High AFP levels, normal ultrasound

[Cheyenne_08]

I got a call from my ob doc today and he said my Quad Scan showed a slightly abnormal result for spina bifida. He did an ultrasound and found no abnormalities with the baby to confirm spina bifida. He has referred me to the nearby Maternal-Fetal Medical Center but I have to wait 3 1/2 weeks to go. He told me he is just sending me for a stronger ultrasound and to confirm her belief that nothing is wrong. I am still scared to death! Has this happened to anyone else? Does anyone have any experience in this situation?? Any help would be great.

[nalla]

Hi, First, there are a lot of false positives! These tests don't say that your baby has these problems, just that there is a higher risk for them. In most cases everything turns out fine.

Now, my son has spina bifida. He is 20 months old right now. My Dr. couldn't see the defect on the regular ultrasound untill I was in my 3rd trimester. And my baby has a fairly large defect. What you need is a level 2 ultrasound, and it sounds like that is what your Dr. has recomended. My Dr. also sent me to get one and that is when we found out.

I know this stress you are going through!! I had to wait several weeks till I got my ultrasound too. I'm so sorry you are going through this! Just try and stay positive and remember, in most cases everything turns out to be just fine!
If you have any questions or just want to talk, please let me know. I remember how I felt when I found out that my son might have had this. I was freaked out, scared, felt like the world just came tumbling down on me and I had nobody to talk to. I didn't really even know what SB was at the time. I really wish that I would have had this site then!

I wish there was something more that I could say to ease your mind. Just try and rememeber that the blood tests are often wrong.
Please let me know how things go.

[Cheyenne_08]

God I am so worried....3 1/2 weeks is going to kill me to wait. I am so sorry that that happened to you. I don't know what I am going to do. It just doesn't seem fair, you know. I just wish there was something I could do besides sit here and worry.

[rubyolivia]

You could call your friend Jessica and go shopping! :) lol Love ya!

[nalla]

I know you are freaking out. I'm so sorry you are going through this!  I know it's not as easy as 'just don't think about it and relax'. Maybe it might be helpful for you to do a little bit of research on spina bifida so it won't seem as scary to you. For me the unknown about the condition is what was the hardest part for me. And then the Dr.s telling me that my baby will never have a good future and will live in pain for the rest of his life. And that is NOT the case. My son is doing very well and actualy happier than the my other 3 kids were at this age!  Yes there are some challenges, and we have had to make some life changes, but life is really good right now and I don't regret at all keeping him. ( the Dr. tried to get me to abort him after we found out)
I'm here if you want to talk about this more. I pretty much know what you going through!

Once I really needed to get in to see my Dr. but there was no appointment open, so what I did was, I called everyday to see if there where any cancelations so I could get in sooner. Maybe you could try doing that. You may get in sooner.
Just let me know if you want to talk.