

apologies from me for any negativity felt by readers...I was putting myself in the hypothetical shoes of someone recently tested positive..if reading the posts this person may have become anxious psychosomatic repercussions.Thank you all for your valuable informative posts. Xx

discodotti

Apr 14, 2013

To: Zarchy

hey i feel you im over people telling its in my head im always so tiered and if i could sleep all day i would learning at work is a challenge also and at time i think that people look at me like im thick but if they only new

sprintv

Apr 20, 2013

To: All

Hi to all

I got my full blood count 3 years ago and was confirmed as a Thal Minor. I brushed it off aside like a man, but those symptoms couldn't seem to avoid me.

1) After sprinting exercises, I always took longer to recover from the panting and had giddiness without fail.

2) Mild depression, I always thought I was developing negative thoughts out of the blue was the cause of a broken family. But now I know.

3) Tiredness. I was reading the first page and I laughed...now I know why I feel so tired my entire life. It is normal to feel this way.

4) Cold(which never seem to go away). This is the most annoying trait! I get this every Friday!!! When the weekends are here, most people get to enjoy it! But I have to rest in bed, eating medicine. Whew...

Regards,
Friend with Thal Minor

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