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Ebstein's anamoly
by ranjeev, Jul 30, 2004 12:00AM
Our one day old baby boy has been diagnosed with Ebstein's Syndrome.
The pre-natal detailed sonography report (3 days before delivery) read as follows:
-Situs solitus noted.
-Cardiomegaly noted.
-The right atrium shows gross dialatation.
-The septal leaf-let of the tricuspid valve is inserted more towards the apex than usual.
-Color doppler study shows gross holosystolic tricuspid regurgitation.
-Ventriculoarterial connections appear normal.
-Color doppler study shows normal flow of blood across semilunar valves.
-Main pulmonary artery peak systolic velocity of 112 cm/s noted.
-Ascending aorta peak systolic velocity of 158 cm/s noted
-Foetal heart rate of 133/min noted (regular).
-1:1 atrioventricular conduction sequence noted.
IMPRESSION - Ebstein's Anomaly - Tricuspid regurgitation.
post birth the diagnosis is confirmed and with ventilator support the baby is stable. investigation reveals leakage between the Pulmonary Artery-Right Ventricle, Right Ventricle-Right Atrium and between right atrium-left atrium.
initial treatment - drugs to keep the PDA open post birth.
The doctors recommend a closed heart surgery to attach a shunt between aorta and PA ASAP.
request your expert opinion on:
1. the immediate, intermidiate and future course of action
2. your experience with the chances of survival and the ability to lead a "normal" life here on
3. any other useful information
we are in India with limited expertise on the subject. request your immediate response to help us save a life harshly threatened by nature.
regards,
Ranjee
The pre-natal detailed sonography report (3 days before delivery) read as follows:
-Situs solitus noted.
-Cardiomegaly noted.
-The right atrium shows gross dialatation.
-The septal leaf-let of the tricuspid valve is inserted more towards the apex than usual.
-Color doppler study shows gross holosystolic tricuspid regurgitation.
-Ventriculoarterial connections appear normal.
-Color doppler study shows normal flow of blood across semilunar valves.
-Main pulmonary artery peak systolic velocity of 112 cm/s noted.
-Ascending aorta peak systolic velocity of 158 cm/s noted
-Foetal heart rate of 133/min noted (regular).
-1:1 atrioventricular conduction sequence noted.
IMPRESSION - Ebstein's Anomaly - Tricuspid regurgitation.
post birth the diagnosis is confirmed and with ventilator support the baby is stable. investigation reveals leakage between the Pulmonary Artery-Right Ventricle, Right Ventricle-Right Atrium and between right atrium-left atrium.
initial treatment - drugs to keep the PDA open post birth.
The doctors recommend a closed heart surgery to attach a shunt between aorta and PA ASAP.
request your expert opinion on:
1. the immediate, intermidiate and future course of action
2. your experience with the chances of survival and the ability to lead a "normal" life here on
3. any other useful information
we are in India with limited expertise on the subject. request your immediate response to help us save a life harshly threatened by nature.
regards,
Ranjee
Member Comments (3)
by platinum, Jul 30, 2004 12:00AM
To: Ranjeev
Unfortunately there are no doctors here. You may want to try the Heart Forum. I wish you the best with your baby.
by Kassimom, Jul 30, 2004 12:00AM
Agree with platinum. Try the heart forum or a forum that gets answers from a medical proffesional. We cannot give an "expert" opinion as we are just a bunch of moms. Best of luck.
by lovinmom, Jul 30, 2004 12:00AM
A friend of mine's baby had a similar situation, he had surgery and he is doing wonderfully. I would suggest as the other ladies have. I wish you and your little one the best! Prayers are sent your way! (-:
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