Cystic Hygroma on Fetus

[tmicpa]

At my 12 week sonogram, the sonographer noticed a cystic hygroma on the fetus that extended from the neck area down and all around the torso. The doctor and genetic counselor were not very optimistic regarding the prognosis of the pregnancy.  I was told that a cystic hygroma is the result of chromosomal defects in 50% of cases.  I did countless hours of research on the internet and everything I read was not positive.  

At 14 weeks, I had another sonogram and the results were good....the cystic hygroma appeared to be resolving itself and was present on the neck and back areas only.  I'm going for an amnio next week, but I wanted to know if there was anyone out there that is currently going through or had a similar situation or knows of someone who did.

I wasn't very hopeful after leaving the genetic counselor two weeks ago, but with the news at our 14 week sonogram, I left the doctor's office with tears of happiness....I have hope now.

[ark730]

Believe me, I know all about feeling scarred and concerned about hearing bad news from an u/s. My situation is a little different though... The u/s tech and dr. found choroid cysts on the brain of my little one on friday at my level2 u/s. Which could lead to downs syndrom (syndrome) if they dont go away by the 22nd week. I am 17 wks preggo. I had an amnio the same day and Im waiting on pins and needles for the results.

Im happy for you the second test came back ok you must feel soooo much better. Good luck and keep me posted.

[Silvee716]

I am sorry that you are going through this.  I was preggo with identical twin girls and on my 9th week u/s they saw a cystic hygroma on the back of one of my babies neck.  I got preggo with IVF and the doctors told me that it wasn't good news because they were noticing that at a very early stage of pregnancy.  The specialist told my and dh that it looked that there was a chance that I was carrying girls and that if I was that my baby probaby had turner sydromes.  Well at 16wks they did a amnio and the results came back that one of my babies had turners and the other one was ok.  Well my babies cysts was so big and she had adema all over her body and had fluid in her lungs.  I lost my babies at 23wks of gestation.  The doctors were hopeful that if my baby with turners were to pass in utero that my other baby would make it, but on my 23wk u/s both my girls didn't have a heartbeat.  I hope your news are a lot better than mines were.  I know that there are a lot of cases when they see a cyst of somekind on the baby and weeks later they find out that it had resolved.  I wish you all the luck in the world and hope you get to hold your baby in your arms... God bless you and your baby and husband

[tmicpa]

Thanks for sharing your story with me.  I am very sorry for your loss, that is just terrible.  I am going for an amnio tomorrow 9/15.  I will post to let you know the outcome.  At my 14 week sono, the sonographer was able to tell it is a girl, so it is possible she has Turner's Syndrome.

[WorriedMommy2Number3]

I am in the very same situation except my dr told me that there is a chance that my baby may not survive because there is a lot of blood in my uterus! I was wondering if you have had or have anything like this in yours as well?? Please get back to me i would really appreciate it thank you!

[carrie930]

When I was 12 weeks pregnant, my daughter was diagnosed with a 5.6 cm (mm?) CH. I had a 2nd measurement done  3 days later and it was up to 5.9. I was given only a 30% change of a healthy baby. It was torture to wait for each test result, but they kept coming back OK. We didn't know what to think. But I am right now holding my perfectly
HEALTHY 3 month old. It can be OK and often is.  Just because the odds are tilted toward poor outcomes, it doesn't mean you'll be on that side.  It is so painful to g through a scary diagnosis, but remember that there are perfectly healthy babies who had fetal CMs. Good luck to everyone.