MATERNAL & CHILD COMMUNITY
Please God have mercy on me! help

Please God have mercy on me! help

For Afp mines was 1.74. Which this was actually normal
because its between 1.0 mom and 2.5 mom

For Hcg mines was high. very very very high. I had 4.1
mom

For Estriol I was low. I had 0.41 mom.

Considering those three numbers at 18 weeks (when HCG
should be lowering not high!) my age and my weight,
race , my risk was 1 in 171 for downs.

What freaked my out lately is that I didnt realize how
high my hcg of 4.1 was. I remember the genetics
counselor telling me it was on the higher side but
assumed all high risk women had that high of a number.
Come to find out now i'm way high (4 times higher than
normal) and usually the high risk women are between
2.5 and 3's.

called the genetics counselor today and  she said it
was high indeed, they do get women with that high not
often but they do. But at least she didnt say most of
those cases were bad. Most are not downs. Especially
in my case she said not to interpret it as more
dangerous becaue whats helping me is the fact that my
afp was normal 1.71. usually downs is more common to
have a low AFP and a high HCG (and low estriol).
Really that combination of low AFP and high HCG would
then have made me riskier.

My estriol is also low which is risk for downs. which
also worrie me.

but the one that really made me a high risk for downs
was hcg of 4.1 mom.

I REALLY DON'T KNOW WHAT TO DO, I'M SO DESPERATELY IN GRIEF, SCARED, I HAVEN'T HEARD OF ANYBODY WITH THOSE NUMBERS AS HIGH AS MINE, NORMALLY THEY'RE AROUND 2.5! I DON'T WANT TO TAKE THE AMNIO, DON'T WANT TO KNOW THE TRUTH.
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I don't know anything about those numbers and how they relate to the possiblity of downs, but I do have a success story.  A co-worker of mine, and his wife, found that they had a 1 in 30 chance of having a downs baby!!!  They were unbearably freaked out.  They had an amnio completed though and everything was fine!  Their baby boy is almost 1 year old now and perfect.  I can imagine how scary an amnio must be, but for your own sanity and peace of mind, you should consider having it done.  They are very careful and it will tell you for a fact what is going on.  All those hormone levels are so different for each person and they are only a ****-shoot.  You really should consider an amnio -- I think you will find happy results!
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THANKS FOR YOUR COMMENTS BUT I JUST DON'T WANT THEM TO TELL ME THAT MY BABY HAS DOWN, I SWEAR I'M GOING CRAZY HERE, AND I'VE ALSO BEEN TOLD THAT WITH THE AMNIO THERE'S A CHANCE OF HAVING A MISCAR. AND IF THAT HAPPENDS AND I REALIZE MY BABY WAS OK, I WILL FEEL AWFUL FOR THE REST OF MY LIFE. THANKS AGAIN FOR YOUR COMMENTS.
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Avatar_n_tn
I'm not second-guessing your decision - it's yours and yours alone to make.  But if your baby does indeed have Downs, isn't it better to know now so the doctors can prepare for the birth?  I assume they might need a little extra special care if they have Downs...  Just a thought I had...
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OK sorry but my thoughts on the whole thing is forget the tests.  Whatever will be will be.  God felt you were ready for a baby and I think it is a blessing no matter how it is delivered to you.  Are you saying you would terminate the pg if your baby has down's???  Will you love your baby less if that is the case.  I really hope the answer is NO!!!!!!!!!  Like I said before look at this pg as a blessing and enjoy it and love your baby more than anything NO MATTER what the outcome.  Good Luck.
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Avatar_n_tn
I know it is easier said than done, but try to relax. Research some more, do the unthinkable...research down's syndrome. This is not the end of the world. Even if your baby has Down's, your baby is still a growing little being inside of you. There is a lot of information out there and knowing now could help you prepare for life with a Down's baby.

There is always the possibility that the tests are off or are being misleading.

Take some time to think about your options, but I do sincerely hope you think it through before doing something drastic ; )

Good luck!

Andrea
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Avatar_n_tn
I am so sorry that you are going through this right now and I know that I would be freaked out too. But like stated above God has given you this little girl and no matter if she is "normal" you will love her and do the best for her. If she does have DS it doesn't mean you would have to quit your job, most people with DS have jobs and everything a "normal" person would do, they are just a little slow and of course MR. Take your little girl as the blessing she is no matter the out come.
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I have done a lot of research, the other night I was watching a documentary of children with DS and I've searched books and the net, it's just so sad, I mean, god bless all those children and their parents, but I don't want to think about that in me, my whole life would change, I would have to stop working my husband's job is in jeopardy, he's a Marine ,I don't know what will happen, I'm not planning in ending the Pg that's one of the reasons I don't want to take the Amnio test because there's a change of having a miscarriage. so no, not planning to do anything drastic, thank you for your comments Andrea.

Nizza Simon
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I understand you wanting a healthy baby.  I know it is what we all want.  The world can really be a cruel place.  I do hope all works out for you.  I will keep you in my prayers that all comes out fine.  Good luck to you.  Sorry if my last post sounded rude.  I didn't mean for it to.  I guess I took your original post the wrong way a little  :o)   Take Care
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No it didn't sound rude at all, I appreciate you keeping me in your prayers, that's what I need! take care. KIT

Nizza Simon
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Thank you so much for your comments, and answering your question, no, if my baby comes with DS, I won't terminate the pg, it's not crossed my mind, I just want a normal healthy child, and I just want to enjoy my pg as I was before the Drs told me this whole issue, believe me I really don't know what to do, I just feel like everything is going wrong, I have forgotten about the tests right now I'm 25 weeks pg, I just don't want any more bad news, I just want my baby girl to be fine, and let me be the one with the problem. thanks again
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Avatar_n_tn
I went through a similar situation i was 1 in a 100 for downs. I too did not want the amnio but did get an  level 2 ultrasound  and that cleared it all up that it was a perfectly healthy baby . Ask your doctor about that. Good luck!!!
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