I am 21 years of age and 6 months pregnant and am now looking for a new OB/GYN. I am having little luck finding a doctor who takes my Malignant Hyperthermia precautions seriously, as I am not diagnosed. For those who know what MH is the know in order to diagnose you need to remove a piece of thigh muscle. My mother did not want that for her or her children, since my uncles, aunts and so forth all have problems walking because of it.
I am looking for a doctor, or at least information on precautions I should be aware of before labour to insure nothing goes wrong. When my mother was pregnant with my sister she had warned the doctor of MH being in her family. The doctor did not listen and as a result she had a reaction causing her temp. to rise over 109. Doctors overdosed her on many different drugs, and she was pronounced dead for several minutes before they decided to take my fathers requests seriously giving her proper treatment.
If anyone has any advice or information for me at all I would greatly appreciate it.
I wasn't familair with the so I looked it up. It looks like it is triggered by general anesthesia. If you have a natural birth without pain medication you wouldn't have to worry about it.
Also there are 4 ways to diagnose it
testing for myoglobin in urine.
Maybe testing to diagnose has progressed since your relatives were tested and had complications with it... Make sure your dr knows your family history and specifically what happened with your mother. Good luck.
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